Feeling alone during difficult time

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I am 49 and had total hysterectomy in April 2015 due to many fibroids. Decision to leave the ovaries was made due to history of heart disease on both sides of my family. Recovery was rough but made it through and finally after a year everything was back to normal and I never felt better. 2 weeks ago I started feeling bloated and had pain. I thought it was diverticulitis as I suffer from that. Dr sent me for scan and ultrasound which found a large cylindrical mass of 10x10x5 cm.  Was supposed to get it removed immediately but I had high fever and was weak. Apparently I have a bacterial infection which they don’t know where I caught it from. Antibiotics are working as my blood work looks better. I am scared to death of this large mass. Next week I go back to see surgeon and he will decide if I’m well enough for surgery or wait until after the new year. Anyone else develop a mass on ovary after hysterectomy?

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  • Posted

    I’m not a doctor but I trained as a nurse some years ago I had a total hysterectomy 3 years ago at the age of 49 I had a large fibroid 18.5cm which I was terrified at time had brilliant support from here. Doctors wrote on my sick note large mass which in medical terms mean growth so please don’t be alarmed at the word mass. As you didn’t have your ovaries removed it is common for fibroids and other growths to appear statistically  the chances of it being benign is very high and highly unlikely it would be other. I also had a infection with my large fibroids/mass so stay strong and be positive hope this helps you 
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  • Posted

    Hi Lyne, sorry you are suffering and feel so worried, totally understandable. I don't know if this will help but I had a huge pelvic mass too, 27 x 19 x 5 cms which was drained and removed along with a full hysterectomy on 27 November. The difference in how I feel is amazing, Like you I hadn't thought for one moment I had any sort of cyst, was being treated for acid reflux until another GP referred me to our local hospital after I started to bleed down below, (aged 69, I knew that wasn't right! )

    I'm certain you will feel the benefit once the cyst is removed, of course you will be sore for a while afterwards but being able to eat, bend and move normally will compensate. Try not to worry, hard I know - it seems only a very, very small proportion of cysts are cancerous, my surgeon said 0.5 percent in my case. Fingers crossed you do get your surgery soon, you are in my thoughts. All the very best x

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    • Posted

      Thank you Susannah,

      Knowing that you have been through this and are better now gives me some hope.  I went from teaching a classroom of 4 and 5 year olds on the Friday to not being able to get up on the Saturday. I am basically staying on my couch waiting for the antibiotics to get rid of the bacterial infection so they can perform the operation. Sadness seems to be my main problem right now. 

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  • Posted

    Please try to raise yourself above your sadness lyne, I know it is easy for someone to say that to you but it is true. You will have heard that a "positive mental attitude" pays huge dividends so please open your mind to that. Don't look back to what was, look forward to what will be ahead. getting back into that class room with those eager children all willing to learn and flourish. All the best to you, hopefully by now the antibiotics will be doing their job and you will be feeling stronger. Healing vibes being sent in buckets x 

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