Eyelid swelling

Thanks, sounds interesting Lily.

Can it be purchased online?

Yes. And if you're in the UK you can also get it at H&B.

Not in the UK, so I'll check for it online.

Any brand you suggest?

Hi Mandy, In my case it was only about a week before things became more bearable. However, I have to say I suspect the problem might have started improving of its own accord after that time anyway. I'm largely in remission from eye problems at the moment, and the recent problem mainly arose due to staying in a hotel room with fierce air-conditioning, when I'd forgotten to pack my eye-drops for the trip. It's a bit like the aspirin problem - would the headache have gone away on its own if you hadn't taken the aspirin? I was only suggesting it to Shira as a last-ditch possibility since all else seems to have failed.

I'm actually more interested in taking it long-term as it's thought to improve the general sicca situation, including dry, ageing skin, as well as rheumatic conditions. At the moment, a flare-up of my old friends RA and polymyalgia rheumatica is causing me more grief than dry eyes, so I felt it would be worth a six-month trial for that too.

Hi Sally, thanks for the suggestion.

I have tried cold compresses but they actually made my eyelid even WORSE! Seems that anything that touches it aggravates it.

Are any of you ladies by any chance double jointed? If you are then look up Elhers Danlos or Hypmobility syndrome. This too can give Ptosis as of course can Sjögren's I have both! So in my case I had a Schirmer and dry mouth that Henrik had he seen me then as he was alive in the 60s he would have told be I had his problem. I too have POTS but In my case my POTS is probably autoimmune as I started to feel faint post my last son when like the D of C I had severe Hyperemasis Gravidarum 

Hi Shira

Glad to hear that you have been given an explanation for your signs and symptoms.

Did the ophthalmologist advise as to the root cause of the lacrimal gland dysfunction and any possible medications?  Jean

 

Thanks Jean, though the eye doc only diagnosed me with severe dry eye due to scoring 0mm on the Shirmer's test.

I have diagnosed myself with the lacrimal gland inflammation based on observations from others that the area that gland is located becomes severely swollen as the day progresses and my own extensive research into the matter. I will seek further confirmation from a true specialist (disappointed with my usual docs). From what I've read the root cause is inflammation and may be caused by Sjogren's since there is an attack on the moisture glands and the lacrimal gland produces the eye's tears. Haven't yet found mention of medication targeting this problem besides steroids and perhaps testosterone cream. Will continue researching.

Pam- I'm not double jointed.

It was just an idea!

Shira

I think that you should follow up your research with an examination by an Ophthalmologist who specialises in auto immune conditions. I have been pleasantly surprised by the extensive knowledge that ophthalmologists have at my local eye hospital.

As you have identified fr yourself you need to find out the root cause of the lacrimal dysfunction. Do you have a neuro ophthalmologist in your neck of the woods?

If you PM me I could suggest a couple of hospitals where you could obtain more information as to the possibilities oof your dysfunctional lacrimal glands and the treatment of this. Hope thi helps.

I am currently searching for an ophthamologist who would understand more about this. I'll check into the possibility of a neuro ophthamologist but I've never heard of one. I'll PM you. Thanks!