Extreme burning with Protopic

Posted , 6 users are following.

I used Protopic only once yesterday morning and experienced extreme burning for the rest of the day. My gyno said that as long as the pain wasn't "excruciating", I should use it for two wks. I say my body is a lot smarter than the gyno.

Wondered if anyone else had this awful side effect from Protopic?

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15 Replies

  • Posted

    I started elidel yesterday which is similar to protopic. It was awful! felt like burning, hot fire crotch. i read that its a pretty common reaction no matter where you put it . some other sites said it gets better with time but im not sure how to tolerate that side effect!

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    • Posted

      I had to discontinue the drug, Stephanie. My psychiatrist told me that if it is prescribed again, to have the MD prescribe Lidocaine (not the OTC one) to apply first before the Protopic. My heart goes out to you, hon. I know exactly what that burning feels like ... and yes it IS intolerable!!!

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  • Posted

    Is that the same as Tacrolimus ointment? My doctor just gave me this, and said it may cause burning. If it is the same, I am not even going to try it.

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  • Posted

    JACKIE- I haven't USED protopic, but if something starts to burn like that I WOULD NOT continue using it! What if your Dr. felt like someone poured gasoline on her and lit it on fire? IDIOT! Get another opinion elsewhere. Burning is NOT A NORMAL REACTION! I am allergic to retinol A, if I put a product on my face and it burns, I WASH IT OFF IMMEDIATELY! ON MY VAJ? OH YEAH!

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  • Posted

    Hi Jackie, sadly your post just confirms my opinion of doctors. I would stop using it as it is having the REVERSE effect. Or, wait a day or so and try again and see if the same happens again, then you can at least say you give it your best shot and you need something else.

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    • Posted

      Confirms my opinion too of 95.5% of doctors. No WAY am I going to try it again. I do have an appt with an LS Specialist in mid-Nov, so I'll just gut it out until then. (And hope this specialist isn't an idiot, too!) Shudder ... what an awful experience that was!!!

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    • Posted

      Yes! It must be the generic. I will definitely not be using this. I'm so sorry for your pain! The doctor who prescribed it said I could try it. That is may be fine, may burn a little bit, or may burn a lot. And this doctor does specialize in LS! So scary.

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  • Posted

    JACKIE- I was looking over my research notes and thus is what I had wrItten down for PROTOPIC:

    Tacrolimus ointment .1% adults ( Protopic brand) -suppresses immune system and eliminates inflammation by inhibiting an enzyme needed to replicate T- cells ( should be used as a last resort, side effects )

    Is there a reason why they prescribed that and not CLOB?

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    • Posted

      I'll say, Karen. First of all, it says to use as a last resort because of the side effects. Secondly, the side effect is the EXTREME BURNING that is pretty near unbearable. (And maybe not bearable at all)

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    • Posted

      JACKIE- def. STOP using it, nothing should hurt that much! ANOTHER responder said her DR GAVE HER LIDOCAINE to use before the steroid? THAT is crazy! You need to try something different, sounds like a negative reaction to me! I also used a Moisture barrier ointment from MEDLINE with ALOE, VIT A, E, D to help when biopsy sores were healing.

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  • Posted

    hi,

    when i started using protopic i was advised i may have a mild reaction as you describe for 3-4 days yes i did and it went away after 2-3 days. i've now been using protopic a couple of years and i'm very happy with it. clob gave me a bad reaction and lesions.

    everyone is different, what works for one person may not work for others.

    hope you get sorted with a cream suitable for your use.

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