fed up today

Posted , 9 users are following.

Hello everyone, I don't really know what to say as I've not done this forum thing before. But, I'm feeling extremely fed up and exhausted. I'm so fed up with feeling so tired and in so much pain it's difficult to stay optimistic. I am married and my husband is wonderful t there are times when I struggle to stay hopeful. Everyday there is pain and everyday I'm exhausted. How do you stay optimistic with an illness like his? I would love to do something with my life butsome days it's hard to get even out of bed.

Take care everyone,

pauline

0 likes, 11 replies

11 Replies

  • Posted

    Hi, Pauline, it is hard, like you I have a wonderful husband, so every day I pray and ask our loving creator to help me see the good in the day, and I always tell myself a bad day is better than no day, positive thoughts are a good tonic, take care, Sue
  • Posted

    Hi Pauline it is hard adjusting to your new self. I understand as everyone with this horrible condition does. I was just diagnosed this year after feeling unwell for a long time. I had to give up work as am not up to it anymore.

    Try to be gentle on yourself, try to be more relaxed as being stressed definitely increases pain.

    Find something that you enjoy, that helps to take your mind off the pain.

    I got myself involved in helping to set up a local good neighbour scheme in my village, have met some lovely people and I don't feel so isolated.

    I can't walk far without intense pain but really try to be positive as best I can.

    Sending gentle hugs. Xx

    • Posted

      Hello there, thanks so much for your reply it cheered me up as today has been quite a tough day. I've been diagnosed 2ith fibromyalgia for about 5 years now but struggle with the pain and exhaustion on a daily basis. I wish I could work but if Its just impossible and sometimes I feel a bit worthless because of it. I do suffrage from depression also, which I am being treated for and also arthritis in my left hip which also causes me a lot of pain. I play the piano which gives me great enjoyment I just find it hard to see what the point is sometimes. Then I think but you have a husband and family around you who love you and sometimes that's all the point there needs to be.

      thanks for the reply

      love Pauline

  • Posted

    Hi Pauline, Well sweetie, as you can see, you are not alone in the way you feel or your struggles. But just remember dear, that almost everyone on this planet is struggling with some difficult issue in their lives. If it isn't health related, it is trials in their personal lives that sap their energy. So I have learnt to never compare myself to anyone else. You just don't always know by the persona of what people present to the world. You would be shocked perhaps at what is really going on in people's private lives. So just deal with your own situation and do the best you can. Some days will be better I promise. But accept your limitations on the days when your energy is low. I have had FM for over 30 years so I speak with some experience. Since you have an understanding husband sweetie, that is a great gift. If he was in your situation you would not think less of him. Therefore he dos not think less of you. Maggie xx

  • Posted

    Hey Pauline. We are all here for you. We know the pains and the struggles that come with this disease. We all have varying degrees and other ailments but this is a great place to talk it out and see what everyone else is doing to find what can work for you, vent out your days frustrations, or get answers to questions. I recently joined and it has been a great help to know I'm not alone.

  • Posted

    Shame it's hard my daughter 24 has had it for 10 yrs she is on lyrica 75mg an it works well.... was on lyrica, trepiline 25mg an cilift . That combo really worked for her.... up your vit B an magnesium. ......staying positive is half your battle won......strongs

  • Posted

    Pauline I can understand how you feel. I feel this myself sometimes about getting out of bed. I like you I'm sure try and stay positive but it does get you down when you think back to what

    We used to do. I can manage mostly on meds but do get bad days and bad flare ups like at present. I am a carer in a home and its very physical and obviously my body doesn't like it. I find

    Personally it affects my relationship because I feel why should my hubby have to do things that I should be capable of so am constantly apologising. I try and do little things but after my shifts I am finding I am more

    And more tired out.sometimes I struggle to do tea if he's not here. I love wAlking and used to go for a walk every night but that's stopped but I really must start it again although on bad days

    If I can manage I take a stick. But at 41 it feels so odd

    • Posted

      Hey there,

      thank you for your reply. I am having a great day today. I woke up with no pain, that may change later but at the moment things are good. So we're having a friend for dinner and my hubby is cooking us a lush lasagne. I'm so sorry to hear how tough things are for you. I myself don't work. I find everyday to much of a struggle. So I am very impressed that you manage to do anything. How is your pain today? My hubby is so supportive, he has nearly died with complications from chrones disease so I think he understands and sympathises with illness greatly. He is such a support and has made my little life better. He helps me with whatever I can't do or finish and without him I would be a mess. How is your husband with your illness? Does he sympathise? I'm sorry you feel like you have to appologise. I'm here if you need a chat and I will always reply.

      lots of love Pauline x

    • Posted

      Hi Pauline 

      Thank you for your message. I am in a great deal of pain today in my neck and feeling dizzy. My pain varies but as this is a flare up its much worse.I am awaiting a physio appt but that wont be til october sometime. My hubby is pretty good but he is away 4 days a week so I have to manage. I think he undertands that I dont always feel the best but think he does get fed up of me moaning.  I dont like to moan but I get frustrated as I am very independent. I dont want to give up work as its partly a social thing due to him being away.  I am looking to change jobs anyway to something less physical, I am not ready to give up yet as I still have kids to support. x

       

    • Posted

      I'm sorry you feel this way. I'm different cause partner has been very sick and understands how one needs to be with like minded people . I am sorry it is hard for you .

    • Posted

      Thank you pauline. Don't get me wrong he is very caring but like I

      say I don't think he really and truly understands how I am

      Feeling. Or his answer would be to something i can't do leave

      It and that's how it stays he won't think oh I will do that unless I ask

      Him.

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