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I had the POEM procedure done on April 15th of this year. For about 6 weeks i was pretty good. Then i thought i was getting acid reflux but it was not acid reflux it turned out it was food fermenting at the bottom of the esophagus. Or at least that is what we think now. I am right back where I started. Today I had a barium swallow done and we go the results back this afternoon my barium swallow is exactly the same as it was before the surgery.
“The esophagus had similar degree of diffuse dilatation with relative mild-to-moderate narrowing at the gastro esophageal junction There was no mucosal lesion or other stricture present No esophageal luminal filling defect present There was a severe decrease in primary and secondary peristalsis No tertiary contractions witnessed”
I have done some research on the web trying to find out what is done after a failed POEM procedure. The doctor is suggesting using a balloon dilation however when they did the surgery they said my esophagus was very enlarged and very tortuous and crumpled in places. My concern is that a balloon dilation will have to be so large it may result in rupture. Comments please. Other suggestions.
This damn disease is ruining my life although I have never had the wasting others speak about I am\ tired all the time and my stomach hurts all the time its making it impossible to work and I am self-employed if I don’t bill I can’t pay the bills….
Thanks in advance for any help or studies you can point me at.
By the way my husband and I just bought domain with the express purpose of hosting a web page that is dedicated to nothing but achalasia and the study and treatment of this disease. Not just a discussion board but a centralized web resource for all the studies being done on the disease. Once we have our first set of pages up I will post here for anyone who would like to be involved. We would like to try and recruit some researchers and doctors as well.
Please understand we value Patient as one of the only sites we have been able to share experiences on and get information on but we think it would be great if those of us with this disease had another outlet as well.
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