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Hi anyone, its been over 2 years since I first went to my GP with
ear ache, deafness and worst of all the feeling of something alive crawling around in my ear canal. Treatment by anti biotics and monthly syringing was my initial treatment not the best course of action for c'toma but hey why should my GP suspect anything else. After 13 months I was referred to ENT. OMG I can't emphasise enough how much relief I got from the microsuctioning ( think
the nurse thought I was really weird enjoying it so much) finally
the huge bug crawling inside my ear stopped wriggling and I could hear again after 8 months of deafness and fainting all other the place ain't vertigo great!!! 3 months later off for another session
( was deaf again 2 weeks after first appointment) the nurse asked me to go back the next day to see the emergency consultant, this was February this year. He thought it was interesting and wrote
to my GP saying it was "essentially a cholesteatoma" had to
Google to find out what that was. Anyway biopsy in June just to make sure it wasn't cancer fortunately not. Then the next blow its not in the right place so off to Guys in London to see someone else as my ENT doesn't know what to do. Well the bottom line is its an external ear canal cholesteatoma an even rarer beast than the usualapparently. Does anyone on here know about these? I' m really lucky it won't affect my hearing long term so I count my
blessings for that but I have so little info on what to expect, its
already eroded my jaw so looks like separate bone grafting by
Maxillo Facial surgeons is on the cards too. Still waiting for a
date for surgery Can anyone help please?
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