Feeding tube

Posted , 3 users are following.

On my third feeding tube in 2&1/2 years. My throat doesn't tolerate these well at all. The last two had to be pulled out early. I don't know how much more of this I can handle. At this point I wish the doctor would do a total pancreatectomy with islet cell transfer. 

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2 Replies

  • Posted

    Hi Kathy

    So do you have chronic pancreatitis? Due to alcohol or gallstones?

    Are you on Creon? Are you daibetic?

    • Posted

      Sadly it was due to alcohol. My father had it also. After my first attack (which landed me in a coma a half step away from dead) I got sober and haven't had a drink since. I won't even take medicine with alcohol in it. After I quit drinking is when it became chronic. I'm sure the damage was already done. I am on Creon and am not diabetic. Most days I am in quite a bit of pain. Nausea comes and goes. So far every step of the way the doctor thinks could be the step that makes things better, better enough at least. I haven't made it a month without being in the hospital for a week or so.  Any advice is much appreciated! Thanks so much

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