Extremely concerned I have MS, looking for advice
Posted , 4 users are following.
Let me preface this by stating I fully understand that no one online can diagnose something as complex as MS, I have an MRI in two weeks but I've already waited over a month (I'm in canada and these things take a very long time) and have been completely gripped by fear and anxiety in the meanwhile. Hopefully somebody on here can at least take the time to read over my symptoms and tell me if it sounds like MS or not.
Things that are off the table/that i've already been tested for: Vitamin Deficiency, Diabetes, circulation issues (tests for all came back normal).
Some years ago I had a feeling of a piece of tape being stuck to one of my toes. Some time after that, a toe was in extreme pain each time I stepped on it, but after a few days it went away and I didn't think about it anymore.
Then for about a year and a half nothing at all happened, but more recently I've been getting symptoms that have been scaring the crap out of me. All my symptoms seem to be localized to my head and legs, so I'll start with the legs and work my way up.
A few months back, I started having a low-grade burning sensation in my right foot. Nothing unendurable (so in fact a warmth sensation would characterized it better), but understandbly strange. After some time passed, my calf muscles started feeling tense when walking, almost like they have to work extra hard to carry me, as well as feeling the same warmth sensation first in one calf, then the other.
Concurrently, I started to get a tingling/buzzing in my face, again, low grade, but scary because of its implications. Also, one of my eyes went completely red and started showing symptoms of conjuctivits (excessive tearing, pressure). My doc gave me antibiotic drops but they didn't do much, and now, over a month later, it's still red around the edges. Also, the lower eyelid on that eye seems to have lost its elacticity, as when I pull it down it takes longer to return to its regular 'position' than normal, as if there is a slight paralysis to it, whereas the lower eyelid on my other eye 'snaps' back into position almost immediately.
Even more recently, I've started experiencing mild pain, pressure, and fullness in both of my ears.
All symptoms I can live with, but I've been obsessing over MS non-stop for the past two months and it's been utter hell. Again, the MRI is in two weeks, but I've been feeling like a prisoner awaiting trial during all this time, it's awful 
So does this sound like it's a symptom pattern consistent with MS?
Things i have NOT experienced: Numbness, balance issues, cognitive problems, vision loss.
Please, if someone has any input, I'd be really grateful! I can't take the fear anymore.
0 likes, 5 replies
Velstadt
Posted
bic24773 Velstadt
Posted
Hello, I have MS and a lot of your symptoms sound like ones I've been having fir 18 months but ... Yes sorry there's a but. I've had an MRI and the neurologist says it's not my ms but I have inflammation in my spine and spinal canal narrowing (Ive had a few car accidents and a back op) I've had the eye thing I saw an opthalmic optician because I wasn't near my Dr he diagnosed cervical something cyst and said it was indicative of arthritis and said take ibuprofen tablets. I get that strange patch but in my thigh and it's a large area, constant buzzing, crawling and twitching mostly in my right leg, electric shock sensations and involuntary movement of fingers toes ankle and shoulder. Lots more which I thought was my Ms. The uptake is I think whilst yes you could have ms your symptoms could be fibromyalgia or a spinal condition. I know the fears and I know that even after waiting for years two weeks seem a long time. Learn to control your breathing to control your anxiety, ms isn't a death sentence there's actually a cure on the horizon, you can live with it and manage it, someone on here the other day posted a similar question/post look it up because I think someone put a good book title etc on it and often a 'me too' situation can help. You could private message and support each other. Cone backbone and let us know how you got on. I see my neurologist in august. Deep slow breaths, you're not alone. Kindest regards Lorraine
Velstadt
Posted
Thanks for the kind words, Lorraine. I'll try to find the other post you're talking about, although after looking over this specific sub-forum i realized that like 99% of the posts are exactly like mine lol!
matrixbella Velstadt
Posted
HI
I am from Canada too and will be going for my MRI in two weeks. Velstadt, I know exactly how you are feeling right now. I sometimes hate google because when I search my symptoms, MS is one of the first things that come. Its hard not to think the worse when you are showing signs. I have been suffering with numbness and lots of body pain for over a year now. My doctor doesn't think its MS but I have a lot of similar symptoms. As much as I don't want to do the MRI, I'm sorta looking for closer with all of this. If its MS, I will at least know and can move one. Its the not knowing that is driving me crazy. I have done so many tests and they all come back normal and yet, most days, I can't feel my arms, fingers and my legs feel like they weigh a thousand pounds.
Good luck and think positive!
bic24773 matrixbella
Posted
I'm s big Google fan too, I have ms and when I get another symptom I check and it comes up ms and I think ok right but 😦 yes there's a but .... I got so poorly I asked to see neurologist and then I asked for an MRI and now I'm in limber because it's not my ms he said. So although an MRI will help diagnose, ms symptoms are not necessarily ms. Good luck hope you get some answers, bit don't be scared of ms, it's not a death sentence 🌹💙