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Extremely high tsh level over 400, has anyone else experienced this?

Posted , 7 users are following.

Kris02848
Kris02848

i was just diagnosed with hypothyroidism but my levels for tsh were extremely high and the dr was baffled. He prescribed me 75mcg levothyroxine and i have an ultrasound coming up as well.

tsh - 451.7

t4 free - .11

what could this mean? any help would be appreciated.

0 likes, 7 replies

7 Replies

  • njm1216
    njm1216 Kris02848

    Posted

    could they have put the decimal point in the wrong place? Normal levels are .4 to 4.0. Looks like it was a typo to me. I think it would be impossible to have a level at 451.7. you probably should be retestested and I would certainly question your Dr. about the possibility of a typo. Even if it's actually 4.5, that's still high. Have you had your t-3 and t-4 tested too?

    • Kris02848
      Kris02848 njm1216

      Posted

      i was retested already and the numbers were correct. (same both times)

      my t4free was .11

      im scared because i cannot find anything with numbers like that.

    • skumar97669
      skumar97669 Kris02848

      Posted

      first of all test again from a different lab.

      please check twice again before going for a treatment. you shoud have three tests from three different places before drawing any conclusion.

  • Holly_In_Hell
    Holly_In_Hell Kris02848

    Posted

    i believe you. i don't know if mine has ever been that high but I have reached triple digits. from my experience when it gets that high the symptoms only increase marginally. in other words it's not a one-to-one correlation between symptoms and TSH numbers. so even though your TSH numbers are increasing your symptoms could be increasing at a slower rate or just plateau off. How bad can a human feel? When is bad enough as bad as it gets? At some point you reach your symptomatic rock bottom and you can't get any lower. So the symptoms of TSH 600 could be the same as your symptoms at TSH 60... not that either of those are good.

    It's been a few weeks since your post and I do hope you are feeling better and have gotten your numbers lowered down to a more liveable number. I would love to hear how you are feeling now.

  • barbara98940
    barbara98940 Kris02848

    Posted

    it sounds like Atrophic Thyroiditis have a look at thyroid patient's Canada articles. also the one on TBAb

  • patricia9991
    patricia9991 Kris02848

    Posted

    i was looking into info about this issue and found your post

    i was diagnosed with hashimoto on june first this year with TSH 466!!!!!! My doctor asked me to start a diet (no sugar, moderate gluten more fruits and vegetables) and wait 4 months to see if the numbers go down I am afraid to wait 4 months to retest, i believe he should prescribe medication for my condition

    the thing is I do not eat sugar, i do not like sweets! i am eating gluten free bread and and I am literally lost

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