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I have been suffering with facial pain for 3 years since Oct 2012.... Over the course of these years I have had one brain scan, a nasolaryngoscopy, a thyroid ultrasound scan, audiology tests (where I was told I have bilateral sensorineural hearing loss both ears & tinnitus),numerous trips to the dentist & xray of teeth, all of which have come back normal? I was referred to the tinnitus clinic and fitted with hearing aids which have proved to not be beneficial. After my brain scan, the consultant put me on low dose 10mg of Amitriptyline for nerve pain and I was discharged back to my doctor.Since then I have been in excruciating pain in the left side of my face, which feels like it is in my teeth and left side of nose and my cheek starts to twitch along with numbness and tingling. I also have numbness and tingling in my arms/hands.The pain has been so bad it has sent me to the A&E dept several times this year, I was told that I was suffering from trigeminal neuralgia and was given gabapentin.The latest episode was 2 weeks ago where I was taken to A&E from work because I couldn't bend my neck forward without having shooting pains down my back and I was diagnosed with muscle spasms in my neck and back, given anti inflammatorys and then discharged back to GP who prescribed Diazepam to relax my muscles.
I am still in terrible pain.... but this pain seems to be invisible and is very hard to describe.Any advice would be much appreciated.
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