Fed up of feeling sick
Posted , 10 users are following.
Hi all
I was finally diagnosed back in January with multiple gallstones and a hietus hernia, my symptoms had previously been put down to IBS, it was only after a had a couple of gallbladder attacks which were so severe that I ended up in A&E that further tests were done and a diagnosis made. I'm currently on the list for Surgery and was advised back in January that it would be a 4/5 month wait, so I'm clinging on to the hope that I will be better by the summer.
I have days where I feel fine, other than feeling tired you would think I was fit and well, but then I go through days where I suffer severe pain, discomfort and nausea and I struggle to even keep water down. I'm having one of those days now which has resulted in two days off work so far, I really don't think work understand as unless you have suffered from this condition I really don't think you understand. I can almost cope with the pain as I can take pain killers and use a hot water bottle, it's the nausea that's really getting to me, does anybody else suffer from this? If so did you have any coping stratageies? It gets to the stage where I'm too scared to eat some days, as it is I don't eat all day at work for fear of an attack, im a sales rep so spend most of my working day driving.
1 like, 42 replies
sally_14743 E11eth
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i was misdiagnosed for 15 years ...during which time I learnt to manage the symptoms ...when I finally got diagnosed I had got to the point where I had constant gnawing pain under my right rib ... My diet stopped the colic vomiting attacks ...but I did feel a general billiousness but it was bearable ...
to understand how to manage ...
your gallbladder is a bag that stores bile from the liver concentrates it and when your stomach requests extra bile it contracts squeezes the bile out !!!! That's the bit which causes problems for you as your stones rub against the gallbladder lining inflaming it aand if a stone is sqeezed into a bile duct nausea sickness and if it gets stuck colic agony attacks ..
so to stop your gallbladder contracting avoid foods that require extra bile fat , meat, uncooked veg , I ended up on a daily diet of boiled potatoes boiled veg and bisto gravy ...it was mind numbingly boring but I could work and function ...skimmed milk,
then I discovered caffeine causes contraction s too ...so totally cut that out ...
also my doctor prescribed omeprazole which also helped as it reduces the amount of stomach acid produced ..
this really worked ..and once my gallbladder was removed I felt so good ...energy returned, could eat anything no nausea
won't be long
hope that helps
E11eth sally_14743
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Thanks for your reply, it's good to know that I'm not alone in the way that I feel. I gave up caffeine back in January, which as a self confessed coffee addict was no mean feat!
I am already very cautious about what I eat, sticking mainly to grilled chicken and veg, and am already on 40mg omemprazole a day, although after reading your post it may be time to say goodbye to the chicken. I find porridge made with water is okay too.
How long since you have had your op? How long did it take you to recover?
SunShinealley1 E11eth
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E11eth SunShinealley1
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cheeky87 E11eth
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sibylann E11eth
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Enough reply back and I'll give you the 3 day recipe to pass them quickly. Do not try try it without getting scanned one can get stuck and you'll end Up gettin surgery in the er. I got my scan did the 3 day cleanse and now have no issues I had to stay on the diet though. If you cannot pass them yo have to get the gall bladder removed if it's dire pain.
E11eth sibylann
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I have already been scanned, I have multiple large stones and have been told that surgery is my only option.
heena.f sibylann
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lisa98146 E11eth
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E11eth lisa98146
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Thanks for replying, really hope you get your op soon, that's an awful long time to wait. I have only been waiting 8 weeks so not even half way there yet and my condition does seem to be detiroating. I understand what you mean about looking for work, although I am in a job I had intended to look for a new one at the beginning of the year, but that is all on hold now until I am better. You also need to concentrate on getting well again before you look for work.
I wish I had found this forum weeks ago, I really do feel like I'm going crazy sometimes and that my family and friends really do not understand what I am going through, it's good to be able to chat on here with people that do understand. My other half does try bless him, but he still does not get it, and I feel like this is affecting his life too as well as my children's, although they never do complain.
Keep in touch and keep me updated on your op, are you in England? All the doctors strikes aren't helping us with getting seen to any quicker!
lisa98146 E11eth
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For example the hospital telling me to go to my GP to expedite my surgery. So I went to my GP. That's an appointment someone else could have had. He sent me for a blood test. The first appointment for a blood test was a week later. That has to be processed and again, it's an appointment someone really needed and could have had. A couple of weeks later I get a call booking me in to to the consultant just a week later. Some poor soul was waiting for that appointment. It was a waste of my time, my gp, pathologists and the consultant's time. So much waste, so much flannel and so much buck passing! Oh and I had a pre op check back in November! I bet I'll have to go for another one now as well. It's like a nightmare and ground hog day every day for five months and counting. I'm on edge every day waiting for the post, an email or a phone call. By the evening, I start feeling quite down. Bored of the bland diet and naffed off that I haven't heard anything again. I'm half expecting to be removed from the list. It sounds dramatic I know but I don't trust them at all anymore. 😩
E11eth lisa98146
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I'm also in England and my local hospital has suffered tremendously from the strikes, all outpatients and elective surgery have been cancelled again today, it is so frustrating, I know that there are people out there that are affected far worse than I am, but when you are at the mercy of the system it does not make you feel any better.
I ho to see my gp when I'm not feeling well or in a lot of pain and all he does is send me to a&e, then I wait there that long that the pain abates and by time I see a consultant im feeling far better, they examine me, concur it's my gallstones giving me problems and send me home and tell me I just have to wait for my op, I feel like my whole life is on hold at the moment and the outcome is at the mercy of a system which I don't hold much faith in at present. On the bright side it's the best diet I have ever been on, I have dropped to a size 8 from a 12 since Christmas, although I really can't afford to lose anymore weight as I can literally see my ribs sticking out now! I dread to think how I will be in another 10 or so weeks! If you don't mind me asking what part of England are you from? x
lisa98146 E11eth
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E11eth lisa98146
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I also get a stabbing pain by my right shoulder blade, this seems to get worse as the day goes on, and can be unbearable by bed time, do you ever get that? x
lisa98146 E11eth
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E11eth lisa98146
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I also often get awaken in the night with tummy pains which radiate through to my back, they can keep me awake for hours. When the cure really is such a simple procedure it beggars belief that we are left to suffer for as long x
lisa98146 E11eth
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E11eth lisa98146
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Fingers crossed you get your email, let me know how you get on x
sally_14743 E11eth
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the nhs is annoying but I am glad we have it , some people post on here from USA and they can't afford the operation and want self help advice to live with it ...
lisa98146 E11eth
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E11eth sally_14743
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lisa98146 sally_14743
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