exhausted grieving 15 yr old forced to school with query CFS
Posted , 13 users are following.
we are looking for a paediatrician in the SW UK urgently. CFS has been suggested as the likely problem. However the school have linked up with social services and demanded she do a full day at school. 10 months ago this young girl suffered a tremendous loss , and has not had closure yet.
if it were us dragging her from bed I'm sure we would be deemed as unfit parents! The GP has refused to put anything in writing so tomorrow we have to again watch as she is dragged crying from home, only to sleep at her school desk? No she is not left to sleep, she is shook awake by a teacher who tells her to stay awake. We need a confirmed diagnosis and don't know where to go?
Anyone any ideas please
0 likes, 31 replies
jimmy_48419 BS8
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BS8 jimmy_48419
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Beverley_01 BS8
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Beverley
BS8 Beverley_01
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desperate and hurting!!
Beverley_01 BS8
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A counsellor is a good step. Here it is nay on impossible to find counselling for young people that isn't private. We were put in tough with a educational psychologist from the school (waiting list 6 months) to speak to me, my daughter and the school to come up with an action plan. Maybe request one? they basically are inpartial and aren't on the government agenda to force kids to go to school but to make it easier to educate the child, as it were.
I really feel for your situation and hope there is a more positive outcome soon for all of you.
Best wishes
Beverley
BS8 Beverley_01
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Beverley_01 BS8
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I've read your other replies here and it just sounds horrible what they are doing to your granddaughter. I'm not surprised she doesn't want contact with her mother.
Also, the local authorities could fund a private tutor if they weren't satisfied with the home schooling before.
Truly hope sense is seen by the authorities soon.
Beverley
BS8 Beverley_01
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Beverley_01 BS8
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Get support from as many sources possible-cab, cmhs, gp etc.
Beverley
lynne69494 BS8
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BS8 lynne69494
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Thanks you have problems too. My son and I are here in separate rooms dreading the morning. I have again sent Ri by taxi to a friend. She will sleep on the sofa until the taxi pick her up at about 9pm. Then taxi back, into bed then will go to sleep until about 10am at the earliest if left. around 8.15 or so the so called support worker turns up waking her, then the school welfare officer with a female companion. So we're now getting to 9.30 am, they leave and the social worker turns up with the support worker again. It's about 10.30 am now about the time she would wake?? Didn't they do well!!! My son can't take anymore, his nerves are shot to pieces. More later.
BS8 lynne69494
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lets think about this do we call in legal representation or the NSPCC I'm sure we would be prosecuted if the shoe were on the other foot!
lynne69494 BS8
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Yet in my area kids are out of school for months, backlash over that l guess. My son is now an adult in his early 30s, thank goodness we got past it, as he did go through a really tough time in his last year at school, missing exams, time, it happens with some kids, not bad kids, just teen times are difficult for many, my others son had no prob,s the son that did sorted himself later on, went on to uni as a late starter. l would think the authoraties have looked into legal grounds, but might be overstepping the mark, could be worth getting advice, dont know what you can get legal aid for now, otherwise costly, again .c.a.b should be able to advice just read your post to Bev, so understand a little better, l have never known such times, when so many grandparents are taking on a lot of responsabilities worries and grief over divorced adult children or grandchildren, its horrendous, at times when they should be having peace, but l,d be like you also, what caring parents do whatever their kids age, my eldest son lives a distance away, with a partner had 3 stepchildren, their mum just one left at homenow she l4yrs, my son a dad to her 7yr, split for 2 now back together, much based around money, his, good job, good life for her advantage to hilt, big worry and he diabetic, but distance away, at least. Youve got it on your doorstep, they should be helping you not making you more ill, its mad, for what its costing in taxi,s and various workers dragging her there, they could send a tutor in for same money, even if half days, aft, compromise, no common sense with them, l guess she,ll be l6yrs not far off. It could well be its genetics, many immune diseases are, passed on weakness of immunity. l,d go with your son to see cab, maybe a solicitors advice.
You could also try posting on healthunlocked, fibromyalgia cfs mb, the moderator on there gives good advice on organisations and legals that can help. Hope you can find a solution and get some peace soon. Take care o f yourself.
Elmo69 BS8
Posted
You must definitely get a second opinion from another GP and have the school nursing service been involved?
Contact your local Care Commissioning Group too.
Does your son get any support through any specialist CFS/ME services locally? What about his management of his own condition with his GP? Is the GP same one as for your g/daughter?
It really is unbelievable how the school can be allowed to treat a student like that! Is it a council-run school or private??
I am sorry I cannot think of anymore you can do, except re-iterate what others have suggested re: home schooling, contacting CAB.
Actually, how about contacting NSPCC? Also, the GP Practice she is registered with have to follow Safeguarding Children rules so speak to the Practice Manager and report your concerns. The surgery should have a "Safeguarding" Lead person too!
It must be so difficult for you having to cope with this too!
Sending you all my very best wishes for a speedy resolution!
Do let us know what happens. :-/
BS8 Elmo69
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