Facial numbness & arm numbness w/ migraines..what kind of migraine is it?

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I have been dealing with migraines for the last year that are so strange and so horrible. I have gotten to the point that I can tell when I'm going to have them because my tongue starts to go numb and then the T-zone of my face and then both my arms feel warm and tingly and and hands kinda curl up and become very weak. I have a hard time holding onto anything, I mean I can but I my grip is very weak. My neurologists I have been seeing for the last year is a JOKE! The only thing he's done is ordered a sleep study (which he says I have borderline sleep apnea), and switch meds just ab everytime I come for appointments. I had a MRI and that's why I wad sent to him. It showed it was abnormal. .he said due to years if smoking and migraines caused the white matter...HOPE HES RIGHT LOL!! I just wanna know if anyone experiences symptoms like me and what kind of migraines they might be..my dr can't even tell me that much. I feel like there is no hope for me. I hate having migraines run my life sad

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  • Posted

    Sounds like you need to find a new specialist. In the USA we can request all our labs,note xrays, and everything for our own copy and use. When you see white matter...

    I would find a new doctor to review it. And I Would Take To The Internet And Look at mri'S With White Matter Under Images And Start deducing. Read article about MS. Read articles about other brain issues and face numbing. You have to be your strongest proponent on your medical team. Research those med he keeps changing. Research your family histories. See if there are connections. I wish you luck. Don't stop fighting. I get face itching and confusion. At times a radiating tingle or burn runs up my arm to my ear. Other times it tingles up one side of neck and head

    I've never had complete numbing. After some migraine my walk is out of balance and brain act S like a toddler learning to walk. Foot turns inward and drags more.

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  • Posted

    Hi againes, I just wanted to tell you what happens to me in the hope that it helps, feel free to disregard if it's not relevant. Either way I would definitely push for more treatment and investigation of your symptoms. I have thoracic outlet syndrome which has become worse with migraines. My shoulders trap the blood/nerves, making my hands and arms go numb very easily.

    I hope you find some answers

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  • Posted

    Hi,

    Its almost certainly Hemaplegic Migraine, I know because the symptoms are very similar to what I get and I end up in hospital.  One of the best meds for this is Flunarizine, Botox is also good too.

    You need to nag and nag to get somewhere with drs.

    Good luck and hope you see improvements soon

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  • Posted

    I too have the symptoms that you have described.  I have been diagnosed with hemiplegic migraines.  They can be pretty awful.  With mine they too start in the trigeminal nerve area in my face travel down my right arm.  I usually will "zone" out anywhere from from a minute to maybe 30 minutes  During that time I can hear everything that is said around me but I can't respond. Often times I have some twitching whole being in this zone.  Afterwards I have a horrible headache and can't walk.  Since you have been dealing with fir a year I would recommend that you see a neurologist who specializes in headaches. Mine have not gone away. Try and see a neurologist who specializes in headaches.  Good luck
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  • Posted

    Thank you all sooooo much for the advice! I don't feel alone so much now. Everything that you have said is exactly how I have been feeling this whole time. When I'm having my migraines I do the same thing, I know what's going on around me butI zone out as well. I also feel  like everything is in slow motion. Afterwards, My head will still feel sore for the next few days, almost like after getting a really bad charlie horse and your leg still hurting for the next few days afterwards. I wish I could just go to another Dr but the only other really good Dr takes months getting an appt with. Thanks again everyone..I really appreciate the input. I'm gonna start researching the Hemiplegic Migraine and what meds works for it and suggest them next time I go back if this round of meds don't work. I just got imitrex self-injections, don't know if they'll work or not bc the sumatripitine pills did not work for me. I was also on Trokendi and it wasn't working.

     

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  • Posted

    Hi I've suffered migraine like this I sometimes feel light headed and faint as well as the numbness that's a typical migraine for me and can last up to 3 weeks.have u ever heard of or tried zomig I find them good
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    • Posted

      My doctor and I are leaning toward Hemiplegic type. But each month they keep getting stronger. And we haven't put a name to it. I apparently get other types of migraines too.
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  • Posted

    I too have the facial numbness and also numbness all down my right side. I also have been diagnosed with trigeminal neurology which causes numbness, pain , and the feeling sometimes that the right side of my face has had a electrical shot.  I had surgery on the trigemimal nerve to move blood vessels which were wrapped around the nerve.  It helped for a while but not to the event I wanted. It sounds like all of the symptoms of a hemiplegic migraine.  Symptoms include--numbness on one side, facial dropping, inability to wall, tremors., zoning out.  These symptoms can last anywhere from several minutes to several days.  Or the symptoms can last for longer. I hope this information helps.  I suggest seeing a neurologist who specializes  in headaches 
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    • Posted

      It's terrifying when it happens bc I feel so useless and like I'm not myself. The zoning out symptoms last for a couple hours for me although with the medicine I'm on now I don't do it as bad, it's just the pain from the migraines. 
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  • Posted

    Hi 

    these migraines are a bear to deal with and according to the headache doctor I see (who I really like) there is no magic cure you just treat the symptoms and hopefully whatever you are doing will give some relief.  What I have found is that mine cycle.  I do have chronic daily migraines which I am used to but there are some days where things are not too bad and then I will have a spiral down and I will just feel awful for a period of time.  I no longer drive because all of the neurological issues for me are on the right side.  So driving is not good. Tell me how you feel when you are in a really bed cycle

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  • Posted

    Migraines have gotten a little better. I have noticed a cycle and can kinda tell when they are gonna come. When I get the bad migraines it's a "bring you to your knees" kind of migraine. Seems like they are changing. I don't know how that's possible but it's what it seems like. I haven't had facial numbness in about 2 months. I was put on a nighttime migraine pill and daytime one. I'm not waking up in the middle if the night anymore with migraines..thank goodness. Hope everything goes good still in till the next appt 😄
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