1. Community
  2. Brain and nerves
  3. Spinal Problems

facial pins and needles

Posted , 3 users are following.

robbo123
robbo123

My sister has just had an upright scan to check on C! a C2 They can find nothing wrong She feels that these bones are out of alignment and a causing facial pain pins and needles numbness metal taste twitching and more where there is pressure on the brain stem where the facial nerves run

 After 7 years she has no diagnois

There is a treatment called atlas profilax which are supposed to sort these two bones out Anyone tried it and had success

0 likes, 5 replies

5 Replies

  • mike92384
    mike92384 robbo123

    Posted

    robbo123...this is what I've heard lately.There's a "condition" called Atlas Subluxation. Apparently it's the bone in the cervical spine at C1-C2. When these get out of alignment, they can cause all sorts of things. HOWEVER there is a warning as well that these are so very close to the brain stem. 

    The C1-C2 may not be the cause of her problems. There are nerves in the face that can act up. The pins/needles sensations can feel rather sharp., oh how well I know. 

    You wrote..."and more where there is pressure on the brain stem where the facial nerves run". How do you know there's pressure on the brain stem? If there truly was, do you not think a doctor would have acted quickly?

  • robbo123
    robbo123

    Posted

    My sister has suffered this for 7 years she cant get a diagnosis She feels that there is a misalignment She has seen so many specialists 
  • sherry03951
    sherry03951 robbo123

    Posted

    I experienced something similar!? 

    My diagnosis- Vitamin  B12 depleted with severely high homocysteine and methylmalonic acid levels.

    It has been awful and difficult, as I suffered almost 3 years!

    Vitamin B12 number just appeared low however when compared to homocysteine and methylmalonic acid levels it was clearly my B12! I began injections immediately and immediately experienced relief for the first time in 3 years!

    Unfortunately, not before I suffered irreversible damage. 2 ruptured disks and loss of tooth due to bone loss, and 9 months later and still have peripheral neuropathy and short term memory loss. Hoping to spread the word so people will know to have all 3 levels checked not just B12!

    • mike92384
      mike92384 sherry03951

      Posted

      sherry03951..thanks for the information! My Vitamin B12 levels are just fine. I don't know what homocysteine or methylmalonic acids are. When I first saw the Neuro back in July, he ordered a whack of blood tests, but I don't see what I've just mentioned on there. Everything came back as it should..normal. A Rheumatologist also ran blood tests...normal result. 

      Ruptured discs are a different ball game. Peripheral Neuropathy?...I'm told I don't have that. MRI of the lumbar, cervical & brain are fine, except there are some things going on in the neck...C-5 has severe narrowing of the neural foraminal opening., & I'm going to go for therapy on that. There are other things as well, but not of any great concern to the Neuro.

      Back in July again, I made mention to him that I was experiencing very mild pins/needles in the facial area, but he just looked at me & said..."I don't know what that could be". I thought to myself..."you're a Neuro, & you don't know what that could be!". Now my question is...why didn't he have a test done to check on the cranial nerves????? I can't tell a doctor how to do his job. He strongly believes I do not have a neuropathy in my feet/legs. He did EMG/NCD on my right arm...& NCD on my legs....normal results. I asked the question, "could it be that something is simply upsetting the nerves"., & he said "yes". 

      When I saw him for followup Oct. 5, it seemed to me at first, that I was refreshing HIS memory from our previous visit of July. He never mentioned the pins/needles in my face. He believes the headaches are being caused by what's going on in the neck along with sore muscles on the shoulders. I'm at wit's end with it all, & don't know what to do. If I complain to my GP, he won't say anything as one doctor will never say anything against, or go against the other doctor's diagnosis. About the only time they will do something is if the situation worstens & a 2nd opinion may be required. I did call the Neuro's office a few days back, & was told by the secretary that I'd been discharged, however an appt. could be sought for the 28th of the month at 8.30. This wasn't any good as I live 2 1/2 hrs away, & wasn't about to embark driving in the dark, then deal with a horrid parking situation at the hospital where the Neuro is located. Also I was advised that if I had my GP make an appt., the earliest I could get one would be in Jan./2018! 

      SOMETHING is upsetting the nerves in my body!...I truly would like to know just what that is...but I"m between a rock & a hard place. 

      Sherry..I'm glad you at least got an answer to your problem, & are experiencing relief. I have been struggling with this nonsense since early Feb./2014. I guess I'll have the problem 'til I die.

  • robbo123
    robbo123

    Posted

    My sister being a nurse has searched for a diagnosis

    She now believes the facial nerves found in the brain stem are being affected when she is in certain positions

    She does not have the symptoms all the time and they vary 

    She found a Dr Alan Mandel on U tube who is a chiropractor and he  explains the symptoms of having the Atlas and Axis  C1 and C2 not moving properly and putting pressure or the brain stem where all the facial nerves are contained

    What he says makes sense 

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.