Feeling a bit confused.

Posted , 10 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

Hi All,I have COPD and had another lung function test today and the results were poorer than the previous test a year ago.

I am confused as I am feeling heaps healthier than I did a year ago.I walk for miles, go out socializing at night,I can climb steep stairs and hills,have had no flu,have put on weight.

In short,I'm doing all sorts of things I'm not "supposed" to be able to do.I just came home from a road trip round New Zealand and had no problems breathing etc.

,I am on Spiriva  use Ventolin as rescue which I rarely need to use.

In short my quality of life continues to improve yet the lung function results say my lungs are getting worse.

Has anyone had similar experiences,or insights into what appear to me to be contradictions?

I'm pretty sure the testing equipment wasn't faulty.

When I tell the doctors I feel heaps better and can do a lot more now they  don't believe me.This annoys me as I'm telling the truth.

Can lung function fluctuate? And are tests reliable?

Thanks!

 

0 likes, 8 replies

Report

8 Replies

  • Posted

    My experience has been the other way round: over the last year I have been getting seriously breathless, suffering from regular lung infections, and almost choking on my own phlegm. Yet my medical assessments apparently show that I am much the same (though marginally worse on some indicators). Go figure.
    Report
  • Posted

    Lots and lots of COPD sufferers sing the praises of pulmonary rehabiliation services they attend. Some for many reasons do not have access or cannot attend, but you seem to be another who proves the benefits. Well done and keep it up !!
    Report
  • Posted

    I have a FEV1 of 31%. Doctors think I am a lost cause yet I don't feel that way. I don't take any oxygen and can do moderate exercise and walking. It's got to the stage that I don't even go for the lung functionality tests anymore.
    Report
  • Posted

    Hi eleanor

    Congratulations on doing so well, that is great news.  Keep in mind though it is likely to be the inhaled lung medicine like spiriva that is allowing you to breathe easier and be more active.

    Yes lung function can fluctuate and probably the tests are reliable, however the day you got tested for instance there could have been high pollen count which would account for a lower reading, even though you may not be aware of any impairement in breathing.  By the same token another person may be having real difficulty with the pollen but lung function showing no deterioration.  Some times there is no accounting for how we feel and what test results or lung function tests show.

    You could in fact have another lung function test in 3 or 6 months and the results could be different again.

    Just make the most of the feeling good days.

    Best wishes V

    Report
  • Posted

    Eleanor -- An interesting report from you and it would be good to have updates on your general wellbeing over the next 12 months.

    I am not yet convinced that lung sufferers are on a road to nowhere. My belief is correctly managed some significant repair can be achieved provided a holistic routine is followed. Other than one setback (a very heavy cold) in October, resulting in a chest infection, I have been fit for nearly 2 years. It is clear each of us has to take precautions. For me, I have ceased winter calls on the grandchildren as they always seem to have colds and flu.

    Out of choice I have stopped medication and wait to see the results of a strenuous work programme and exercise routine. Another year will show if anything is accomplished. It has also crossed my mind that encouraging others to follow similar habits is not smart;  it is possible some readers have multiple health complications, besides age, and taking things to excess can harm a few of them.

    In sum, I can confirm your findings. There is possibly no remedy better than a healthy diet with plenty of mileage thrown into the mix every week.

    Report
  • Posted

    Hi there eleanor, I am from NZ and I too was diagnosed with Copd 3 years ago and like you I feel great I do moderate exercise still walk well I try to get walks in 3 4 times a week I still work casual hrs in retail where one is on ones feet for hours I take an inhaler once a day and just rock on.....admittedly I do have dry to phlegmy coughs but not always as each day is different depending on the weather. I also have the annual flu injection..good on you...keep up your health and well being routine for quality life.
    Report
    • Posted

      Hello and thank you.It's great to hear your experiences.Yet another person who is doing all sorts of things we are not "supposed" to be able to do.I also have an annual flu injection.Our bodies don't lie to us.If they can't do an activity they sure let us know. Correspondingly,if our bodies can do things,then they do them.I think it's kinda simple really.Cheers Eleanor
      Report
  • Posted

    Sounds like you are doing all the right things and are reaping the benefits!! I was newly diagnosed in Oct with mild COPD and I have started exercising, stopped smoking, changed my diet and I feel really great. However, none of my tests have shown any improvment and the mid range breath FEV25-75 is even worse than before though I dont feel my asthma is any worse. Enjoy how you feel. All these tests are great but reading how your body is responding to what you are doing may just be the best way to judge what is working for you
    Report

Join this discussion or start a new one?

New discussion

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up