Excrutiating pain after total ceramic hip replacement

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I had a ceramic total hip replacement 6weeks ago and I'm in agony. I'm 40 yeats old and had avascular necrosis of the rigjt hip.I had a titanium disc replacement 6 years ago in my lower back so I was aware going into surgery it would not be easy. However, when the epidural wore off after the hip repkacement I was in agony, in fact I was in tears and did not sleep a wink until after 5 days when sheer exhaustion set in I have pain in my groin when I move my leg it feeks like it's grating on something.I also have pain down to my knee including my knee. My lower back again is in agony also my right buttock feels like it's being pinched all the time all the way down the back of my leg which I guess is sciatica. I saw the surgeon who preformed the hip replacement today, he says all my pain is coming from my back. What I can't umderstand is why am I in more pain after the op then before. My surgeon was very unhelpful saying I need refered on for my back by my G.P. Has anyone else had excrutiating pain after a total hip replacement. I can't believe the surgeon dismissed my pain and said the hip is fine when the horrendous pain im in only started after the operation. Like I say I'm looking for people with similar situation or knowledge and advice.

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  • Posted

    hi chris

    you are going through the exact same thing as myself im fed up of been pushed from one to other with 2 surgon's that made mistakes with my ops they will not admit to nothing they are always right they not my first op the femur head was loose ,not ligned up properly and wrong size head was put in i this was last october so did what you have got seconed opinion.

    went to see a different surgon at a different hospital in feb 20/14 he told me about the above i was put as urgent but for what good this was i got it in may 20/14 im worse now than ever i never was told anthing about what he intened to do put my life in his hands he never came to see me after op i had to make my own appointment to see him never say him till this wenseday

    . i always saw his under dog but in june i got foot drop my knee locked up cannot bend it so i have my leg in a splint since june i was at my wits end cryed hrs on end i can't walk im in so much pain from the scar wich is 12 inch long back ache groin pain and the pain from the foot drop is excuciating so wensday i had had enough i wanted answers got some.

    i have had MRI scan , nerver conduction test both have come back ive got nerve damage,  ive got foot drop now in other foot i im now in two casts then to top it he told me ive got a tilted pelvis and 3 inch shoter leg hes now panacking as the colour of my feet look like ive got gangerine in them ive never seen a colour like em.

    so before he will sort my knee out he wants to no whats caused the foot drop he said its not through the op well what the hell dose he think as caused it im panacking i have to live with all this and worry of ever walking again is he bothered is he hell hes sendind me now to a nurologist to get to bottom why ive got the foot drop's

    i really lost it with him for messing me about ive not walked since last october  his register r as said keep having physio but now. Ive to forget about the knee been locked till he can get the results from nurologist im so depressed i can't even sit out its that painful im on warfrin he had the cheek to ask me why there were more words exchanged its a yr today since i had all this done

    i havevent no atheritis but osteoprosis all this lot from a small fall im suing my first surgon if this dosent get is finger out after ive seen the nurosurgon im suing him i cannot take any more pain .

     ive tryed to cut it as short as i can but belive me i wish they would take both my legs of for what good they are ive been bed bound for a yr with no explnation layed on my back i weigh 6 stone from 9 getting no help from any one oh for got wasting disease im thinking of going private just for a consultation i really am sick up to the teeth now when he told me about this other foot drop and tilted pelvis i felt like punching him.

     are they surgon's or just butchers so you not on your own chris you can only take so much pain ive pins,plates,wire, longer stem you name it ive got it and not once have not been told ive all this pain all im getting you shouldnt be getting any are they thinking we are both imagining this pain  we bouth will end up in a mental home at this rate.the only thing i hope we bouth come out of this by keeping our chins up and see what other advice we get

    christine x

    good luck to you hope you get sorted out and keep fighting i am till i die.

    • Posted

      Yours has to be the worst outcome in history. And the worst surgeon negligence. He should be struck off and you need to join a group of his patients.Assuming you in the states? 

      I see this Dr James must be looking for candidates as has responded to several cases on here.... Please get on to him and offer yourself. You've nothing to lose.  When I read his posts I assumed it was USA as there's no money here for that.  But I would gladly volunteer having straighforward bone on bone eroded hip joint.

      Btw that Chris B disappeared a year ago. He opened this can of worms and exposed the terrible cases such as yours. Something has been served.  Please get back to the Dr James. It may just work for you and will further expose the sadistic torture you've endured. 

  • Posted

    Hi Chris, yes I had horrible pain after surgery. PAIN meds dif not cover all the pain either. Then I had physical therapy which caused more pain. The pain did ease as time passed though.

    I don't know what typeTHR you had.mine was anterior. Nerve pain comes from the damage during surgery.It does take time for the nerves to settle down. My leg is still numb along the side and knee.

    .knee pain was also associated with my procedure.also my ankles hurt too. After 12,wks I had my knee injected.That made everything better for PT and walking. I wished I had it done sooner. Hope things continue to get better for yousmile

  • Posted

    Hi Chris, I have just come accross this forum today. I have also had a total ceramic hip replacement but it was almost three years ago. Since six months after the op I have been getting stabbing pains in my thiigh. I also never lost the groin pain and have to lift my leg into the car. Right now this is all getting worse I have other joint problems and am going for a knee arthroscopy on Tuesday but have promised myself that I need to start gtting this thigh pain sorted out. How did you get on? I also have bad back problems but have never  had any treatment for this
    • Posted

      Sorry to hear about your pain Sue,l have ceramic socket too.and I'm five half months po.Also had anterior approach that is the scare is straight down the front of my leg.

      If I over do I have asking in the groin and is still hard to get my lt leg into the car and it does hurt.

      I guess it needs little more time to heal. I hope that will be the case for you to.please keep us postedsmile

  • Posted

    I had total hip replacement of my left hip due to avascular necrosis in June 2010.  Ceramic ball, plastic cup, & titanium post. They think it might have been caused by high powered steroids I was put on when I had a severe MS exacerbation in 92 and again in 01.  However, I fell & injured my hip striking it directly on the femur at the joint level.  Maybe it was both.?  Anyway, as soon as I got home from the hospital & got into my bed, I had a SEVERE cramp in the front of my hip joint which lasted for approximately 20 excruciating minutes.  Since then It will grab at different times expecially when I get a little bit chilled.  It is now cramping almost daily even with flexions of my hip.  It feels like someone is stabbing me deep in the front of my hip joint with a knife.  I did go back to my surgeon and all he told me was "some people have pain after surgery".  I found your discussion on hip pain while researching this problem.  It sounds like many other people experience the same thing.  I did find this article that describes my hip pain almost to a tee.  Maybe it will shed a little light for you if you are still having problems.    http://www.boneandjoint.org.uk/highwire/filestream/40510/field_highwire_article_pdf/0/991.full-text ;    I copied it off & plan on taking it to my surgeon.  Sometimes we just have to find answers for ourselves.  I hope you have found some relief by now.  Good luck with it.
    • Posted

      hi i had my first total left hip done, 2011, my right hip done 2012, by the end of the day, im in agony, ive also been told its not my hips, its my back causing the pain, i had no problems with my back, till i got my hips done, now ive got a lot of pain in my right knee, 
    • Posted

      Lynn:

      It could be your back. Unfortunately, it is NOT my back that it the problem.

      But I have a great Back Ortho! He walks on water smile If you like his name let me know?

  • Posted

    Actually your surgeon is probably right. My aunt had a terrible back and a bad hip, and after she was left in agony after the hip replacement she was told that the pain was inevitable. According to her second consultant you can't put a damaged back and a new hip together because it will cause more problems than it ever solves.

    If it helps she did have later surgery on her back and she has gone from taking 62 pills for pain management a day to 3 and has almost no pain at all.

    • Posted

      Wow that is excellent for your mom.

      I'm happy. She is not suffering any more.smile

    • Posted

      Hi

      That has made me think? I've had a double microdiscectomy and had my right hip replaced 4 years ago. But not long after having my hip replaced I fell off my bike at work on to the right knee same side as my hip, it was never the same after quite painful and now still aches after exercise!!. My job is very strenuous !! and I'm on MST slow release morphine for the pain and Sevridol , as I have spinal stenosis.

      I just worry that it will get worse and I won't be able to do my job anymore!!!

  • Posted

    Hi

    Sympathies -thought if i give my info something may resignate with someone

    Had a great deal of pain in groin and front of thight and down to shin sometimes, its agony

    Hip xray shows its fine, MRI on back and hip are classed as fine, very slight bulge which is normal and no nerve compression seemingly - but that doesnt add up to my leg pain??

    seen lots of alternative therapist, only thing that eased it is accupuncture, have a lot of stiffness going on so presume arthritus too

    New physio yersterday said it is NOT my back but the hip joint isnt turning due to inflammation and therefore back coming into play to compensate and putting pressure on the nerves

    the exercisses have helped already but dont know how far it will get me, at least have a bit of confidence back to deal with the pain - inflammation needs to go down so using cold peas, Turmeric Tablets 400, Quircetin (google what helps inflammation and stiffness)

    another physio has e-mailed to say it sounds like the fermural nerve is trapped but this not consistent with the results and of MRI. seemingly groin pain can come from the nerves NOT just from hip Thinking its the whole thing too, getting weight down and putting into place these measures doing the exeercises 3 times a day. also doing meditation and pilates to strengthen the body this is very important to hold you. I do think that depression with the pain makes it feel worse! the mind tunes into it - as the physio said, when an amputee has foot off, they still feel the foot for ages, this is because the brain is 'remembering' makes sense really

    good wishes everyone xx

  • Posted

    Hi there jus to say u ain't on ya own I had Total hip replacement in 2007 an had constant probs since I was 24 at the time my surgeon fobbed me of an discharged me when he knew I cudnt walk an jus recommended physio said my muscles etc had collapsed an needed to be strengthened after constant complaints 6 different doctors an 2 diff hospitals later through a routine blood test I found out the hip was faulty an had poisoned all my blood stream an my cobalt levels were 5 times higher than it should of been so the metal had poisoned my body an was splintering into my bloodstream I'd advise u keep at it an demand a blood test for this as it's quite common an certain  replacements have been called back due to a fault I've jus had it revised 6 weeks ago an now currently still on crutches but doing well 
  • Posted

    Chris I have exchrutiating pain over 1 year after the surgery and my Dr. intially told me it was my back. He now agrees he was dead wrong. But know one knows what the hell is wrong?? My white blood court on the synovial fluild they extracted from my hip was 13000 times normal, evidencing extreme inflimation.

    No firm diagnosis by any of the 5 differnent orthopetis and rumatogolist who have examin me?? Anyone have a diagnosis??

    +6

    • Posted

      Perhaps you have had an extreme reaction to the implant material.  An allergic reaction to metal/plastic? Maybe your body is trying to reject it. Worth putting to them? I believe you can easily be tested for allergy to those materials. Sounds very alarming with your WBC count so abnormally high.... Good luck
    • Posted

      Gentilleschi:

      Thank you. Your diagnosis is one that has be proffered by my rumatologist. It is a possibility but what's the cure? Aslo, it may be, from the limited articles on the subjects, I may cermaic particles in my hip. Not test what done on the synovial fluild??

    • Posted

      I hope and pray charles, That your surgeon can treat that what looks like infection in the hip.

      Off your body it's rejecting the implants is another issue.But with counts over 13000. Something needs to be done like yesterday.

      I would think your pain would be absolutely horrible pain. The last resort would be replacement.even so the hip joint has to be healthy.

    • Posted

      You would need to have allergy tests to see what you allergic to; then find out which scan will show debris. One type of scan will show where the inflammation is.  So, allergy testing and scan.  I am surprised they haven't done a scan??  There is not a "cure", some things just are.  You need to find out if there are particles or even something left in there; it can happen, swabs and God knows what.  Which manufacturer and find out which metals they use.  Mine, the Exeter is stainless steel for example.  When you know which metals, then you could test for allergies....  Why are they being so hopeless/helpless.  You may have to shout louder....  good luck.  Are you certain you got a ceramic ball and is the socket plastic for example.  Some sockets are coated in plastic and maybe that's affected you.
    • Posted

      Ginger, it's not an infection. They've tested for it - not present. The only two alternative left are: 1. My body is not accepting this material, (sort of like a allery but not really - my Remetolist has rules that allegy out); 2. I have ceramic particles in my Sinovial fluid. No test has been done for Ceramic in my hip.
    • Posted

      That's confusing if your white blood cells are so high.

      I also have ceramic hip.lucky no pain like your experiences.

      So you have ceramic particles in the flui is it possible the ceramic socket broke?

    • Posted

      What do I know.... We can only offer suggestions. But you need to explore all possibilities. Is the socket metal,or plastic? You need to find out the exact components then check if you are allergic. If your body is rejecting the prosthesis it migh only be one part and one which could be replaced. However I don't think they operate while there is inflammation present to that degree, it is a conundrum but not your responsibility to investigate. It seems you've been left with a vague possibility of ceramic particles?  How did they get liberated? Was it damaged during surgery.have you seen an X-ray... How did those particles get dislodged... It doesn't help to know. But maybe they can be aspirated out. They do inject the joint capsule, so I don't see why not depending on how big they are. Did it get chipped? You should be told wha gap owned during the surgery. We jus had the variety ale truest by a USA surgeon who wants CCTV in all surgical operating theatres,.  That would soon reduce all the botched up cover ups.!  
    • Posted

      That should read.  WE JUST HAD THE REITH LECTURES BY A US SURGEON WHO ADVOCATES CCTV IN ALL OPERATING THEATRES. that would reduce the number of cover ups...
    • Posted

      Just to let you know.I have ceramic socket too.the plastic on it acts like cushion to protect the ceramic socket kinda like cartledge on a healthy hip socket
    • Posted

      Hi Ginger:

      So do have an explaination for my condition other than the hip is some how not right?

    • Posted

      Ginger:

      I am very sure that my body is rejecting the ceramic particles. The plastic does does act as a cushion but does NOT act a a profolactic to shield the body from the particales.

    • Posted

      I also just read that if a person got the THR cemented in, sometimes the cement leaks out and causes the same symptoms.
    • Posted

      Ginger:

      That very well could be or it might the plastic. Either way, I believe the teatment is the same. Another hip replacement is NOT an option.

    • Posted

      I hear what ur saying. But the problem is not probably going away.

      I too am facing complications from my THR.

      I'm so grateful a person on this site sent me a medical article about a solution to my psoas muscle issues.I'm seven months post op..I still cannot lift the leg to get into the car or bed. Not can I lift it over my other leg plus I have groin pain.

      I took that arrival in to my physical therapist.She examined me the way the paper said.and I failed the test.The article stated that a c scan can locate the problem in the psoas muscle. 

      I too tremble at looking to surgery. But my condition won't heal otherwise.lol

    • Posted

      No metal present, not an infection, What kind of scan? If I knew I would  ask them to do it yesterday.
    • Posted

      Scheduled for the c scan this Tuesday.

      The surgeon felt like only injection not c scan.I said I wanted the scan and her got upset.we will do what this office does.. Then he backed off.I guess he ego was hurt.He also miss read that report regarding the results of the injection.I keep quiet about that 

      He said if that doesn't work then surgery.

      Illl agree with lengthening THR muscle but not removing it from the bone.

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