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feel like my life has changed over night

Posted , 5 users are following.

claire0911
claire0911

Last year I was diagnosed with a large dvt in my left arm and had multiple blood clots in my lung. My life has been turned upside down, suffering

Chronic pain on a daily basis. I have been diagnosed fm and I take 900ml

Of gabapentin 3 times a day with 50ml of amitriptyline. I suffer from severe

dizziness, and could fall when I lose my balance. I cannot bear the pain in

the soles of my feet and have stabbing pains in my thigh. I feel as though I

have lost all confidence and cannot go out on my own. This time last year I was working as a carer, 9st 3lb and enjoying life. Now I'm almost 13st

and just a burden to everyone. I would like to be able to talk to someone

who understands how I feel. I have damaged nerves in my arm from the

blood clot and have been take off my HRT so I'm also going through a

surgical menopause. I'm sorry for the essay :-)

0 likes, 8 replies

8 Replies

  • joy47826
    joy47826 claire0911

    Posted

    Claire, I was given the FM dx in 1999 from an emotional trauma I went thru....major one, knocked the wind out of me.

    Plus, I deal with chronic osteoarthritis and a mess from a hip replacement in 2010, so dealing with mopping up those complications I was left with.

    Now I'm in the U.S. and for MOST I deal with I use all alternative supplements, hardly any drugs but some ibuprofen and Pain RX herbal for pain. And thyroid support from the drug world and blood pressure meds.....that's it. And many supps to support my WHOLE body.

    So I can tell you more, but don't want to waste my time and energy if alternative healing doesn't interest you.

    I dizziness could be from the meds you take.

    I'm not pain free but I manage and again I'll share what I do but if you are not interested I won't bother.....

    I don't think the FM was a real hard case as I took some good supps before that probably help to buffer the pain.

    • claire0911
      claire0911 joy47826

      Posted

      hey joy, thanks for the reply. i have so many other probblems that i havent mentioned, heamachromatoses, emphyasema and urticara. im also on warfein for life so i have to be very carefull what vitimins i take casue i cant take anything with vitiminn k in it. im just not fully convinced about alternnative at this time, although that may change, i still would like to thank you for yr help
  • tiswas24537
    tiswas24537 claire0911

    Posted

    have you checked the side effects list with the drugs your taking ,

    if there side effects of the drugs at least you know and can decide weather or not you want to keep taking them ,like does the results out way the problems caused by them . i no gabapentin has some nasty side efects .

    sounds to me the HRT caused the blood clots ,not that they will admit it. i dont know what to suggest with you having blood clots ,

      tian .in north yorkshire.

  • Ech1ck
    Ech1ck claire0911

    Posted

    Hi Claire

    I am sorry you are having such a rough time. I can completely empathise with you regarding the FM, dizziness, 3 st weight gain, menorraghea and complete lifestyle change however first and foremost please do not apologise for this. It is what it is, pants as it is but the fact you are sourcing support shows you are self aware enough and determined to make the changes necessary to give you a better quality of life that I believe we will achieve and deserve. I as you are a natural carer for others and for me and probably for yourself too the biggest challenge has been adapting to this role change. I am far from ungrateful for support and help when I need it however it just feels strange and that I am losing and have lost a huge part of me.

    I originally I was not keen to keep a diary but in order to track the triggers, including weather and food it has been a god send. I can also keep track and read over my good days and inspiring comments to keep me going through the rough as I source the right route and pain managment for me. 

    I found that the Amitriptyline made me really dizzy and I was on 30mg so maybe speak to your GP regarding this. I have also found that regarding shooting pains in my hands and feet (even if I am warm myself) keeping these parts of my body well insulated with woolly socks and gloves really really helps. For me anything below 20 degress then I am in pain. Take a day at a time and be kind to yourself without too many high expectations so you don't overwhelm yourself to fix you overnight. I am very patient with others but not so great with myself but I know I will get there.

    All the best

    E 

    • claire0911
      claire0911 Ech1ck

      Posted

      I am so glad to hear that someone actually understands how difficult it is to ask for help.  Ive just spent the last 2 days in bed with awful pain and if this is the future with fb then im not looking forward to it. This thing has crept up on such a way that i cant believe how much my life has changed so quickly. I say quickly but my blood clot was last year. patience is not something i have, but im learning. I find the amitriptyline is good for my dizziness and ive tried to cut down on the gabapetin but could not suffer the pain. The blood clot i had in my left arm has left me with nerve damage so i am being sent to a pain clinic. so i am hopeful. I still believe that i should just be giving myself a shake and getting on with things,i think i must be in denial. i just do not know how to balance activity and meds to give me some quality of life. I have never been out of work in my life and im really struggling. im off now for more bloody blood tests  excuse the pun lol 
    • Ech1ck
      Ech1ck claire0911

      Posted

      Ha ha ha ha puns are good ha ha.

      I hope your tests went well.

      A breath of fresh air talking to you.

      Likewise re work I have worked since i was 13 and when I have needed to all my adult life I have had up to 7 differnet jobs to make ends meet so to now not be able to work at all when mentally I feel I should be doing so is CRAZZZZYYYY!!!!! so I am sourcing all my productiveness and trying to find a way to channel it all in the right way. Well I have been told that breaking my ankle as well was a way of being forced to have to ask for help and get home nurse care - it was sooo weird and unnatrual but the nurses where great and they made me feel human and treated me with respect which was a huge boost.

      This forum has been great as I can feel useful in supporting others verbally if not physically being there and get great advice and support in return.

      E 

  • debbar
    debbar claire0911

    Posted

    Hi Claire

    I feel for u.  Your situation sounds extreme.  My lif has also changed in the past.couple of years.  I had to go on.disability.  I was very active.in the past and have pain most of the time.  If.u need someone.to talk to, I am willing to listen because it sounds like we r both suffering!

    • claire0911
      claire0911 debbar

      Posted

      Thank you so much, its good to have someone to talk to, I dont want to bore my family any more. i think this illness is becoming me
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