Exposing Clitoris- advice

Posted , 4 users are following.

Hello all,

I've been dealing with LS for ten years but have always kept it relatively under control using Dermovate on an "as needed" basis. For me that meant if I had itching I would use it for a few days or a week until it went away.

However, after my last menstrual period I have discovered that somehow my clitoral hood has fused shut-- honestly I'm shocked at this. It must have happened in literally the one or two weeks since I last had sex.

The strangest thing is that I wasn't really getting many symptoms and so I wasn't really paying attention. The other day I got out my hand mirror to investigate and that's when I discovered it. I haven't had any fusion elsewhere and the hood is still distinct from my labia. I know this makes me lucky, but I still feel so alone and distressed.

I am asking for an appointment with my doctor but they never seem to be able to help beyond general advice at best. I am wondering if I can try to separate the two sides of the V shape myself? Is it dangerous? has anyone done this before? I have made some half-hearted attempts but I have shied away from exerting more force as I don't know if it is possible?

Also wondering if anyone can recommend a private clinic with a good doctor in the UK/London?

0 likes, 2 replies

2 Replies

  • Edited

    Hi there, You tried to get in touch on another thread but I'll reply here.

    I had this disease as a child when nobody knew what it was. I had itching and due to the inflammation the whole area above my clitoris fused together.

    All the doctors who saw me dismissed the issue, saying it can't be fixed. The itch went away when I hit puberty and I didn't have symptoms until I was 35, when I got referred to the doc who changed my life. She is in Circle Bath hospital in Bath and her name is Aisha Qureshi. She is the kindest gynaecologist I have ever seen and diagnosed me on the spot. I suspected I had it but that was all. She operated on me in 2019 and I healed very well. I have no inner labias as they got absorbed when the fusion happened but she exposed my clitoris again and so I can relax during intercourse without the skin tearing at the worst moment.

    i would not recommend trying to force your adhesion apart, most of the time - and in my case too - the skin is not only fused together but also to the clitoris. it would be painful and while healing it would re-fuse. It happened to me that my skin partially tore during sex, and by next morning (!) it was mended just as it was. Crazy. Somebody recommended borax baths in another thread that helped her separating light fusions, maybe try searching that. It helps softening the tissue I believe.

    My adhesions happened as nobody treated me right when I was young. The steroid cream they give you should stop this from happening, my doctor also recommended olive oil multiple times on a daily basis, apparently the fusion happens when the skin dries out and becomes sticky. Emuaid is great too, I use it a lot when I need extra soothing. In my case now there is no itch, just a very annoying burning sensation a few days a months. It just feels raw and irritated.

    I can wholeheartedly recommend Dr Qureshi, she has extensive experience with this, she said she had a lot of ladies who she operated on with this condition, some almost completely fused from clitoris to perineum. She was very gentle and understanding and recovery wasn't too bad either. Let me know if you have any more questions.

    • Posted

      what a fantastically positive reply, Vero. Your doctor sounds amazing - why aren't there more like her? I am going to keep a note of her name. I seem to remember reading about her on here sometime ago.

      I am totally with you on the importance of moristurising. NEVER let your vulval skin dry out. I am 67 and by careful management my LS has not got a lot worse for 6 years. fingers crossed it stays that way but you can never be sure with this horrible disease.

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