Falling apart over ovarian cyst

Hi Rosie,

I'm glad that you are feeling better, that gives me hope.  Mine is also in the right ovary.  I had a bad experience with my previous gyn doctor but have good care now. You're right, it does seem that lots if women have cysts - it is more common than I thought!  Thanks for sharing.

Hi Tracy,

I appreciate your kindness and will let you all know what I find out.  Feeling a bit better this afternoon and plan to get help with anxiety as well.  

Thank you!  

Elizabeth 

That is so true, Sheri... definitely the weight gain and fatigue are the worst... it messes with your mind, doesn't it?  I like to get daily exercise, too, and usually walk about two miles a day, which helps some.  Thank you for sharing about your surgery, too!  Can't wait to be done with mine!

Hi Alice,

I will pray for you, too.  My report says that the right ovary measures 7.7 x 4.6 cm and the symptom that sent me to the doctor was urinary frequency because it's pushing on the bladder, so as you say, it is distracting and causes some discomfort.  I see why you call it a ball and chain!  It is good that your surgery is scheduled soon and I hope you will feel much better when it is over... the anxiety and depression are horrible.  It helps to know we are not alone.

Take care,

Elizabeth

Hi Roseanna,

We definitely have some things in common with the weight gain, mood and fatigue!  Pretty sure some people in my life think I've lost my mind.  I'm sorry you're going through this.  I also had cysts in my 20s, but they were the kind that went away on their own.  Do you know how soon you'll be able to have yours removed?  

Take care and keep me posted,

Elizabeth

 

Hi again Elizabeth,

Yeah it should be soon waiting on the operation letter to come but going to go tomorrow see if I can find out more from gp. You'll just have to let your family and friends know your worried about your cyst and that it maybe making your mood change.

I'm soooo fatigued girl! But waiting is the worst. Have you got any info on your operation? Are you in uk?

Try not to go to mental! 😂 though I understand it's not easy.

Regards Roseanna

Hi Roseanna,

I'm in the U.S.  When I see the gyn doctor this week, she expects to be able to tell me her recommendations about surgery based on the additional lab tests that she ordered, so I hope that scheduling will follow shortly.  It's a horrible maze to navigate here with the health insurance companies dictating everything, but so far everything I've needed with this has been approved.  I hope that continues to be the case.

My mom had a dreadful experience with menopause, panic, etc., and she had a large uterine fibroid and a benign ovarian neoplasm, both of which were removed during a full hysterectomy, so she is very understanding.  My sister is a couple of years younger than me and this hasn't hit her yet, although she did have a benign breast cyst removed in her late 20s.

Hope you can get some rest... the fatigue can be quite awful.

Take care,

Elizabeth

Hello Elizabeth again,

Not sure how it all works in the USA medically. But seems like you have a good bit of knowledge with surgery from your mother and sister's problems.

I have a simple cyst (most likely) it's just very large. You can get through this, it's gets a part of life, That some women have to deal with as best as we can.

I hope you get medical help soon.

Regards Roseanna xx

Thanks, Roseanna... I'm trying to stay calm and think positively today!

Hi Elizabeth I have messaged you I howl you don't mind but experiencing severe anxiety too and just wanted to know what other lab work you had done ? I have only had two scans and a ca 125 blood test and due my 3rd scan next week due to 3 irregular cyst on ovary,largest cyst 2 x 1.4 cm but I frequently need a wee too like you. Take care Michelle xx

Hi Michelle, no problem at all, I'll give you a quick summary here that may help others as well.  I've had a bit of an adventure!

This all began when I made 3 visits to a GP in January thinking I had a UTI and urinalysis showed blood on every visit but no bacterial growth on further testing.  The only other symptom was having to urinate frequently.  Antibiotic (Cipro) did not help.  Was referred then by GP to both urologist and gyn.  Made 3 visits to urologist, had two more urinalysis tests, a CT scan, and a Cystoscopy to check for bladder problems - nothing showed up except for an enlarged right ovary, which was found on the CT scan, and final urinalysis was normal, no blood, but urinary frequency persisted.  

Saw gyn two days after getting CT scan results and she did pelvic and breast exams, urinalysis, and some basic blood work (had finger pricked, guessing she did CBC and related analysis), and she also ordered more blood work on hormone levels.  This first batch of testing turned out to be for these:  testosterone; progesterone; DHEA-sulfate; androstenedione; FSH; LH.  All of these show normal levels.

The gym also ordered pelvic and vaginal ultrasound, which confirmed the ovarian mass, and she told me at my first visit with her that it was pressing on my bladder.  However, she explained that this would not have shown up during Cystoscopy done by urologist because you are lying down.  At the ultrasound consultation, she ordered another round of blood work and said it would be to help determine which hormone could be "feeding" the ovarian mass.  The nurse called to tell me these results were all normal and when I go today I'll get a copy of that report so I'll know what was tested and can post later.

I hope this helps!  Do you know what type of cysts you have?  Sometimes they shrink, mine is called complex and will have to come out.  Take care and will share more later after today's appointment.

Thank you ironically I've just had the hormone blood tests done just now testesterone LH FSH prolactin to check for peri menopause as periods all over place but im 49 soon.how old are you ? No one has even looked at my scan images as when I saw gyn he couldn't get them up on computer !! I wonder if anyone checks the sonographers report and images does anyone know ? All I know is there 3 small irregular thick walled cysts so definitely complex but had shrunk slightly from novembers to January's scan which gyno said reassured him. please update later when you see your Dr thank you so much Michelle xx

Hi Michelle, I have added my update below with all the details!  Another step in this adventure.

Thank you so so so very pleased for you don't worry now you're going to be just fine xxxxxxxxxxxxxx

I feel good about getting on with it.