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I'm am so upset. About three weeks ago my Rheumy told me I had Lupus and started me on Plaquenil. Today, after finally getting a hold of him for urgent bladder issues (and then referred to a urologist), he said that he cannot definitively give me a diagnosis of Lupus, but he is 100% positive that I have an autoimmune disorder and "fairly sure it's in the Lupus family", to quote him. Then he said to keep taking the Plaquenil to see if I improve on it (which can take up to 6 months!) because that will help him with diagnosing! [[ IMG]]
I really cannot believe this. Can this really be the right way to be doing things? Starting me on meds without a definitive diagnosis, not even knowing if it's going to work? I"m mean I am really new to all of this but it doesn't seem to be right? I have been EXTREMELY sick and in/out of the hospital since JUNE. I had to withdrawal from school, quit my job, and leave my beloved Nashville home to move to PA to stay with my grandparents during these medical issues. I am tired of not knowing what is wrong, I am tired of being sick ALL THE TIME, and I cannot believe that this is happening after I finally thought progress was being made. I am going to see if I can get a second opinion from another Rheumatologist. UGGGGGH. [[ IMG]]  . Any suggestions or opinions?
In case you were wondering, my current labwork is:
-ANA Titer 1:320
-ANA Pattern: Speckled
-SSA ANTI-RO 52: Positive, high-71
-SSA Anti-RO 60: Weak Positive
-Low Absolute Eosinophils (0)
-DSDNA: Unsure: It says "Double-stranded 157 zz"?
-REALLY messed up Urinalysis, with protein, bacteria, leukocytes, calcium oxalate, and mucus but with a clean culture (reason for Urologist referral).
:'( :'( :'(
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