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Family not understanding your condition, what should I do?

Posted , 12 users are following.

willowsamantha
willowsamantha

So I got diagnosed with M.E last year and I have found it very difficult to keep up with my daily schedule. Working 8hrs a day is extremely exhausting. 

My father has never been very understanding with being ill or needing time off (I work for him). I've recently started a 7 week MEMP/NICE session with others that have M.E its three hours and extremely draining. 

It was suggested by both the Occupational Therapist and a Physcologist that I have the day as a half week break, as it can be extremely exhausting. 

My father hates that I have been suggested this, it's taken alot for him to even allow me to attend these sessions.

He is very much a work hard no matter how ill you are.

He doesn't understand whatsoever what I have to deal with day to day having M.E.

There is a bring your family session in 3 weeks but I am to scared to ask him to come incase he mocks the others or makes jokes about this serious illness.

What should I do?

0 likes, 33 replies

33 Replies

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  • lorraine62801
    lorraine62801 willowsamantha

    Posted

    Hi all . I too have learned from very bitter experience that pushing yourself will make you worse . I've had me/cfs for nearly 9 years now. At the start I was surrounded with people who knew nothing about me/cfs . I was encouraged to push through it and not to lie down to it . So for around 6 years I pushed my body far to far . Resulting in a complete crash , that I have never came back from . I'm steadily getting worse . My legs feel like there giving up on me .just like the rest of my body . My family can't understand that why could I do it then and not now . I get blank looks as though it can't be that bad !. After light house work my body shakes really bad and it is so embarrassing .I really wish I had the sense to listen to my body back at the start and pace myself instead of working myself in to the mess I am today . I'm a proud person and was very independent . I have lost all that now with my dignity. People look and think we'll it's years later and your not in hospital or dead so can't be that bad . I read something recently that said the IOM ( institute of medicine )requested that the name cfs should be replaced to SEID ( systemic exertion intolerance disease ) I truly hope it dose because cfs dose not give this disease any justice .. people with me cfs need people in our corner help them fight this . . It's much too hard on our own . Please please listen to your body and rest and pace yourself when you need too . Lx
  • karoline_48993
    karoline_48993 willowsamantha

    Posted

    I understand exactly how you feel. I have a lot of problems and my family is not understanding either especially my dad and sister. They are just nasty and selfish.
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