Exercise
Posted , 5 users are following.
Hi everyone, I'm very new to all this and I'm finding it hard to accept it. I
was recently diagnosed with cutaneous lupus and Sjogren's. The
symptom that affects me most is the awful fatigue. Before this all kicked
off I was very active- 2 aerobic and 3 dance classes a week but I find it
impossible to even do 1 class. I feel that it is important to exercise, will I
ever get back to my old self again?
1 like, 11 replies
Sue1247 Cloch47
Posted
Cloch47 Sue1247
Posted
sally83545 Cloch47
Posted
The fatigue gets better once the Plaquenil kicks in.
Maybe you could experiment with Yoga and Pilates until you are feeling stonger. I don't know if you will be able to go back to the classes you had before time will tell. I have heard of some people who are stiil able to jog and long distance run despite their condition. Now that you have a diagnosis you can start working to find out what changes you can make to feel like your old self again. Be patient it gets better! Good luck,
Sally
Cloch47 sally83545
Posted
One of my faults is impatience, so I guess I'll have to tackle
that.
christine26761 Cloch47
Posted
be blessed ..:-) xxx
Cloch47 christine26761
Posted
I have tried to learn many times but failed miserably. I thought
that I might start with walking and work up to a bit of power
walking in time. I just so miss my dancing.
christine26761 Cloch47
Posted
Cloch47 christine26761
Posted
I suppose it's just experimenting to find out what type of
exercise is going to suit me, but I think that I might have to
accept that my life is going to have to change somewhat.
Thanks again.
christine26761 Cloch47
Posted
morelia100 Cloch47
Posted
It has been about 1.5 years since I was diagnosed with Sjogrens. I don't know much about Lupus or how it might affect your energy. I do know that I was able to improve and even eliminate some of my symptoms through eating healthy and eliminating some things from my diet like sugar and dairy, etc. I typically have been an active person and was running every week and couldn't understand why suddenly I felt like I needed an afternoon nap every day and wanted to go to bed early I was so tired. However I am happy to report that my energy levels are close to normal if not normal and I have enough energy to exercise and don't feel the need to nap during the day. One word of caution--i have read that although exercise is important for people with autoimmune diseases, it is just as important not to over- exercise because this could cause more stress on your body. Also if you want to go the natural route or do a combination, there is so much information on the internet. I am also happy to share the books or more specific details about my "get-better" plan, that I have discovered during my research. Hang in there. There is hope!
Cloch47 morelia100
Posted
understand. You are absolutely spot on when you talk about
overdoing it. For instance, it was my birthday last week and
my husband arranged a trip to London to see a show and have
dinner at the Shard restaurant. We spent the day before the
show walking around London and meetin up with daughter &
her partner for dinner. The next morning I felt so ill I just
couldn't make the show or the Shard. They went to the show
while I slept in bed at the hotel, disastrous! I've learned from
that though, just because I was feeling a bit better didn't give me license to go gung ho. I would appreciate details of your
get better plan.