Expectations, lumbar decompression 4 months post opp
Posted , 5 users are following.
hello,
hope someone can help me. Im 4 months post opp, and although my opp was a success - I can now walk without severe pain and numbness. My back is so fragile. It's now my back that prevents me from walking for too long, as opposed to my spinal stenoses symptoms. Carrying heavy bags is impossible and today after shopping for 1 hour, I had sharpe stabbing pain to the left of my operation scar on my back . It was so severe I had to stop walking and just stand on the spot till I felt confident to move.
Heres my question. Does the pain and weakness in my back eventually go away, or, am I likely to have a back that's not 100% functioning , vulnerable and weak for the rest of my life.
Thanks Bonnie Blue
0 likes, 21 replies
scott17436 Bonnie_Blue
Posted
I had my first decompression surgery in 2007 at L5/S1. It was a complete success and was back doing pretty much everything I had done before, apart from Volleyball and Football, for near on 5 years.
That's where things change. The disc above went in Jan 12 and by Aug 12 I had my second decompression at L4/L5. That also included a Laminectomy.
After that surgery, which was emergency surgery for QE, it was never the same. My back hurt like hell and I had further nerve damage.
So much so that I'm going in a week on Wednesday for a double fusion of those two discs. The last 4 years have been hell.
Hopefully you will get my first experience, hence why I'm going back with my first surgeon again.
What meds are you on???
Bonnie_Blue scott17436
Posted
i also was an emergency I lost control of my bowel and jumped the queue.
My surgeon told me that it may come back. Oh I hope not.!!
I take 1 X 10mg nerve tablet nightly ( begins with A) and paracetamol. But I must say, today I went to my pharmacist and asked if I could take something stronger. She suggested ibrufin 400mg - 1 tablet 3 times a day. I must say I hate taking pain control tablets because they only camouflage the symptoms and pain. What do you suggest ?? Any help will be appreciated
kind regards Bonnie B
scott17436 Bonnie_Blue
Posted
Have you done any Physiotherapy?
I imagine your A meds will be Amitriptyline? I'm on 100 mg a day of this plus Diazepam 5 mg and Carbamazepine 600 mg, that doesn't include normal pain Meds paracetamol, ibuprofen and Dihydracodiene .
I know what you mean by not wanting to take pain meds but you are given them for a reason. If you need them you need them.
I'd ask to see your surgeon again. They know best.
Bonnie_Blue scott17436
Posted
yes the A is what you said. I take 1 X 10 mg at night. Paracetamol and Iv just started taking ibrufin. Wow, you're on a lot of medication. I really don't want to go there.
I think I will request to see my surgeon, that's a good idea, thank you for that.
Regards Bonnie
scott17436 Bonnie_Blue
Posted
What I've found is don't stand too long, but don't sit too long. If you can lie down do it.
I'm a teacher and the kids all know I lie down in my office at lunch time simply to get some relief.
Roll out of bed onto your knee and get up to standing from there.
Get a grabber so you don't have to bend to pick things up.
You'll find new ways to do things that help with stopping the pain coming back.
But if you need the meds, take them.
Bonnie_Blue scott17436
Posted
i forgot to mention yes I had hydro physio and exercises to do on the bed.
Im also waiting to restart the back class with physio at hospital.
I definately need a grabber I can keep in my bag. Can you get retractable ones? When I'm out shopping alone. I'm always dropping things and I have to ask complete strangers to pick it up, or walk away sheepishly.
Im due to go back to work soon, but I really need to get my pain under control first.
Thank you Scott.
kathy07828 scott17436
Posted
scott17436 kathy07828
Posted
I'm hoping this works for me as this is my last chance at surgery.
Good luck.
kathy07828 Bonnie_Blue
Posted
kathy07828 scott17436
Posted
Bonnie_Blue kathy07828
Posted
im sorry to hear you had to leave teaching. I'm fearful of when I return to work on 18th. I too will not be able to cope.
I must say about the nhs when you're in the system there are options on post opp therapy. ( that's from my own observation) I don't know if you got a walk in physiotherapy dept? We have here in Swansea. Ask at your hospital if they provide that. Yes, I did find the hydro helpfull I could do a lot more in the water. And I'm going to keep it up in our local swimming pool.
Regards shirley.
kathy07828 Bonnie_Blue
Posted
ellen82139 Bonnie_Blue
Posted
hope things get little betterx
Bonnie_Blue ellen82139
Posted
yes that's a great piece of advice. I will do that, hopefully I can get a message to him. I must say he was Wonderfull. He took away my leg pain. But now I'm left with terrible back pain and weakness. ( they don't tell you that pre opp) but I had to go through tpwith the opp, or, be left double incontinent and maybe in a wheelchair too.
Thank you
Bonnie
ann2402 Bonnie_Blue
Posted
i had the same op 9 weeks ago, and have the same symptoms, I think the surgeons really don't prepare you for this at all. I can't carry, but when I have to, if there is nobody around, I suffer for hours, my back feels week and I can here it clicking and crunching almost. I have heard it can take up to a year to improve, I just don't feel I'm getting any better. My back is definitely worse than before...so scary!
scott17436 ann2402
Posted
If the surgery was done to release trapped nerves (decompression) then you should have immediate relief with your leg symptoms. Your back takes longer to recover than you think. At 8-10 weeks your muscles and tendons are just recovering as these were detached and/or cut during surgery. It's these that take the time to heal. I use to call it having a 'brick' in your back feeling. Solid, stiff and sore.
This will go away. For me after my first op it was from around 14-16 weeks on! My second op, it never recovered hence my fusion on Wednesday.
ann2402 scott17436
Posted
scott17436 ann2402
Posted
My fusion is because I have bad degenerative disc disease, Spondylithesis and lumbar lordosis. The op will fuse S1, L5 and L4 together, hopefully taking away my back pain. All my issues have been at these levels since 2006. So ten years of pain will hopefully be over.
If you are concerned things aren't progressing as they should then get back to see your consultant. They will either put your mind at rest or realise something isn't quite right and check you over.
ann2402 scott17436
Posted
have already been back at 6 weeks to see the surgeon, had another MRI, which showed degeneration even further of facet joints. He said I would prob have to have the fusion. So loathe to do that. I am hoping to build muscles to 'hold' back, with Pilates and excercise, just can't see it happening as it's causing too much pain at the moment.... Maybe too soon. Going back to see him next week. Hate taking painkillers all the time too!!
thanks for the advice and good luck with your op and speedy recovery!
kathy07828 scott17436
Posted
scott17436 kathy07828
Posted