Exhausted with trying to figure this all out. ANY HELP APPRECIATED!

Posted , 2 users are following.

Hi Ladies,

I am back again with another post. I have been struggling with Ovarian cyst symptoms since the end of Feb this year (almost 6 months). I have had a clear pelvic ultrasound (external as they didn't want to do internal) at the start of May (although this felt rushed and I have heard not very reliable in testing for cysts) - I was referred for suspected PCOS by the way and the scanner said it wouldn't even show in this scan and so I think this may have affected how rushed it felt. I have since been on Mebeverine for possible IBS, Amitriptyline for possible neurological issues and now am on Rigedivon (or something like that- basically a form of the pill) to stop ovulation as the pain seemed to increase around that time. However, none of this has made a difference. I have been on the pill for less than a month and told to wait 3 months for the full effects, but as of now, my situation is still getting worse. I have also had hormone blood tests which were normal. In total, I am up to at least 5 (possibly more) GP appointments and I am losing the will.

Things have been getting noticeably worse this last month/ month and a half and now I have a massive stomach. Extreme nausea (I feel like I am about to throw up- thankfully haven't actually thrown up yet as I HATE it) almost every single time I lie down. I get pain throughout the day (now spread to both sides/ovaries) that is worse when walking too fast and lying in certain positions (such as on my side). I am absolutely exhausted. I have been generally exhausted throughout this all but with everything getting worse, I think my sleep quality is bad and so I literally sleep 9 hours, wake up exhausted, need to nap in the day and just physically cannot do anything. I spend most of my day doing nothing because I physically struggle to. I get really dizzy and short of breath frequently. 

I was told to try the pill for 3 months but I cannot wait that long with the rate things are going. Things keep declining and I am losing the will to live at this point. I tried to make an appointment with my GP but the only available appointment was the 31st of August or next week with a different doctor. I hate to sound so dramatic but I really feel like my body is giving up on me. What do I do? I feel like I can't wait that long for my GP appointment and even then, I would need to beg for more scans and tests which they seem so reluctant to give. (I think I don't stress how bad my symptoms are). I am almost considering A&E but I don't want to waste their time if it's not necessary. 

Please, can anyone share words of wisdom, advice or even just your story to help me feel like I am not going crazy. 

Thank you in advance!

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  • Posted

    I know how u are feeling i had went through the same thing i had delt with cysts on my ovaries for about a year until i told my gyn that i want them taken out so in april i had my left ovary and tube taken out cause of the cyst thet i had was enlarging i know it is to long for u to see your gyn but when u do let them know how u are feeling as far as the pain and u can't deal with it anymore they might schedule u to have it taken out until the mean time do u have anybody that u can talk to until then to ease your mind that is what i did i hope everything turns out ok

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