Fed up of Hidradenitis Suppurativa
Posted , 8 users are following.
I am 19 years old and have dealt with Hidradenitis suppurativa for as long as I remember, it started off not too bad but as countless doctors visits failed me it soon got a lot worse. I cannot explain how low I am feeling right now, I turned to this group for support and I am usually quite a private person. I feel as though I've hit rock bottom, I've just been sent home from work with a gaping hole under my breast which has been causing me agony for the last few months. It's refusing to heal, I've been able to cope with it until now but the pain has reached a new level. I know you're thinking, why hasn't she been to the doctors? I am embarrassed, I feel ashamed of who I am and this horrible thing I have, I had antibiotics before and they never worked so I just feel like everything is pointless. I feel like giving up, after endless tears and years of self hate which has now got so bad I can barely look at myself in the mirror without my clothes on. HS has ruined my life and continues to do so, I feel as though it is destroying me and all I can do is watch, in pain constantly. I don't know where to turn or what to do next I am completely clueless! I started to enjoy swimming again a few months back, I can no longer go due to open wounds. I feel like everything is spiralling out of control and I just can't stop it. I am on targets for sickness at work and fear I will lose my job. This is really a cry for help, if anyone knows anything that could help me I am willing to try it, I can't go on like this much longer, it's tearing me apart!
1 like, 6 replies
whoshunny15289 kallie60854
Posted
crystal_08850 kallie60854
Posted
stephanie15666 crystal_08850
Posted
Thx
Ironrachey kallie60854
Posted
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stephanie15666 kallie60854
Posted
Unfortunately I don't have lots of tips the group has been proving me with some the only two I have noticed for me is sweeteners make it come back and I can only use antibacterial soap (not sure why either of those things make a difference)
Good luck, we are hear for you.
atticus2169 kallie60854
Posted
I know how frustrating this disease is, especially knowing that we're all pretty much on our own since modern medicine hasn't caught up with us yet. Take this one day at a time and just remember you are absolutely not alone