Extreme fatigue

Posted , 6 users are following.

Hello everyone,

I am from Belgium and I am not that good in the English language.

I have been PBC for 5 years and it has been discovered for fatigue. I take Ursochol 4 a day.

I find it difficult to wear because of the side effects!

Extreme fatigue, stomach problems, my hair and nails died off, my skin wrinkled etc ...

According to my professor Hepatologist there is not much known about it and got the advice to take all food supplements (vitamins) extra.

Currently my hair and nails are better but the extreme fatigue remains!

This gives a huge loss to my life!

Are there any people who experience this?

 

0 likes, 15 replies

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15 Replies

  • Posted

    Have you now stopped (or reduced) the Ursochol?
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    • Posted

      Personally I'd seek to avoid pharmaceuticals including Ursochol and Litican. Your posts seem to just list side effects for the Ursochol without significant positive effects despite dose doubling. And youll find sides with Litican on the internet.

      I would research nutrition and other natural solutions instead.

      But then again, I am anti pharms following serious sides with one which I am now reversing with an auto immune paleo diet and other things in an holistic protocol. My high billirubin has also dropped a lot.

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    • Posted

      What is your holistic protocol Oliver? I'm extremely interested in Nutrition, diet and lifestyle changes to fight this. Is the Paleo diet high in animal protein? I just changed over to buying organic produce to skip all the pesticides as they can't be good for the body. What are your thoughts? Love to hear more....

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  • Posted

    I am in the early stages of PBC, I experiences being really tired, dry mouth, dry skin too. I take Ursodiol and the medication give me gas. I have been trying to research what a good diet would be. Articles I find say to watch salt, fat and sugars. What supplements do you take if you don't mind me asking? I been taking a D3 daily and a C. I take B12, but that is because I don't eat meat, I been a vegetarian since 2009. I need to exercise but and too tired after working with Development Delayed Adults who also, have metal health stuff. I hear your pain. It all feels like a big puzzle... The Ursodiol has worked well so far for me. My regular Doctor is very young but, figured out it may be PBC. I have to travel to Seattle, WA to see my Liver once a year. Please keep in touch and maybe we can help each other out. God Bless, Jo

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    • Posted

      Hello Jo,

      I'm glad you responded!

      Have you already had a puncture of the liver to diagnose the disease?

      I take A and D for my hair and nails (D also for fatigue) B12 with an injection, everything from B (in Belgium called Befact forte) C for the resistance, magnesium, iron and sometimes folic acid. I take Litican for my stomach problems.

      It is so much for taking, but I can not live without it!

      I try to eat a healthy meal = not a lot of fat, lots of fresh vegetables, fruit and no alcohol.

      Greetings

      Christine

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    • Posted

      Hi Christine, I didn't have to undergo surgery to be dignosed I was hooked up to a machine that thumbs you on the side and uses sound waves. Have no idea what it is called. My Specialist is located at Sweedish Hospital in Seattle, WA. USA. My Grandma had PBC too when She died. I just had a blood test and every thing looks good. I see my primary care doctor tomorrow. The Specialist say I have another 15 years before things get bad... I am trying to do preventive care now as I don't want to have a liver transplant. I too eat tones of veggies and fruit. Last Summer I went raw vegan and felt like I had more energy.. For better sleep I sometimes take melatonin. I am also in metopause and have hot flashes that wake me up. Lol... I am 54 years young. Thanks for sharing what supplements you take. Do you do any exercise or activities to reduce stress? I read stess can mess with symptoms of PBC. Hope you have an awesome day. Take care, Jo

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    • Posted

      Kim, my Doctor friend told me most people have some fatty liver.. Don't know if there is a test? Take care of yourself... Maybe keep a food log and tack your fat grams to see where the fat is coming from. This promote mindful eating. Hope you find your answer.

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    • Posted

      Thank you. Yes my doctor said the same thing. I have been overweight most of my life and I used to drink a lot of soda. I am working on being healthier now and conscious of what I eat. I need to exercise and haven't been doing that though. I've lost about 40 pounds.

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    • Posted

      Hi Jo, thanks for your reply! Stress is never good and because I can not play sports I go for a walk. Because I am single I also look for people by going to the city and going between people. If I am not to  tired of my fatigue, I will also go to the zoo. This works calming for me. 

      Have a nice day !

      Chris

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    • Posted

      The zoo sounds like a wonderful place to relax. I love watching the monkeys. Nearest zoo to me are about 500 miles. I need to join a gym or take a dance class. I am also single. Have wonderful day...
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    • Posted

      Hi Jo, 500 miles from a zoo .... this is far away! Where do you live so that I have an idea? When I go outside, it is in the afternoon for a few hours. then my energy is on !! You can still exercise ... how long? 1 hour or? and what do you do to recover? I have already tried boostdrinks but this does not help .. If I am on my bike for 5 minutes I have to stop already ....
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