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Fabriomyalgia and rheumatologist

Posted , 5 users are following.

trisha87499
trisha87499

I have only seen a rheumatologist once and that was for my arthritic knee, should I be speaking to one about my Fabriomyalgia, I've had it for years now, however never been referred to one. ??

0 likes, 16 replies

16 Replies

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  • rose1941
    rose1941 trisha87499

    Posted

    I have only seen a rheumatologist and she also delt with my fabriomyalgia which was excercise. Which I do when I am not in pain which is not very often.
    • trisha87499
      trisha87499 rose1941

      Posted

      Going through quite a lot of friends on here, they seem to get so much more from their rheumatologist, that's why I'm curious, thanks for reply rose??

  • Misssy2
    Misssy2 trisha87499

    Posted

    I saw a Rheumatologist just to confirm it wasn't anything else.

    I had high inflammation markers..and a slow sedimintation rate..

    So, everything else was ruled out..Lupus, Lyme, SLE..so they say I have Fibro....but not given any medication from her...just from GP...given Gabapentin.

    Exercise DOES help the pain...I never thought it would as exercise...strains muscles..but it DOES help...the days I exercise..per the gym..i have LESS pain.

    • trisha87499
      trisha87499 Misssy2

      Posted

      I agree about excercise to a certain point, it helps for the period after it, then it catches up with you and I can be in bed for a couple of days for overdoing it, I put that down to having athritist though, as I said though a lot of people on here seem to be having ongoing contact with a rheumatologist and wondered why and for what reason? Thanks missssy
    • Misssy2
      Misssy2 trisha87499

      Posted

      Maybe they got a really good Rhumey Dr....I haven't had that experience.

      I find that ALL Drs. prescribe...Actually my Dr. told me that is her job...to prescribe meds.

      I find...exercise to work the best...and i was really against it....until I tried it regulary and regulary felt better and less pain.

  • kaz_40
    kaz_40 trisha87499

    Posted

    Hi trisha87499 It was a rheumatologist who diagnosed fibromyalgia for in 2014, all he did was give me a leaflet on it and refered me back to gp for pain relief. I havnt seen him since he explained nothing to me about fibro at all Ive just been left to get on with it by him and my gp.
    • Misssy2
      Misssy2 kaz_40

      Posted

      Thats because (probably) most Drs don't believe we are in so much pain.  I am lucky to have a GP that admits to having Fibro.

      But, even SHE is like...she's working...and what is my big issue with the pain?  At least that is how I feel.

      Yea, she is working..she is a freaking Dr...if I had a PHD...and could just walk in a room and help people...I could work too...I can't work for my current qualifications and it p*sses me off that no one respects FIBRO.

    • Misssy2
      Misssy2 trisha87499

      Posted

      exactly..its so tiring...there is a blood test that says if we definetly have Fibro...but it is costly...747 dollars she told me......out of pocket cause medical insurance doesn't even cover it....WHY? Cause it isn't a recognized illness or conditon yet....a-holes.

    • kaz_40
      kaz_40 Misssy2

      Posted

      it amazes me how drs and specialists dismiss fibro their is only 1 dr in my medical practice that believes fibro exists the other drs dismiss it totally. because you cant see pain people dont seem to believe we are constantly in pain. They want to try being in our shoes if only for a day? they want to try living with it. No one understands fibro or like you say respects it. its about time it was put on the same level as ms. we may get more help and understanding then. 
    • Misssy2
      Misssy2 kaz_40

      Posted

      I think they think we want PAIN meds..no I don't....I just want understanding...and validation that I AM in pain..and it does affect my life...

      a-holes

       

    • Callaloo
      Callaloo Misssy2

      Posted

      Ask if your Physio department at the hospital has a fibromyalgia clinic. It may help with understanding the disease, and coping mechanisms.
    • Misssy2
      Misssy2 Callaloo

      Posted

      my GP is pretty good at care recommendation since she says she has Fibro...it is exercise..the key....
  • Callaloo
    Callaloo trisha87499

    Posted

    A Rheumatologist can refer you to the pain clinic for pain control ( a lot of pain clinics only accept referrals from another consultant) and some Physiotherapy departments run programmes for fibromyalgia patients. This includes explanation of the disease, how to cope during a flare up and what exercises can be done to conrol symptoms. It all depends on what your Health Authority offers.
    • trisha87499
      trisha87499 Callaloo

      Posted

      Thank you callalloo, I've pretty much accepted the illness and its symptoms, however I will do what you say, because I have nothing to lose, and it could be a benefit xxxxx

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