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Fed up of fibro

Posted , 6 users are following.

jemini
jemini

Hi all, just on here to have a moan as no-one else seems to understand. I so want to walk up the mountain and scream at the top of my voice, but the little mountain i used to climb might as well be Everest sad Constant pain in feet, heels,legs, hips..... well you get the picture. Doctors finally diagnosed fibro but then one of the thousand blood tests came up with anaemia so no help until they are convinced all my smptoms aren't from anaemia. Can't think straight. Getting so emotional about things. Struggled not to lose time in work but get the feeling they're are getting  fed up of my problems or think i'm exagerating when i'm actualy playing it down. Oh well, could be worse.....

 

3 likes, 14 replies

14 Replies

  • anne90395
    anne90395 jemini

    Posted

    Hello jemini,

    It is a long hard journey with Fibro, so just sending my support.

    Take care, Anne

  • valerie826
    valerie826 jemini

    Posted

    Hi Jemini:

    I am with you girl !!! The struggles & pain, one good day then several bad. A lot people especially at work Won't get you nor do they want to. All you can do is the Best you can, plus screaming somewhere that no one will think you gone Mad would be a Awesome destressor... Well, that's my two cents & I am sticking to it.

    Now go & enjoy your weekend as Best ad you are able.

    Smile & giggles... Valerie826

  • susan69134
    susan69134 jemini

    Posted

    Hi Jemini,

    It's a good job we're able to moan here, thankfully there is more and more evidence coming to light in the medical world so that at least now when I see someone in that profession I'm no longer treated as if it's all in my head. Bad enough when my nearest and dearest thought it, of course it did help when he found out that a family friend (he called Aunty) who he'd been told had arthritis had actually been suffering from fybro.

  • christine26761
    christine26761 jemini

    Posted

    It's a very stressful time for you jemini, but the stress is just soo bad for making Fibro symptoms much worse..we can all attest to that...such a vicious circle this is......hang on tight, soon you will hear the right diagnosis, I celebrated when I got mine..it wasn't all in my head after all....this is going back over 20 years now....but probably had a long time before that..really feeling for you...be blessed..have a lovely day..:-) xxxxx

    Once when I was having a really bad time my doc said: do you have a room or somewhere you go and have a good scream..well I had a walk-in wardrobe in our bedroom, it was a tri level house so this wardrobe was basically was at the centre of the house in the first floor... I thought no one could hear me...well I walked in sat down and just screaned away..my 3  girls heard me and were quite worried...apart from the girls being frightened it was really good for me ...so I started going to local football and just screamed away..with everyone else the .,dr said it's really good for us to scream it out when when we need to..lol. I don't have that problem anymore..things do get better jemini as we go on we find ways of coping..,

    • jemini
      jemini christine26761

      Posted

      Thanks Christine, I'm a rugby girl so i do get to have a good scream sometimes. I usually resist the moaning but it all got on top of me this week. This site is a godsend, somewhere that people understand and don't judge. Had to cancel another trip today as not up to it but hopefully the sun will shine and i can chill out in the garden.

       

  • christine26761
    christine26761 jemini

    Posted

    Forgot to mention,  you just moan as much as you like in this blog,,we've all been there..:-)xxxx
  • MadMags
    MadMags jemini

    Posted

    Hi to all my fellow fibromites. I haven't been on this site for a long long time. Just wanted to wish you all well, I know how frustrating and painful fibro is, so I understand how you are all feeling. Soft hugs to all, Mags x
  • bronwyn97278
    bronwyn97278 jemini

    Posted

    Hi Jemini;  I have read all other's comments, so will just say, yes we do all know the road....and I can add, that way back in the beginning, my bloods showed up with anaemia, too.....but after many doc visits (including a Psyciatrist who told me "my pain didn't exist), one doc told me he thought I had MS, and then had lumbar puncture, followed by Blood Patch into the point where the LP was done...the only doc who actually saved me was my Rhuematologist and my Psycologist...both knew and understood Fibro, CFS and Osteo, and helped me on my way....please don't be afraid to seek help with these two specialists, and do trial the medications that they suggest, as I KNOW that I would have probably gone completely mad with the pain, if I didn;t ...have something to keep me getting through each day.....and I also agree, that more stress/ors make it worse, for every time I've had another stressor in my life, and just kept going, ended up with another part of my body going....(the last one was moving house), and now my jaw muscles have decided, "too much"....now I can't complain etc, as talking/eating makes my jaw very sore.           I found that by researching Fibro....printing out the info, and leaving it around for others to read, let them know what I was going through....best wishes.....rolleyesBron
    • jemini
      jemini bronwyn97278

      Posted

      Thanks Bron, you've been through so much. Just to let you know it means so much to be able to go to this site and have wonderful people like you for support. Doctors won't refer me at the moment to Rheumatologist. Went through 3 years of blood tests and a lot of head shaking from docs to finally get a diagnoses and then 1 blood test showed anaemia, aha something they can understand and treat, so now i have to wait 3 months on iron tablets before they'll confirm fibro. This week i have been the worse i have ever been,body and brain packed up. but like i said, it could be worse xxx

       

    • bronwyn97278
      bronwyn97278 jemini

      Posted

      Evening Jemini;  Don't ever feel that you should be made to think that "others are worse off than you....or it could be worse".....yes it could be worse....but each person has their own issues, and each has to deal with them.....yes we all suffer the same condition, but we all also, too, had to work through as you are doing now....and believe me, there are Plenty of times (such as when another part of our body goes), then the "old sense of feeling like s..."  comes back, and we have the same feelings that you have now.....we are all an individual, and all have our own probs, so please don't feel you have to be "brave"....you can't, and it is the same feelings that a Terminally ill person has to go through....it's grieving for what we have lost, and the same process of Anger, Frustration and the questions of "why".....the more that you open up,, talk re your "pain"etc....will help you to Accept......till next time.......Bron
  • jemini
    jemini

    Posted

    Thank you all for your support, it means a lot to be able to come to this site where people understand and believe you. Let's hope we all have a good weekend xx

     

  • Flowerlady
    Flowerlady jemini

    Posted

    All of us on here are 'fed up with fibro' I were diagnosed 4 years ago, and its just getting worse,I  am having a realy bad day todaycry
  • kaz_40
    kaz_40 jemini

    Posted

    Hi Jemini Its not easy having fibro, like you I could scream my head off. But you are not alone, we are all in it togeather. plod on as best as you can, and do something nice for your self treat your self to something nice. anything to help lift your spirits. gentle hugs take care.
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