Feel like I'm dying but doctors say it is anxiety
Posted , 27 users are following.
Hi all, I haven't been feeling well for a long time now so please bear with me while I explain.....
Around February this year I started getting headaches daily and feeling exhausted all of the time. There didn't seem to be a pattern to the tiredness but I often noticed it seemed to correspond with a slow heart (around 55bpm) and a fluttery or heavy feeling in my chest. At this time I was just trying to ignore the symptoms and didn't let it get to me too much.
At some point in May, I started to get other symptoms such as a tight, choking feeling in my neck, light headedness and depersonalisation. I had an awful panic attack driving home one day where all of a sudden I just felt like I was going to die and nothing felt real. I wasn't hyperventilating and don't recall my heart beating particularly quickly. I then had another awful panic attack at work where I felt the choking feeling and was convinced I was going to die. It was so bad an ambulance was called and they sent me to hospital. I had blood tests and xrays which all came back clear.
I had a couple of days off work then and over the past few months I had a further week, two weeks and three weeks signed off with a couple of weeks actually at work in between.
Symptoms I have experienced during this time are:
- dizziness
- light headedness
- weight on chest
- headaches
- extreme fatigue.
- internal tremors
- neck discomfort below the base of my skull
- palpitations
- slow heart rate (lowest was 49bpm in bed)
- discomfort inside my throat at the back.
- tingling in my fingers
- feeling weak and wobbly on my feet
- feeling like I need to take a deep breath and yawn all the time
- occasional sleep disturbances
I know that many of these symptoms can be associated with anxiety, and I am desperately trying to believe there is nothing else wrong. I have had many blood tests and I do not have thyroid, anaemia or low nutrients. I have also had EGGs which were apparently normal.
I've been back at work this week and actually enjoyed myself but it's been so hard pretending I am ok when all the time I feel physically unwell.
The symptoms currently bothering me most are the extreme fatigue, feeling weak and wobbly and feeling the need (and often being unable) to take a deep breath.
I really am quite terrified as I genuinely feel like my body is becoming weaker and that I am going to die soon. I worry perhaps I may have cancer or I have a heart condition and my body is basically giving up. I try but can't believe it's all just anxiety, although I do accept I am feeling anxious. I feel like I can't plan my future because i don't believe I have one :-( I should also mention I'm a 31 year old female.
Please can anyone advise me what else could be wrong with me and if there are any other tests I could ask the doctor for?
3 likes, 39 replies
Anperry25 Tigerlily84
Edited
sounds exactly like what I've been going through. I've lived with anxiety since I was in my teens, since covid it has gotten significantly worse. my chest is tight almost every day, I spend way too much time looking at my symptoms online which makes me.think I'm dying even more. I recently went to the doctor bc my lymph nodes were swollen, I was told by 2 doctors it was tonsillitis, but for some.reason I do not believe them. I got a full blood work done, waiting on results from that. between the two doctors neither seemed concerned about anything I felt like was an issue. best advice that I don't listen to myself is stay off the internet . lol sounds silly but for real it just makes your anxiety worse. I'm waiting a few more days to finish out my antibiotics before I can finally get started back on my anxiety medication. do you or have you taken anything for it?
Edit: I'm a 33 year old female, 1 kid, cosmetologist so I'm on my feet and legs alot and constantly feel like something is wrong, you are not alone 🥰
athol91131 Tigerlily84
Edited
I'm sorry but these are all classic symptoms of anxiety. I suffered for 30 years (you don't have to!) and now I am free of it. Endless visits to ER , endless blood tests and scans etc. all came back normal. There is nothing wrong with you (except overactive anxiety). Anxiety cannot harm you in any way. I know it feels horribly scary and you think you are going to die. But you're not! Also I get the not believing the doctors thing, I always though that they had missed something or that I was an exception. BUT doctors are very well trained in spotting illnesses, it's what they do. If they tell you it's anxiety, believe it.
One of the problems with anxiety is that when your body goes into survival mode (which is what anxiety is) it reduces the functions of the frontal cortex so you can't think very rationally. This helps in a real emergency situation because you don't need to be thinking about the tiger coming for you, you just need to run!
However you are not in a dangerous situation but your survival brain will keep looking for a danger because the alarm has gone off! It can't see any danger outside of yourself in your environment so it starts to look inside and comes up with all kinds of scary scenarios about the normal processes of your body. Plus your body gets flooded with adrenaline which causes unusual physical effects like tight muscles, headaches, shortness of breath, sweating, fast heart beat etc. You then freak out about these things, sending more danger signals to your brain, and the anxiety ramps up.
What you are suffering from is nervous arousal, that's all. You are not going mad and you are not going to die. It just feels very, very uncomfortable. If you can accept and allow these anxious feelings and these anxious thoughts and just allow them to be there the anxiety will slowly dissolve because you are telling your brain that there is nothing to worry about. It sounds very counter-intuitive but , believe me, it works! Don't try to fight it or fix it. Allow the thoughts to happen but realise that they are not true. Anxiety is a big con. It tries to convince you that something terrible is going to happen, but it's not. You will definitely be okay and you will come out of it with no ill effects, no matter how awful you think this experience is. I repeat, you will not die and you will not go mad. It's just anxiety and it feels horrible but it can do you no harm whatsoever. Best wishes from one who has been there, done that. There is nothing wrong with you. Blessings xxx
nicole51881 Tigerlily84
Posted
omg! i just punched in my google "what if my blood tests are all fine but im not?"
And this came up! its four am no cant sleep! i have everyone of those symptoms, doctors say im faking, that they can give me something for the pain in my tummy but cat do much else! I DONT WANT PAIN KILLERS I WANT A SOLUTION! i just starting sending my mom all this information. Here's the thing though, im 48! Pleasr dont tell me its anxiety bc of menopause im sick of hearing it! i have always had problems with my nervous system. EXTREMELY bad cold sores, which it herpes which lies in yr nervous system.
I AM SO SICK OF DOCTORS TELLING ME ITS IN MY HEAD! When its them who have to update their knowledge! THANK YOU! OMG THANK YOU!
brittany8787 Tigerlily84
Edited
lets just say im in the EXACT same boat as you people around me think im crazy, i tell them to call 911 so many times but my husband says no your freaking yourself out too much and he never calls 911 i havnt been checked lately but i can assure you when i was pregnant with my first i was in the hospital everyday thinking i was dying since i was six i would tell my grandma i was having a heart attack and i know there is no such thing for a 6 year old to have a heart attack. I have had these thoughts your having for 25 years and im still alive by the way all of those symptoms you experience i have felt since i was little but the older i get the worst it gets im still alive is my point, i can help you thru this if you would like message me, i need as much help as you 😃
chelsea14304 Tigerlily84
Edited
I feel like i'm literally in the same boat ! I have always had anxiety but now it has been SO much worse since Covid . I feel sick everyday and feel as if i am going to pass out or my heart is going to stop and I am just going to collapse and die. I've seen my doctor too many times and I am assured there is nothing wrong with me, and that it is just anxiety. I am told to exercise and get plenty of sleep and drink water - but i do all these things. I eat healthy, i exercise everyday, i have cut back on drinking alcohol. All of my tests have been normal except for a slight vitamin B defeciency - which i have been taking supplements for months now. I feel so stupid that I keep going to get checked. Last week i went after spending nights without sleeping, feeling shaky and dizzy , having the WORST headaches ... and all they could suggest was that maybe i have allergies. but allergies would not make me sick to my stomach or keep me up all night surely? I just turned 26 and have always been fairly healthy so i am thinking it may be time to accept that this is mental and i need to push through it , but it is absolutely terrifying to think that this could be my new normal for the rest of my life? I did stop taking my anxiety medication because i felt it was doing nothing. i felt the same way on it as I do now. Which makes me constantly think that i have something wrong with my heart , or cancer. Has anyone been on anxiety medication that has worked for them?
sydney87310 chelsea14304
Posted
You sound just like me! And we're the exact same age. Our fears are right on-par, too. My last horrible bout of anxiety was when I was 16. I've had it off/on throughout the years but I've been on Sertraline 100mg since 2011 and I thought it worked, hence why I've been on it so long. But this month... I don't know. I'm going to see a therapist in about a week or so. I've been to the ER 3 times and urgent care once this month so far. So many tests/scans all normal. So I'll see if therapy helps me again. It did once before, plus the sertraline plus diet, exercise and being on a normal schedule. Reach out to me if you want/need to!!!
kyla61574 sydney87310
Edited
Please look at neurosymptoms.org
Functional NEUROLOGICAL DISORDER (FND) is a disorder that includes all of your symptoms. FND is a disorder that many doctors do not understand. All test come out normal. Mass General Hospital has a clinic specifically for FND.
i hope this helps. Please feel free to reach out to me if you have any questions. i was misdiagnosed for decades. It's scary, but there is help.
sydney87310 Tigerlily84
Edited
I know this was posted awhile ago, but I just came across it and it sounds just like me. I am really struggling right now with anxiety (at least that's what I HOPE that it is!) But it is truly miserable. Started with a stomach ache / (bug?) and now I wake up sweaty, with a fast heart, and a knotted stomach. It comes and goes throughout the day and seems to be worst upon waking and at night. I can't sleep, eat, function. I have had a bunch of tests run - CT of abdomen/pelvis, 2 EKGs, several blood labs, 2 chest xrays ... I haven't felt this bad for like 10 years. It's draining.
kyla61574 sydney87310
Edited
Please look at neurosymptoms.org
Functional NEUROLOGICAL DISORDER (FND) is a disorder that includes all of your symptoms. FND is a disorder that many doctors do not understand. All test come out normal. Mass General Hospital has a clinic specifically for FND.
i hope this helps. Please feel free to reach out to me if you have any questions. i was misdiagnosed for decades. It's scary, but there is help.
emma1479 Tigerlily84
Posted
hi you could request your gp to do a 24 hour urine metanephrines or catecholamines test. your symptoms could be caused by way to much adrenalin in your system. its caused by a tumor of the adrenal gland called a pheochromacytoma its extreamly rare so doctors do not think to look for them the other tumor that can do this is a paraganglioma. they pump out hormones a pheo os always in the adrenal medulla but a para can be any where else between eyes and thighs so if your levals did come back high you would then need a ct or mri with contrast but needs to be eyes to thighs not just abdomen.
the reason I know this is because I have pheo and it took years for them to diagnose previous to it I was fobbed of as depression and anxiety most pheo patients are. these episodes at night are a big symptom of it it's to do with ether lying on the tumor and compressing it so it pumps out more or the sleep wake cycle. there is a very good support group on face book for this I am one of the admins on it.
if you read on line about it you will find it just gives you the basics it dosent shoe all the symptoms and a lot of the info is wrong and outdated one of the websites to look at is the pheo para allience they work with endocrinologists from all over the world. if your leavals did come back high you need a referl to a endocrinologist and it's important that they are experienced In pheo.
Nicole9303 Tigerlily84
Posted
oh my god... im 17 and im having the same feeling. my stomach hurts very bad though. im freaking out because doctors said medically im fine but i feel like im literally dying. this has been going on since the 20th, please let me know how youre feeling. i want this feeling to stop.
kyla61574 Nicole9303
Edited
Please look at neurosymptoms.org
Functional NEUROLOGICAL DISORDER (FND) is a disorder that includes all of your symptoms. FND is a disorder that many doctors do not understand. All test come out normal. Mass General Hospital has a clinic specifically for FND.
i hope this helps. Please feel free to reach out to me if you have any questions. i was misdiagnosed for decades. It's scary, but there is help
no99747 Tigerlily84
Posted
hello! i also feel like that. im a 14 year old female and sometimes i feel like i might die soon, sometimes i have fever out of nowhere or i feel like passing out. this makes me scared and im worried about my health. i went alone to the doctors but they said its nothing serious. ive googled a few things about this and i always see the word "cancer". i really dont wanna believe that i have cancer.
ben41166 Tigerlily84
Posted
I'm also in my 30s. 33 year old male. symptoms started 4 weeks ago randomly one morning. Felt light headed, chest tightened up, heart raced. Went to e.r. twice in one week. Was told I'm healthy as a horse. I have 24/7 chest pressure, which spirals into thinking I'm dying, leads to panic attack, crying, shaking, cold feeling. I obsessively check my heart rate, O2, temperature. No amount of breathwork or positive mantras help. Got prescribed antidepressants which I refused for 3 weeks until now I said screw it. It blindsided me as I've always been an active, strong person. I'm married with 4 kids, and I feel terrible because I can barely function anymore for them. I hope something works for you and all of us going through this. God bless!
kyla61574 ben41166
Edited
Please look at neurosymptoms.org
Functional NEUROLOGICAL DISORDER (FND) is a disorder that includes all of your symptoms. FND is a disorder that many doctors do not understand. All test come out normal. Mass General Hospital has a clinic specifically for FND.
i hope this helps. Please feel free to reach out to me if you have any questions. i was misdiagnosed for decades. It's scary, but there is help.