Family Support

Posted , 4 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

Family support so important. And yet some family members may not relate to what we are trying to push through. 

Maybe like the Doctors saying no there’s no side effects or withdrawal symptoms. 

 Is your family supportive?

0 likes, 9 replies


9 Replies

  • Posted

    I don't have any real family support. Now I have my husband and he's not around very often I have our youngest son his wife and their two kids that live with us but that's another story. I know the ones in my life I wish you were here have passed on

  • Posted

    I feel fortunate to have family support, but when Gabapentin causes a permanent health issue such as my uncontrollable movement disorder, the hardest thing is finding proper medical help. 

    My new primary doctor has sent me to two medical institutions who deal with my problem. They always find my normal neurological results from 82 days before I had the adverse reaction to Gabapentin. It’s obvious my former doctor didn’t inform them what happened, and actually recorded I had developed a psychological problem that became a physical problem. 

    My recent trip to a mega medical center in Phoenix Arizona, has finally shown doctors from a two hour nerve study, I have 12 - 14 Hz throughout my major muscle groups. I can feel these nerve vibrations, mainly in my back, shoulders, face, arms and feet . Those numbers match up with Orthostatic tremors, a rare disorder that affects a person’s ability to stand very long.

     I greeted the neurologist in a standing position, with arms that punch, which seems worse to me since I’m still standing. 

    I’m hoping I will be referred to a closer movement disorder clinic for treatment.

    I hope you have a lot of support for what you’re going through. 

    • Posted

      Thanks deebee for your wonderful support.

      Yes, we need to educate our family and friends about Gabapentin so they won’t fall into the Gabapentin trap. 

      After spending mega bucks to go have all that special testing in Phoenix, I took another look at my 2016 brain MRI results and discovered the radiologist stated: “Clinical Correlation Advised.”  I had even wondered why the Mayo doctor ordered a nerve study before ever seeing me.

      That is what the EEG and EMG was for, and I am a little ticked off  that I had to fly from Portland, Oregon  to Phoenix Arizona, to have a test that should have been conducted in Seattle in March of 2017. 

      I was referred to Swedish in Seattle by one of their neurosurgeons, who was the head of their Neuroscience Department, and they didn’t follow orders. 

      Don’t worry about it, I have a phone number.  Lol 


  • Posted

    My husband was not supportive at first, thought I should just breeze through this. Since then I pulled up a ton of literature on this drug, and he is right there with me now. 

    Please put your foot down, tell your families, make them look it up. We want everyone to know what this med can do. And we will heal. 

  • Posted

    Kind of I suppose.. I'm more or less on my own, I don't think they really understand the frustration mainly... 

    • Posted

      Definitely frustrating! It’s been 1 month 26 days off gabapentin, had only been on it 2.5 months, low dose. My main issues now are can’t stay asleep more than 2 hrs, and feeling shaky, body heavy. Brain fog came back today, too, ugh.  I’m lucky that hubby now understands better after reading up on it, and he did all the chores/laundry this weekend, bless him 

Join this discussion or start a new one?

New discussion

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up