Posted , 19 users are following.
im fed up of being asked what is wrong with me and then being told 'oh, I've got that' then when you ask what meds they take, or what rheumatologist they go to, you find its not R A at all or they've diagnosed themselves. When I think of the misery and pain I've gone through in the last few years it's almost as though they are dismissing it as nothing.
2 likes, 69 replies
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ivan17274 mary76396
Posted
I admit it. im flummoxed. borsant! yes that's the word borsant. not content with white endless sands. whales for mates. temperatures so good your almost blowing chunks! how come NO ONE told me the fellas from down under have motorized togas. or chariots. or both? oooohhh! shouldn't be allowed. but I digress. what I need to know is..what is the plural of toga? is it togi? twogi? toogi or today dahling!
anyway...all raise yer glass, repeat after me....I am NOT Spartacus'.
morning folks. is it Tuesday?
mary76396 ivan17274
Posted
Good morning Ivan, I think I need some of your drugs, they're obviously better than mine! I've failed completely to find a word borsant and the motor must have fallen off my toga 😩
tami413 mary76396
Posted
MARY.....LMAO!!!! Great...I too couldn't find borsant. Figured colloquial saying term! But gotta love Ivan17274....he made me laugh..hard!!! I raise a glass to him!
tony09890 mary76396
Posted
serge79137 mary76396
Posted
Hi Mary
People are very dismissive and just not sympathetic. They think that it is a touch of arthritis or why don't you shut up everyone has joint pains! I saw an interesting blog recently of RA vs Psoriatic arthritis . The man said he had extremely painful hands but very little swelling another patient had badly deformed hands with no pain. It seems we come in all shapes and sizes. I sometimes think the Rheumatologist does not believe me because I do not have big swollen joints or when they check for tenderness they touch the joint like a feather. I can just say I am in pain now with my right hand and all at the back of the hand across the knuckles and the wrist. I have come to bandaging the hand up for relief. Have you any thoughts?
Mr Wyatt
serge79137 mary76396
Posted
Hi Mary
People are very dismissive and just not sympathetic. They think that it is a touch of arthritis or why don't you shut up everyone has joint pains! I saw an interesting blog recently of RA vs Psoriatic arthritis . The man said he had extremely painful hands but very little swelling another patient had badly deformed hands with no pain. It seems we come in all shapes and sizes. I sometimes think the Rheumatologist does not believe me because I do not have big swollen joints or when they check for tenderness they touch the joint like a feather. I can just say I am in pain now with my right hand and all at the back of the hand across the knuckles and the wrist. I have come to bandaging the hand up for relief. Have you any thoughts?
Mr Wyatt
mary76396 serge79137
Posted
Hi Serge, I feel for you, maybe you need to see another Rheumatologist with more sympathy. I am lucky to have a great specialist that I can ring anytime I have pain and she skypes me with a solution. I am seeing her next week so she can give me a cortisone injection into my left wrist. I am on Hydroxicloroquine every day and Cimzis injections every fortnight but it's sometimes not enough if I get a flare up. I know what you mean about bandaging, I have wrist supports, elbow supports and ankle supports and they do help.
good luck with it all and I hope you get the help you need. Mary
ruth03300 mary76396
Posted
serge79137 mary76396
Posted
Yes he is the silent type. I don't like to ask so I don't even know the dose of my last steroid depot. Guess what I am a GP.
serge79137 mary76396
Posted
Yes he is the silent type. I don't like to ask so I don't even know the dose of my last steroid depot. Guess what I am a GP.
mary76396 ruth03300
Posted
I find the wrist support helps but I've got the ones with a bar down the front of the support and they are restricting. I've been told stretchy sports straps maybe enough but not tried them yet.
mary76396 serge79137
Posted
serge79137 mary76396
Posted
Thank you
Serge
jo66120 mary76396
Posted
Hi Mary, when my wrist begin to hurt or become kinda tender I wear wrist supports. I find if I don't move my wrist when it is painful usually in a few days things get better. I also use thumb supports. When my hands are sore or sore and kinda stiff Ihave a pair of battery operated gloves that massage my hands and help along with the ice packs. Hope this helps
ruth03300 jo66120
Posted
Battery operated gloves? I've never heard of these. Where do you get them please?
jo66120 ruth03300
Posted
mary76396 jo66120
Posted
im the same, it's the turning/twisting motion of my left wrist (I'm left handed too) makes me feel like my wrist is going to break and if I can keep it straight for a few days it does feel stronger, same with my ankles.