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I've been experiencing sheer exhaustion and fatigue for about a year now. I feel terrible every day regardless of how much sleep I have. I am at work today but can barely keep my eyes open let alone use my brain. I have had periods like this before but those were brought on by antidepressants I was taking and I felt normal once I stopped taking the tablets. I have had so many tests and other than a sight vitamin D deficiency, which I fixed with supplements, nothing has shown up. I can't live like this. People keep saying that it can't be that bad if I make it into work everyday still. I pull sickies more often than I should and am not productive at work and I cry very easily. I don't make a good impression at work when I cry once a week. I need help and advice.
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Don`t take no for an answer, keep on beating down the doctor`s door. Insist in help. Also please read The Hummingbird Report and the Stonebird as well if you can. You will feel better if you recognise yourself. Both are online and free to read.
Also, trying lying down when you rest, it can help a lot.
Get in touch again if you need anymore help
I have had 3 rounds of blood tests in the last year and the only thing they found was vitamin D deficiency. I have in the past had inflammation show up in blood tests which related to arthritis in my hands. I have suffered with depression in the past and don't feel depressed now at all. I am quite content but absolutely shattered all the time. Although it is starting to affect my job, my fun and my relationship so I worry it will make me depressed.
I have another doctors appointment tonight but I feel so hopeless when the blood tests don't show anything. All my friends and family are fed up listening to me complain about it and my boyfriend finds it so frustrating he tells me it will end our relationship if it continues, so I have to try and sensor myself with him and keep my feelings to myself.
Feeling so hopeless. Sorry
So little research has been done due to lack off funds and certain large companies and goverments have vested interests to refuse financial help. You may feel you are on your own on this, I certainly was. Read sites online. These are funded by charity, but are working very hard to help people understand and diagnose ME themselves.
I really urge you to read say just The Hummingbird Report. My doctor
poo-pooed this organisation, but they are some of the most dedicated
specialists in the world if not the best. If you find yourself there then you are on your way. Take heart that you are by no means the only one out here. I am bedridden with ME and often in terrible pain.
One last thing though : I am convinced that this type of fatigue can lead to depression and it makes things far worse. I take Duloxetine
120mg per day (quite high .dose but effective ) It is a very effective drug used in Britain for this type of fatigue . Hope your doctor`s appointment goes well, but it quite likely that the tests show little or nothing. Oh, and look at supplements, theycan help.
Vicky I hope you find the answers you need. No doubt situations with your family and boyfriend could be making things worse for you.
Pain clinics do help. Also ME is a disease which appears to starve the body of neccessary minerals and a variety of essential bio chemicals.
These interfere with the normal working of the body and your organs.
Did you know that tests have shown that the amount of strictnine is higher in people with ME , much too high. It is so complicated and involves many organs and the bones as well. It causes demyelation of the muscles too, similar to Multiple Schlerosis. Not enough is known yet but help is available if not a cure quite yet. We need goverments to start supporting ME research like eventually occured with AIDS. We need funds not platitudes and patches.
I really hope you get it sorted soon.
Rest plenty and pace yoiurself if you can.
Good luck. You are not alone.
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