face, tongue and jaw pain. Please tell me your stories.

Posted , 6 users are following.

Okay so I'll jump right in to it. My anxiety and obsessive googling and reading of cancer stories has convinced me with no doubt at all, that I have oral cancer of some type. When I say no doubt I mean it. I can't eat, sleep, think, stop trembling, play games, nothing at all. I just think "what's the point? I'm going to die soon".

I am not stupid, I know that there could be many causes for my pains. However there is nothing that seems as close to how I feel as cancer.

My pain started a few weeks ago now. It began as a headache and burning pain in my jaw joint on the right. I went to the doctors and got antibiotics for possible gland infection. They didn't work, and I got worse. The pain is now random and infrequent, from the back of my jaw, under my tongue, on my tongue, neck and and throat. Sometimes burning and sometimes aching or shooting. I seen another doctor yesterday and she has given me a stronger antibiotic. She also said I have a few white spots on my tonsils and slight crackling in my left lung. Now everything feels infected and sore and my lungs hurt too.

I just want to get my head on straight. I need people to talk to. I need something.. I feel so alone and scared. Why am I so convinced it's cancer? Why can't I accept I may not die soon? I am freaking out so much. I won't be able to cope when they tell me. I can't. I am very close to resorting back to self harming, as I used to do. I cannot take this impending doom along with the pains. Help, someone. Please!!

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  • Posted

    Update: my blood tests came back fine. They tested my thyroid, count, infection markers, liver, kidney. This is week 4 now, and I still have the jaw pain. It's there and tense almost all the time and occationally with shoot and burn. Usually in front of the ear and within my cheeks. My neck is so sore and tense all the time and constantly feels like I slept on it wrong. I've also had ear pain and my ears are popped all the time, making everything sound slightly muffled and my ears feel full. The only thing that un pops them is when I yawn, and it only lasts a few minutes before they close again. I'm going back to the dentist next week to see a specialist. My voice also keeps going. The little lump in my mouth, the dentist said is most likely a fibroma (harmless tumour). However I still feel run down, fatigued and sick all day. It's just not going away.

    • Posted

      Hold  on you are seeing the specialist next week. Let him figure out the jaw pain and ear. (Tmj im sure). Glad to hear blood tests are fine that rules out any infections.
  • Posted

    Update: okay so my doctors and dentist are pretty sure on their diagnosis that it's TMJ. Basically there's a problem with my jaw joint which causes muscle spasms. The constant pain is gone just now but the original pain began on the opposite side of my face when I leaned on it for a while. It's so sore to touch just where the joint is at the back of the cheek. I've stopped obsessing about every lump and bump in my mouth for now, I'm pretty certain now that the pain changes sides, that it's a joint thing. Also the only thing that helps is ice packs, not heat. Seeing a TMJ specialist next. Thanks for keeping me calm through all this. This forum helped a lot. Now I think I should start a new forum to find out more about TMJ, I don't want to make it worse.

  • Posted

    On my left side of my mouth my tongue and jaw are very sore it's burn once i eat something and it hard to swallow food so what should I do

  • Posted

    So it’s been about a year now since your problems, how are you doing now? I’m having very similar issues and I want to know how your story turned out...

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