Posted , 10 users are following.
I don't know anyone else with our disease but is it normal to feel ok and then bam!! U feel like u hit a brick wall of fatigue and u have to close your eyes even if it's a 10 min nap.. ?
1 like, 10 replies
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aitarg35939 lisa1276
Posted
Jockeys lisa1276
Posted
Hi Lisa I know how you feel ,some days I'm ok but other days I feel so sleepy ,it's the condition we have ,but I always keep going and try and think positive ,the other thing I do to try and keep my energy from flagging is have a protein shake just to boast my energy levels ,I'm not sure if this will work with everyone but it help me take care
Jokeys
Take carets
joviswoman lisa1276
Posted
Yep, every day I'm fighting fatigue.
You keep going but then your body says 'ok that's it, sleep' and for me unless I'm at work, it's snore city lol.
Introvert1190 lisa1276
Posted
I can kind of relate.. I can't actually nap (I have two little boys) but I have moments when I'm ok not doing anything strenuous, then suddenly I am trying to catch my breath. Even when I catch it I feel extremely tired, irritable, and just wore down.
elizabeth49611 lisa1276
Posted
Lisa,
I also have the same issue. That's why it's so hard to plan ahead, you never know when the fatigue will hit you. We've done some traveling, and there were days that all I really wanted to do was lie around, but I forced myself to keep moving and site see.
Beth
deborah00488 lisa1276
Posted
This has proved to be the most troublesome effect and I agree it's so unpredictable. Is it better to try to power through the fatigue or does this make things worse?
elizabeth49611 deborah00488
Posted
deborah,
I'm retired now, but when I was working, it was a struggle. I had a desk job, but mentally challenging (financial accountant) and deadlines to meet each month. There were days when I should have stayed home in bed, but went to work. I wasn't able to keep control of my health. My boss and co-workers were very understanding, but my work ethic went ahead of my health.
I have been able to get my Bx under control now. I still have bad days, but more good days.
Tips for you with young children:
Pace yourself, While working in my flower garden, I take a lot of breaks to catch my breath.
Set priorities (one Xmas, I made a list and did the most important ones at the top of the list. (didn't get Xmas cards out that year, low priority).
It's ok if you ask for help.
As your children get older, they will be able to understand your limitations.
AND if you think your meds are not working for you, talk to you specialist. Everyone is dfferent, so what works for one person, may not work for you. If your specialist is so so with your care, find a specialist that will be more proactive with your care.
Have you tried alternatives? Essential oils, certain vitamins or minerals? I take Turmeric everyday for it's anti-inflammatory properties. and ginseng. I have in the past, taken Manuka honey for it's antibiotic properties.
Have you ruled out food allergies? Some people on this forum, have limited their dairy intake with positive results.
And of course stay away from sick people and wash hands and use hand sanitizer.
The internet and this forum are full of useful information on improving your health.
Keep in touch, Beth
deborah00488 elizabeth49611
Posted
Hi Beth,
Thank you for your useful tips, I have a mad job but am going part time now so I hope that will help. Some days I could sleep all day but you are right about priorities & it doesn't matter if the house isn't perfect!
Best wishes
Deborah
Papillion lisa1276
Posted
You need to listen to your body. Feel tired then nap or just sit relax with a cup of tea. Sometimes you can't sit. I wash my hands with cold water wakes me up. May sound crazy. Feel better
jo_ann73276 lisa1276
Posted
Yes, that does happen to me, especially if I have lost sleep. Must often go to the bathroom during the night and have difficulty getting back to sleep. That's when it affects me the most. Napping 20 min. to an hour gets me ready to go again. I am older (83) so that may have something to do with it.