1. Community
  2. Bones, joints and muscles
  3. Polymyalgia Rheumatica and GCA

fatique

Posted , 9 users are following.

carol_ann35477
carol_ann35477

Hello everyone,   Have been feeling much better pain and weakness wise since increasing Pred. to 20 mg.    Tiredness remains a problem.    Went away last week to my sons.  1 hr flight and of course 1 hour 2 hrs before and after, getting through airport and driving to destination.   Next day spent the day at my 9 year old granddaughter 2nd riding show ever.  Some walking.  3rd day off with daughter-in law, 9 year old and 13 year old to Canadas wonderland amusment park.  Used a walker there but gone from 10 to 4, then at 6 pm off to watch the 9 year olds riding lesson.    Fun Fun Fun but I paid for it with 2 days of exhaustion and having to nap frequently on those days.   Does this happen to others.   I no you are supposed to pace yourself but sometimes it is hard.   Do some of you push yourself more when feeling exhausted.   Wondering if I should be doing that.   Through the winter before diagnosis it was difficult sometimes even to find the energy to shower and wash my hair.   At least I can do that now.  Again just wondering if this is relatively normal with this condition.    

0 likes, 25 replies

25 Replies

Prev
  • mimi1950
    mimi1950 carol_ann35477

    Posted

    What I find difficult to grasp is what my limits are... Sometimes I think I've overdone it but nothing happens, other times, after say, walking around the block or sitting in a cafe for a couple of hours , I feel exhausted and sore all over and need complete rest for a day or two. Is that "normal"?

    • EileenH
      EileenH mimi1950

      Posted

      Inasmuch as anything is normal in PMR - probably! Sitting can be very tiring - it is standing that absolutely finishes me off! Did a bit much of that at the meeting last week as the evening events were all buffets. The first evening didn't have much in the way of tables and everyone was greeting everyone having not seeing each other for a year. The rest had tables though - but even so, it was hard work!

    • mimi1950
      mimi1950 EileenH

      Posted

      I'm having one of those days today. Can't do a thing! I am lying on the sofa, terribly thirsty but don't have the energy to get up to get a glass of water! At least now I know it isn't a flare .

      Sitting without support for my head makes my shoulders and neck tired, but I agree, standing is the worst l

    • Twopies
      Twopies mimi1950

      Posted

      I'm in the same boat today. Had relatively good day yesterday for me, rotten day today. Go figure...

    • carol_ann35477
      carol_ann35477 Twopies

      Posted

      I know it seems to make no sense, and is so frustrating.  Hope tomaorrow is better.
  • Michdonn
    Michdonn carol_ann35477

    Posted

    We all over do it from time to time Carol Ann 35477. If you can plan an activity routine and try to increase a little at a time either in time or activity, you can build up more endurance. Then you might not over do it as easily. It is a pain, but just part of the journey. Good luck think positive and put a smile on your face. 🙂

  • carol_ann35477
    carol_ann35477

    Posted

    Thank you all for getting back to me on this.   I find this activity intolerance and fatique the most frustrating aspect of this condition for me.    To a point you have to put your life on hold and I am still having a struggle accepting this.    It does not help either that physically you do not particularly look ill so I have even had people ask me why I am using a handicapped parking sticker.   I feel like telling them something rude,  but that is not me, yet!!   This condition may yet send me there.   I think there is an AA pledge that says something about accepting that which you cannot change.   Easy said than done I am finding.    I am working on accepting it, as one thing I have learned is that being angry about something is very energy draining and does not change anything.    Thanks again all.   Enjoy the rest of your summer.

     

    • Michdonn
      Michdonn carol_ann35477

      Posted

      carol ann, here is the saying "Grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference."

      Reinhold Niebuhr

      American Theologian

      Good luck on the rest of your journey, think positive and try to get a smile on your face, it does help. 🙂

    • carol_ann35477
      carol_ann35477 Michdonn

      Posted

      That is exactly the one I was thinking of. Thanks and absolutely trying to keep the smile going.
    • Michdonn
      Michdonn carol_ann35477

      Posted

      carol ann, life is good, I try to stay positive and keep smiling. 🙂

Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.