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FATIGUE!!

Posted , 10 users are following.

judytal
judytal

the fatigue is so bad this morning I want to scream!!!  

3 likes, 30 replies

30 Replies

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  • pat38625
    pat38625 judytal

    Posted

    Hi Judy, I understand because I have been resting all week.  I don't even have the energy to scream.  Did you do too much this week?  I hope you rest and pace yourself as it does help.  Good luck on your journey.  Regards Pat
  • judytal
    judytal

    Posted

    Thanks Pat,  it's so difficult to try and stay positive...  I hate giving in or believe this is happening.  I know, " what makes me think I'm so special".   I just want to trust that this will go away and that the doctors know what to do... But I guess medicine is not perfect or knows everything.  

    My friends are going to a meeting this morning and I can't push myself to go....

  • TIsser
    TIsser judytal

    Posted

    Poor old you...  Keep your end up....my shoulder was bad this am, didn't know where to put it... Ok now though... Hope you feel some relief soon.  X 
  • doreen25667
    doreen25667 judytal

    Posted

    For the first time since being diagnosed with GCA 18months ago, I am feeling totally physically exhausted. Had to shop this morning and have done absolutely nothing since except lie in the conservatory, dozing off every few minutes. My body feels unable to do any thing that requires movement of any sort. I feel so stupid and almost guilty as I know there are lots suffering more than I am.
  • david14272
    david14272 judytal

    Posted

    Hello judy. fatigue  as been with me from 15mg pred now down to IMG. I put it down to ped & adrenles, but after pushing for a full B/test it turns out that i am low on iron, so now going through scans etc to find the cause..i have had the time team proding & probing top&Bottom.still waitng for results.its is a not so funny journy but i try to stay positive.i think somtimes we have to push ourselfs to join in with with the normal activets with family etc if not it just becomes a life of meds & not much else,i have just been out with family+ young ones had super time, now time to rest,hence on laptop.i wish you all the best for your journey just to add dont let it drive you into the ground.Dave
    • judytal
      judytal david14272

      Posted

      David,  what is IMG , B/ test ?   I push every day.  But this morning I just could just about walk the dogs...   Sorry if I sound argumentative/ defensive or whatever...
    • david14272
      david14272 judytal

      Posted

      Sorry judy;pred brain.i have reduced down to 1mg of pred/ i asked for a full blood test to see if somthing apart from pred or adrenals was causing fatigue, as for your sounding off it is what these forums are for i think,hope you& the tail waggers enjoyed your walk.i have just settled down with sarny & watching cycling on tv {yorkshire}.try to stay possitive hard i know but? dont be afraid to post.Dave
  • christine_fay
    christine_fay judytal

    Posted

    Must be the moon! I am also absolutely fagged out. Woke up feeling brain fogged and shakey after quite a good day yesterday. I hate it when all my plans go haywire because I feel too stuffed to do anything.

    It does seem to get worse at full moon when I also get water retention badly.

    I am just going to rest today and hope it passes. Unfortunately I have to wait for some visitors who seem to have got lost before I can put my feet up.

    • Oregonjohn-UK
      Oregonjohn-UK christine_fay

      Posted

      Only just found my way out of the 'fog'!  I did wake up last night and think 'it's very bright' - there was a full moon and cloudless sky.
    • andrea93419
      andrea93419 christine_fay

      Posted

      Hi Christine!!

      I've picked up on what you said about water retention,, I feel the same sometimes and have been thinking to take water tablets to hopefully relieve this, but am wondering if they would effect the pred in any way?? Have you ever tried taking water tablets yourself?? Thank you Andrea xx

    • christine_fay
      christine_fay andrea93419

      Posted

      Yes last November but only because my legs had swelled to tree trunk size after doc gave me wrong heart medicine. It worked quickly and I keep some for emergencies... Full moons always make me retain water and supermoons really screw me up!

       

    • EileenH
      EileenH andrea93419

      Posted

      One of the things that helps with fluid retention is cutting carbs - they tend to hold on to water in your muscles along withthe glycogen they become for storage in muscles. 

      I had some trouble with water retention in my feet and ankles and went for one session of manual lymph drainage - one because he started with the worse leg and within a few days both legs were back to normal and I've not had any trouble since. Definitely worth a try - no side effects!

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