Fatigue nightmare

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Hi I am 10 years into underactive thyroid nightmare. Tried all different meds. I'm currently taking ndt and just increased the dose (very slightly) but still feel horrific. Question is, does anyone else feel worse to begin with when they increase meds and are adjusting to the dose? My specialist seemed to think adrenal issues are playing a big part, but I have been taking various adrenal supplements, doing yoga, meditation etc for a while now and it has made zero difference to my fatigue. My last thyroid results were fairly middle of the normal ranges which is why I have increased the dose. I'm really losing hope and looking to cut down hours at work which is something I don't want to do as it will affect my career. I feel really down and could do with some advice if anyone has any.

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  • Posted

    Hi Caz, I found changing doses was difficult. Eventually it got so bad that it couldn’t tell what was what. I was just a mess all the time. There’s no doubt I have thyroid disease, as indicated by the giant cyst. But the meds just dont work right. I suspect the NDT I was taking was cut with synthetic levothyroxin. 

    Your last statement pretty much says it.  You’re under a ton of stress to maintain your career, which certainly would lead to adrenal problems eventually. 

    It is worthwhile to investigate the adrenal stuff, as adrenal and thyroid disease tend to gone in pairs. Seems to be difficult to know which comes first.

    If you read the insert with your thyroid medication, it offers a warning that thyroid medication should not be given if you have adrenal dysfunction. However, I know from experience that most docs don’t check for adrenal problems, and the tests we have are unreliable. 

    It might be worthwhile to consider what you have to lose. You’re racing against the clock trying to “cure” your thyroid disease before you get thrown out of the work force.  As you’re trying to get the meds right, use acupuncture to help get your system back on track and to keep things on track. Try switching out your supplements, minerals- see if you find another brand works better- add in essential amino acids. Also, you can get some relief by taking dhea supplements every other day. But really, if the dhea helps, it only tells you that you likely have adrenal problems. You still have to address the core of the adrenal issues.

    • Posted

      Thanks Catherine. I'm going to try alternative therapies alongside as you suggested as I think this may help with the relaxation side if nothing else and ease the adrenal issues potentially. I am taking dhea and have been for the past month or slightly more but haven't noticed a difference. I think I'll give the amino acids another try but maybe I'll wait 8 to 12 weeks while my medication adjusts to this dose as I don't want to be starting to take so many supplements and things at the same time. I've tried various brands, but most were recommended by a specialist and tend to be the stronger doses of supplements.

    • Posted

      I tried the Shea a few years back. I had a specialist tell me to take a small dose- 7mg a day. I tried this and it seemed to do nothing, so I went off it. When I went off, I really noticed and was very depressed for a while. 

      The dosing that worked better was 25mg every other day for four days. Seemed to give me s bump without any withdrawal and boosted my own system.

      We don’t have labeling tgat shies tgecsoyrce if the shea here, so I’m always a little hesitant about taking dhea.

      The acupuncture has been incredibly helpful over the years of navigating thyroid disease.

      I’ve tried B12 shots and they seem to help. 

      I’m sure you’ve read a lot on minerals, vitamins, and the usual stuff.


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