Fatigue and increased us of antibiotics and steroids.
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I was diagnosed with Bronchiectasis 6 years ago and had not much trouble at all until I went on a hiking trip on the Pacific Creast Trail15 months ago. A month after coming back home I began with a strike of respiratory and sinus infections along with rather profound fatigue. I have had sinus surgery and my CT scan revealed no change in my Bronchiectasis. I Exercise everyday and take my medications as ordered, eat well and quit smoking in 1988. My home is rather clean and I use air filters and change my AC filters every 6 weeks. Question is Im still having some fatigue and chroic infections ever month to six weeks.
Can anyone share any experience that might shead some light on what has happend to me in the last 15 months.
Russ
0 likes, 8 replies
pamela15262 Russell27NOLA
Posted
Russell27NOLA pamela15262
Posted
Best
Russ
pinksnugsy Russell27NOLA
Posted
I'm sorry to hear your not able to get on top of your infections. Do you know what bug/bugs you are growing? I've had bronchiectasis for about 30 years (I'm 47) and always managed it fine & like you kept fit and eat healthily but once the pseudomonus bug got into my lungs about 7 years ago things changed for me to i.e fatigue & constant infections so I now nebulise anti biotics twice a day, use hypertonic saline (nebulised) twice a day as this bug rarely leaves you once you get it so it's all about managing it & whereas I used to run 4 times a week I no longer am able but I do keep as active as I can. When there's high levels of pseudomonus and infection is bad I have intravenous anti biotics (which I now do myself at home). I still get extremely tired some days so I rest up (sometimes I have a day in bed) & that sets me up ok for the next few days. I no longer work as the disease is so unpredictable.
Not sure if this info helps but this forum is great for advice.
Take care
Rachel
Russell27NOLA pinksnugsy
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Best
Russ
elizabeth49611 Russell27NOLA
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I didn't have any lung issues until in my late 30s.At that time, we had our house built (don't know what kind of materials the contractor used), and a year or so later, I started taking college courses (stress). It was then that I started with a cough that wouldn't go away. Was diagnoised with allergies, then it progressed to COPD, 2 yrs ago a CT scan showed Bronchiectasis.So I have always wondered if it was the chemicals in the materials in the construction of the house or the stress of a housewife with 3 kids and school work that may have triggered the offset.
I'm doing all the things that you are doing, but when I get an infection, it really affects my energy and appetite level, Just last week I would hit the bed by 7pm didn't want dinner. Fortunitly, Im now retired. Im now on a long term antibiotic.
You will get a lot of feedback from this website.
Beth
Russell27NOLA elizabeth49611
Posted
All my best
Russ
elizabeth49611 Russell27NOLA
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I was feeling so bad for so long, that I started wondering what people with this illness do, am I missing something that even the doctors don't know? This website is a life savor. You get support when you feel like no one else knows what you are going thru. You get tips on keeping healthy, etc.
I take turmeric every day, I had my doctor put me on a long term low dosage antibiotic and I take Manuka Honey every day. Tips I got from the people on this website.
In the 2 months that I have started doing those things, I have felt better and so far this winter I have not had to have a bronchosopy, I had 5 bronchoscopies last winter.
Russell27NOLA elizabeth49611
Posted
1 bronc vs 5 broncs. That's what Im talking about. Keep me posted.
Best
Russ