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I am a 22 year old woman.
In July 2018 I had a transvaginal ultrasound and blood tests to check my hormone levels - my symptoms had been 6-8 week cycles, heavy periods and really bad period pain. The results I got back at the GP showed that I had polycystic ovaries and high testosterone levels so I was immediately diagnosed with PCOS and put on the pill. I only stayed on the pill for a couple of months because it made me a hormonal mess.
Over the next year or so, I've always thought that the symptoms I have can be attributed to PCOS. When I go out walking, I often get a really sharp pain in my right ovary, almost as if it's trying to push out of my skin. I thought it was because of the cysts.
Recently I have found that I get really bloated and quickly full/indigestion-y. My cycles are around 8 weeks long, and about halfway through each cycle I get loads (and I mean loads) of stringy, black blood that is sometimes a bit redder coloured. This could be mid-cycle spotting, but a couple of cycles I have had huge black clots join this spotting, around the size of a 50p piece. I also don't think that these are 'periods' as I have 'normal' periods around 3 or 4 weeks after this 'spotting'.
I went back to the doctors and have had another ultrasound and blood test. All of the blood test issues they were looking for (including ovarian cancer) came back fine. The doctor told me that I actually DON'T have polycystic ovaries or any cysts on my ovaries, and I therefore don't have PCOS. He's said that they basically have no idea what's wrong with me. This has left me, understandably, very confused and worried.
I suppose I have two issues / questions:
If there is no cure for PCOS, is it possible that my initial scan was false, or have my polycystic ovaries 'cleared up', so to speak?
What could the doctors be missing, or does this just happen to some people without any reason?
Thank you for reading this and any advice will be appreciated.
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