Posted , 7 users are following.
I have had RA for some years but the last twelve months the "tiredness" has got steadily worse. Sometimes walking from one room to another exhausts me. I feel so inadequate because I can't do simple things. I can cope with the aches and pains but not being able to do housework is making me depresed. How do others cope?
1 like, 20 replies
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timothy11402 ruth03300
Posted
At one point in my "RA career" I had stinging lips and some pimples around my lips and I never had them before. I happened to mention it to my rheumatologist and he put me on folic acid as this is a sign of deficiency. My last blood test showed evidence of not being able to metabolize folic acid due to the mtx. So he had me stop folic acid and put me on leucovorin which is the metabolized form of folic acid. I feel better overall because of it. Your RA doc needs to blood test for essential vitamins among other things.
Best of luck.
LayneTX timothy11402
Posted
Interesting you say this Timothy. I have kind of numb feeling in my lips. Wonder if it's related. I do take Leucovorin once a week, two in morning, two at night. I'm on plaquenil and Sulfasalazine, and tapering off prednisone.
timothy11402 LayneTX
Posted
Sometimes the more I "know" about RA, the less I really know. As time unfolds, I am experiencing a progression of problems which, so far, have been addressed successfully. But I wonder what lies ahead.
Not having rtaken sulfasalazine, I can't speak to the numb lips. My stinging lips were a result of mtx. I also take plaquinil but have not had an adverse reaction to it. But I do have to have an opthamologist look for pigments that can be problamatic.
RA is the disease that keeps on giving.