Posted , 13 users are following.
Can I receive some examples or feedback about fatigue levels. My fatigue is rediculous. I am omly 58 years young and have always been very active. Now I am doing well most days to get through the day with basics like feeding dogs, shower etc. Does anyone have ideas for relief from fatigue? Wondering if we are stuck with this forever?
3 likes, 32 replies
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cath23317 Cowgirl918
Posted
I always give my body what it wants, if you are tired have a sleep, that's what I do xxx
carol58098 cath23317
Posted
aitarg35939 carol58098
Posted
Fatigue & sleepiness are not always the same thing. I am totally envious of the ability to nap on command, but sleep doesn't always do anything for my fatigue.
Cowgirl918 cath23317
Posted
That is definitely my philosophy. My physician told me yesterday he can not help the fatigue. Of course I exercise good self care with reasonable diet and I rest frequently. My naps are more like 2-3 hours
but not every day.
paula09418 Cowgirl918
Posted
I feel for you! I finally had to go on disability. My rheumatologist at Cleveland Clinic prescribed provilgil 100 mg 2Xs a day. It's helps a lot with fatigue. I was given it when I was 57.
Hope this helps you.
PS: It has to be approved in advance with insurance.
Cowgirl918 paula09418
Posted
I have never heard of that drug. I will look it up. I am on disability. The low BP, fatige and brain fog took its toll. They still are.
Cowgirl918 paula09418
Posted
katalin59838 paula09418
Posted
Can you tell me what's the steps to get
Disability? My doctor told me he can give it to me but the rest is on the social security company. Are you used a layer?
katalin59838 Cowgirl918
Posted
Can you tell me what's the steps to get
Disability? My doctor told me he can give it to me but the rest is on the social security company. Are you used a layer?
Are you using anything for the brain fog?
aitarg35939 katalin59838
Posted
katalin59838 aitarg35939
Posted
estelle44124 Cowgirl918
Posted
This was in the BSSA magazine just received. Might be worth you reading it.
https://www.sjogrenscambs.co.uk/previous-talks/sjögren-s-syndrome/
Cowgirl918 estelle44124
Posted
jb73193 Cowgirl918
Posted
the reason you take it under your tongue rather than tablet form is that there are veins under the tongue and being 'sublingual' gets into the system quicker than tablet that has to be absorbed via the stomach.
jb73193 Cowgirl918
Posted
I was told by a gp to try vitB12. He wanted me to have injections 3-4 days apart but that wasn't going to happen. So he recommended the B12 spray that you spray under your tongue, several times per day. That has helped heaps with my fatigue.
estelle44124 jb73193
Posted
This interests me too. I used to take B12 capsules, then didn't replace it. But just recently bought it again; mine is a liquid with dropper to put under th tongue. I was only just saying to my friend this morning that I seem to have more interest in getting on with things, whereas before I just left things to lie a 'bit longer'. Does seem to be helping me too.
aitarg35939 estelle44124
Posted
Two testimonials for the B12! If I can find the liquid locally, I'll try it. Shots did nothing for me in my 30s but I'm so much more fatigued now that I'll try again.