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Fatigue

Posted , 16 users are following.

muirkelsi
muirkelsi

I have just turned seventy years old,  and had PMR for roughly two years, and manage quite well. My biggest problem, and it really is a problem is that I have absolutely no energy at all. I waken about 6am, and for the first hour I feel fine, and active, but go down hill quickly. I don't even feel like going out either to shop or visit my friends. I get my shopping on line, and would rather email, than visit people.

I am just tired constantly, and although have some aches, I am not in pain.

Does anyone else feel like this? I would just love to feel like doing something.

Regards,

Grace

 

1 like, 19 replies

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  • suesing
    suesing muirkelsi

    Posted

    Hi Grace,

    I'm sorry to hear that your fatigue is making life so miserable for you.  Mine was at it's peak a couple of months before being officially diagnosed with PMR.  At this time I was trying to carry on as normal, in dreadful pain and with all the other symptoms, including fatigue, which was so bad that I would literally fall asleep mid-sentence or even when playing the piano for my pupils! I was 53 at the time.

    Now 16 months on, I still get very fatigued, but lead a near normal life.  I have good and bad days and have to pace myself all the time and I find tapering the Pred' more slowly is helping.  

    I don't know if anyone else feels the same, but what I find, is that even when my fatigue makes me feel like death warmed up, I can't actually rest, because along with it, I also feel aggitated and anxious. Often gently pottering about helps more than completely stopping.

    It is also worth looking at your diet and sorry to go on about this again, but since dropping my Liquorice tea, I feel sooooo much better.  

    I hope you feel like doing a little more again soon.

    Sue

     

  • pat38625
    pat38625 muirkelsi

    Posted

    Hi Grace, I know exactly how you feel and can identify with you.  I was diagnosed with ME/CFS 14 years ago and was bed bound more or less for the first 3 years.  So fatigue was the main factor, later in years I had good remissions.  Last November was diagnosed with PMR aged 59/60 although probably had it for a couple of months before diagnosis.  The fatigue is what gets me down, I have been indoors for 2 weeks.  My son who lives with me, has had to do some small shopping.  I have to cancel any drs or hospital appts. when I am like this.  Going upstairs in my home is like Mount Everist.  

    The good news is, this will pass, but you are going to have bad days so all I can offer is to rest, rest and more rest.  I do not have anyone calling to my home, I do not talk on the phone, I don't visit, I do drive but cannot drive due to fatigue.   Hang on in and keep in touch when you can.  Good luck.  Pat

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