fecal incontinence.
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Iv`e been dealing with passive incontinence for some years now, & have seen several doctors & specialists in the last 4 years. The cause is a forceps delivery that damaged my pelvic floor, but getting older made the damage show up only in the last few years. I saw a bowel control nurse this morning, & what she told me has me in a terrible paic. She told me that everyone has to wear nappies in old age eventually, & that has scared me so much that I`d rather take euthanasia that have the indignity of wearing nappies like a baby. Surely there`s an alternative in this day & age?
0 likes, 15 replies
chrishappy catherine58026
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susan44391 chrishappy
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I was reading your response to Chris and i have just told her about myself. You mention that you have a sacral nerve stimulator, i have never found anyone who has even heard of them. I had mine put in 6 years ago but the hospital have wasted years of my life because they were a new clinic where i moved to to retire here in Devon and they really did not know how to deal with it. I have only ever had the first four programmes put is despite me asking for another set to be installed, they insisted i was wrong in my information. I was refered to a very specialist unit in Southampton in february only to find out that i should have had four new programmes put into my stimulator every year until i find one that works, so after five years i have missed out on trying over 20 programmes and now my battery is running out. I have written to complain to my Consultant but been ignored since. Soutampton have put another set of programmes in for me but i have had no improvement at all. Not sure what i am supposed to feel. My anal sphincter just stopped working about 2 years after my hysterectomy so my anus does not fully close up and i cannot squeeze it to stop accidents. It has cost me my job because of the humiliation and smell and being called names by insensitive people. I have tried to form a support group for five years but had no response. The people at my local surgery have never heard of the stimulators ever.You feel so alone. If you have no anal sphinter muscle how do you close up your bottom if you don't mind me asking. I do wish you all the best.
chrishappy susan44391
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susan44391 chrishappy
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Best Wishes.
chrishappy susan44391
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susan44391 chrishappy
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You are very brave.
I had a major accident yesterday which is why i sound a bit down. Made a terrible mess all down my legs and into my slippers, the diarrohea was horrendous. I was on the phone being a good friend because the person i was speaking too has just lost her hubby suddenly out of the blue at work, he was 56. She was crying so hard that i could not put the phone down as she is my really good friend so i walked towards the loo as quickly as i could and it was too late. My accidents can be too big for just a change of underwear, i need a long shower and throw my clothes away. It does not happen that often but i cannot predict so live in fear now of going anywhere. We are invited to visit friends in Canada in September for their Ruby wedding anniversary and i will now have to tell her i cannot possible fly abroad. I used to live over there in the 70's, Barbara was my flatmate and we have kept in touch ever since. My hubby is not pleased as he wants to go, he loves travelling.
Feeling ok this morning, got to go to work all afternoon. I work as a volunteer in the Hospice Shop in our village. i sort all the books. I thoroughly enjoy it and we are a lovely team and have a laugh which right now i need today. I will be hearing tales from the holiday the other three volunteers have just returned from. They were so inspired by that programme about the The Real Marigold Hotel based in Jaipur India that the three of them booked a three week holiday of a lifetime. They are all 73 and always wanted to see The Targ Mahal and they love curry. I thought they were amazing and are a real pleasure to work with every Thursday. Thankfully i do not like curry but would love to enjoy the culture of India.
Hope you have a good day.
chrishappy susan44391
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susan44391 chrishappy
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Been ok today and thankfully did my full shift at the Hospice where i volunteer. I work with some super nice people and we have a laugh.
I suspect the consultant will mention a colostomy on my next visit, it is just getting round to the idea.
chrishappy susan44391
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susan44391 catherine58026
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run clinics everywhere. They are monthly here in Devon and they supplyI am in similar situation to yourself, i have a damged never supply to my anal spincter i believe cased by my hyterectomy surgery. My anal spinter never closes properly so poo literally falls out and i have accidents. I have had a sacral nerve stimulator put in to supposedly stimulate the sacral nerve to work properly but sadly it has not worked for me but it can be successful for others. I had to give up my job because of the humiliation of accidents and being called some awful names by insensitive people. I have tried to start a support group for the last five years but have had no response, i assume because people do not talk about these problems. But they are a problem just like any other heath issue. I find the Bowel and Bladder foundation very supportive and they my pads. I was referred to a very specialist incontinence clinic at Southampton run by Dr Sophia Pilkington and they have specailly trained staff to dicuss any issues, they are superb. Yes i am devastated about the issue as i am now retired and cannot find the courage to go on holiday with my hubby, he has been holidaying alone for the past 10 years. I cannot cope with the accidents and the smell, it destroys your confidence to go anywhere. I feel am embarassment to my husband who has been very good i must admit but does wish we could have a holiday together. Try the Bladder and Bowel Foundation first, your GP has to refer you. Good luck.
susan44391 catherine58026
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I am in similar situation to yourself, i have a damged never supply to my anal spincter i believe cased by my hyterectomy surgery. My anal spinter never closes properly so poo literally falls out and i have accidents. I have had a sacral nerve stimulator put in to supposedly stimulate the sacral nerve to work properly but sadly it has not worked for me but it can be successful for others. I had to give up my job because of the humiliation of accidents and being called some awful names by insensitive people. I have tried to start a support group for the last five years but have had no response, i assume because people do not talk about these problems. But they are a problem just like any other heath issue. I find the Bowel and Bladder foundation very supportive and they my pads. I was referred to a very specialist incontinence clinic at Southampton run by Dr Sophia Pilkington and they have specailly trained staff to dicuss any issues, they are superb. Yes i am devastated about the issue as i am now retired and cannot find the courage to go on holiday with my hubby, he has been holidaying alone for the past 10 years. Try the Bladder and Bowel Foundation, your GP will have to refer you. Good luck.
catherine58026 susan44391
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chrishappy catherine58026
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rachel15202 catherine58026
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Hi Catherine, chrishappy is right about there being multiple solutions to Fecal Incontinence. It's also referred to as Accidental Bowel Leakage (ABL) and ABLinfo.org has a list of all the most recent treatment options. She lists 12 depending on your severity.
Dr. Heidi Brown is a well known Urogynecologist who published a study finding 1 in 5 women over the age of 45 experiences bowel leakage at least once a year. It's definitely not just a condition for older people and it's more common than you think. Don't feel discouraged because there are options! Wishing you the best!
catherine58026
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