Feel like I’m dying

not yet sadly 😦( tested positive for one test and they want me to take another one.. said they cant start treatment until second test results come back. it is so frustrating 😢

I would recommend researching natural ways to help lyme - can't advocate specifics here as site moderators don't like it (so as to protect people from charlatans selling things). There is however a lot of credible info out there. Prior to having lyme I would haven't put any store in such remedies, but herbs made a notable, and immediate difference for me, one example being my nose bleeds stopped within 2 days. I acquired the herbs from a well known online site. Just putting this out there as something you can do to help yourself, in case you hadn't thought of it. Hope you see an improvement soon (I know it's awful).

hi there thanks for replying!

i went ahead and made a whole lost of herbs and vitamins i can be taking daily to try and help! just need to go shopping for them. i hope i can feel better soon 😦

Really hope they help. A couple of the herbs that really helped me were Japanese knotweed, Siberian Ginseng and Cat's Claw. But it really depends upon what the tick was carrying (there can be other co-infections as well). There is a great book which lays out herbs for specific symptoms of lyme/co-infections - just search for lyme disease on any book retailer and you should find it (if I name it my post will be deleted).

thanks so much!! you're such a big help. 😃 also, can i ask you what test you take in order to know if you have a co infection or not?

No problem at all. In terms of coinfections, it was clear cut for me that I had bartonella as well, as there is a distinctive rash, like stretchmarks. There are tests you can pay for (blood is sent to a lab in Germany or US), the charity Lyme Aid UK has a list. Kind of depends on how willing your GP is to help you interpret the results vs the cost. There is a specialist in Dublin that I've heard people have had good results from seeing, but again it all adds up in terms of the cost. One more thing, you mentioned that your GP said about needing another test - I'm pretty sure that the updated 2018 NICE guidelines say just a bullseye rash is now sufficient for diagnosis.

ahhhhh okay. see i am from the US. my case is kinda tricky. itd be great if you could hear me out. august 1st i developed a type of insect bite, over the next 3 days, it started to spread and it was really red, swollen and hot to the touch. went to urgent care, they said i had "cellulitis from a bite" (never told me what bit me) gave me doxycycline for 7 days. august 7th comes and i lose my hearing. go back to urgent care. fhey said i had a "ear infection" put me on amoxicillin.. days later i got my hearing back but then i started getting awful symptoms... severe headaches that last all say, hand tremor, elbow +arm pain, severe weakness in arms and hands, body tingling , extreme fatigue.. took a CBC, was fine doctor said i had anxiety and then thats when i did my research and realized everything started happening right after that rash i had.. so i tested postive on the elisa test and i just did a western blot.. still waiting for results. 😦 they wont give me treatment yet .. does this sound like lyme to you? im afraid of something worse but its the inly thjng i can think of.

Oh gosh, I'm really sorry, that sounds awful. And apologies, just assumed you were uk based. I can't pretend to have any expertise, I'm just someone with a similar story. Certainly parts of it match up with your experience: the red and inflamed insect bite, short course of doxy, then back to doctor for subsequent numerous health issues, none of which existed prior to being bitten. In the UK we hear about Lyme Literate Doctors in the US, I don't know how common these are in reality, but hopefully you can get to one. And in the meantime I would seriously look at herbs. I feel like they saved my life, I was bed ridden for 6 months - now I work full time. Still not perfectly well, but definitely a big improvement. Wishing you the best of luck.