Extreme Unbearable IBS Pain
Posted , 6 users are following.
Greetings. This a lengthy story, all the (Side Note) paragraphs are not important, they are me just spilling my thoughts onto the keyboard. Feel free to skip them to shorten the port.
In 2017 I was hit with a pain so extreme that I was on the ground crying and calling 911. When they came, I was taken to the ER. There they tried to give me pain medicine such as Morphine and others, but the pain would not go away. Eventually it calmed enough for me to be able to leave. For the next 2 months I went to a Gastroenterology to figure out what was wrong with me, he did both an Endoscopy and a Colonoscopy, but found nothing but slightly inflammation in the Large Intestine. He did said I had IBS, but then slowly I just kind of forgot about it. I was able to eat Burgers and Fries and Wings and basically anything. The only time it hurt was when I had diarrhea.
Cut to 2019, about 2 months ago, I had once again, a pain that was out of this world. I was literally screaming and breaking things around my house from the pain. I almost dug my hands into my abdomen and pulled out my intestines just so the pain would go away. I was back at another ER. And again, not pain killers were able to stop the pain, not eve a bit. I was let go because I had "nothing wrong with me", even thought the pain was still there. 3 days of constant pain, not as bad as when I went to the ER, but pretty bad. I ate an apple, and all of the sudden, I was crying and screaming again, back to the ER I go. Once again, nothing wrong, and no medicine could help.
(Side note: I was there for almost 4 hours waiting for someone to even see me, I was literally screaming and shivering at the pain and no one even came by to give me a Tylenol or anything. Why are Hospitals like this? If a pain is so severe that the person is shaking from pain and begging every 10 minutes to see a Doctor, why wouldn't that be a priority? There were people literally playing on their phones laughing in the waiting room, and they were patients. Meanwhile I was there scratching at my legs almost peeling my skin from the pain).
Anyway, they found nothing again.
It's been 2 months a few days, and the pain has not gone away. I've seen two separate Gastroenterologist and no progress has happened yet. I had another Colonoscopy and Endoscopy, but once again nothing came up and they only found inflammations in the Large Intestine.
The deal is like this:
It hurts almost constantly Below my belly button.
Pain does happen in other places in my abdomen sometimes, but the one under the navel is always there.
Sometimes I go 3 days without defecating.
Using the restroom sometimes hurts, sometimes it doesn't.
I have not eaten anything other than white rice and soup with only a select amount of vegetables.
Sometimes it flames up really badly and it hurts incredibly bad.
I had Almond Milk one of these days, and I had immediate pain and diarrhea.
I've tried Peppermint Oil Pills and nothing happen (good or bad).
I've lost almost 50 lb in the past 2 months.
I've tried several Antispasmodic but none seem to work.
I have not had any blood in my stool. The stool was dark for about 3 days, but I had also been eating
blueberries all those days.
The hope I had has slowly been drained out of me. I've been essentially completely bedridden for the past 2 months. Everyday I wake up, I want nothing more than to go back to sleep. I don't want to be awake anymore. I've even called the Help Crisis Hotline several times because I've thought about cutting my abdomen open and pulling my intestines out. Nothing cheers me up anymore. I cry almost everyday, I lay on my floor and just cry.(Side Note: I had a full ride to college and I was all set to leave in August, but the pain prevented me from attending and I lost all the money. I haven't been able to work, the only funds I am surviving on are my college funds, but those are slowly draining.)
(Side Note: This pain has giving me so much despair that for a single second, on a particular day, I weighted the pros and cons of ending it all. And ALL of this in the span of 2 months. This constant, unbearable, agonizing pain has been there for 2 months straight, not a second of relief, not a moment of mercy.)
What can I do? I've had so many tests done to me. These include; several Blood Tests, several CT scans, several X-Ray Scans, Several Urine Tests, and a Colonoscopy and Endoscopy, but they have all came clean, all of them. According to these tests I am a healthy human being, yet I am in pain all day.
Can Anyone help me? Has anyone had this type of pain before and have figured out what this could be? Can anyone suggest any form to relieve the pain? Do you have any idea what this may be? Can anyone please help me?
(Side Note: It does suck that I have spend so much money in Doctors and they did absolutely nothing. One of them basically told me to go to another one because he could not find what was wrong with me. It seems they don't even care. They see me and quickly say "Alright see you in 2 weeks" while saying next to nothing that can help me at all. But they never forget to tell me to pay on my way out, oh no, that is the top priority here, not the fact that I am barely able to walk straight from the pain, forget that, the money is where is at.)
Thank You for taking the time to read this, I know I seem very angry but I have almost nothing left to try anymore, this pain has traumatized me and made me so bitter at everything. Please Consider leaving a reply, have a great day.
0 likes, 14 replies
clarissa42245 Guest
Posted
I have very bad irritable bowel syndrome and it sucks a lot of the time I get sick to my stomach
pippa58442 Guest
Posted
Sounds very like IBS since your tests have been negative. Accept your initial diagnosis of IBS from your doctor. See a different doctor and ask for a antispasmodic different from what you have tried before. I had the same lack of hope after three and a half months of similar symptoms to you, lots of negative tests, several doctors and an antispasmodic that made me significantly worse. Eventually, I saw a another doctor who recognised IBS after asking about recent stress which I had forgotten about. have you had any recent stress?
,
Guest pippa58442
Posted
Hello, Pippa:
When I was first diagnosed in 2017, I had so much stress with school and work. I can understand that one. Recently, I had a job as a tutor for children and I would go home everyday with a headache because how much they stressed me out. I had that job for about 1 year prior to this happening.
What can I do about that stress? Currently I am just at home not really doing anything but handing the pain, I don't think I am being too stressful now.
Thank You.
pippa58442 Guest
Posted
For me, I don't any medication for stress because it causes many other problems. I simply try to avoid stress and if I can't and it causes a flare up, I take antispasmodics for the pain and other IBS symptoms. I just accept the fact stress can be a problem for me and I try to get on with it the best I can. Sometimes, with IBS, inflammation can show up, but is not enough to be IBD. Since you have had a clear colonoscopy, it suggests you don't need to consider IBD because a colonoscopy would have shown it up. Since you have a confirmed diagnosis of IBS, accept what you have been told and don't consider anything else because you will irritate your gut further by worrying. Don't research anything medical on google.
maria47829 Guest
Posted
I'm sorry for what you're going through. this might sound like a dumb question but could possibly have Ibd despite the findings? i was always told an ibs bowel showed no visible signs but ibd does and you mentioned inflamation. also have you tried an axiety medication? it can be used now to help control the brain signals to the gut therefore lessening pain
maria47829
Posted
also have you tried FODMAP? it can help you identify fiods to avoid and also give you a broader range of foods to eat
Guest maria47829
Posted
Hello, Maria:
I have only been told about IBS, and very briefly at that. I have not yet considered IBD. I will have to ask around and do more research on that, it might be that is wrong with me.
I have been given one antidepressant once, it was called Amitriptylin. However, it did not seem to do anything to me. I tried it for about 3 weeks and I did not see an improvement or any worsening.
I have not yet tried FODMAP, I have a very good idea what my trigger foods are. I was doing very well for about two years, until the sudden hit 2 months ago.
Thank You.
JohnLucky888 Guest
Posted
i have the exact pulling sensation right below my belly button, however, after some bad diarrhea, my belly pulling changed to pain and back shoulder pain, leg cramps/joint pain, keeps making all kind of noises when i lay down, at night,
now joint pain when i change postures, feels gas in entire body and veins are tighten up, maybe the gas/stool/urine all stuck in one place and blocking air/blood flow?
unbearable, i would get them to cut my stomach open at this point,
yes all doctors laugh or smile: you are fine, you can move and no fever, vitals normal.
lost 15lbs in like few months, bad skin, easily bruised, worsen as the days goes on if i don't have a bowel movement during the afternoon,
with nasal block (yellow scabs or snot accumulates and won't come out until its clogged like my gut).
when i stand, back pain legs cramps, sit or lay down, leg pain/cramping, feels like muscle is pulsing/vibrating, muscles and nerves malfunctioning all due to ibs??? no way!
pippa58442 JohnLucky888
Posted
You can get joint pain, back pain, leg pain and cramping with IBS. It can cause a lot of other symptoms unrelated to the bowel. Nerves malfunctioning is also related to IBS which is thought to be caused by intestinal nerves getting irritated. Muscle pulsing is also common. I have experienced a pulsing, twitching sensation in my abdomen with my IBS. I also read recently that skin problems can be associated with IBS because when your digestion system is not functioning properly when you can't get a bowel movement, these waste projects can't evacuate the normal way and so they exit the body in other ways such as via the nose or the skin, hence skin eruptions.
sam18386 Guest
Posted
hi formerch, continual pain is nasty it's that that put me in hospital last year. i have coeliac disease which was eventually diagnosed after 12 long years and non-stop problems. i have fought any pain by walking,bugging doctors, i have no end of tests but from the start nobody professional said 'try cutting out gluten'. i am now fighting any of this with actions, my ex-doctors did nothing so i am now going to see if i can sue them (someone is investigating it for me). i fight anything physical knowing i may at least get some money back. i will continue to fight for the truth. if you do something like this then you may be able to manage. oh and walk lots, write a food diary and show people on here, they're 'experts' not doctors!
maria47829 sam18386
Posted
Sam, does walking alot help you? how much is alot of walking?
sam18386 maria47829
Posted
hi maria, as i have low bone density walking helps to strengthen the bones and a vit d tablet on top. in this lovely hemisphere we suffer from bone density lots, a way to combat the that is to walk 20 minutes at least each day. i hope that helps.
maria47829 Guest
Posted
Thank you!
Guest
Posted
Hello, everyone:
I used to watch my IBS. I watched the food and the places I went to eat at. Sometimes I would eat out and buy McDonalds and basically every other fast food thing, I never really had too much trouble. Not until this sudden hit that I am unable to eat anything almost.
Has anyone has something like this?
Also, has anyone had SIBO?
Thank You.