1. Community
  2. Bones, joints and muscles
  3. Fibromyalgia Syndrome

Feeling annoyed

Posted , 8 users are following.

kirsty08752
kirsty08752

I received a letter to off the benefits to tell I am no longer eligible for sick pay. I am fit for work am so annoyed as some days I struggle to get out of bed. I would love nothing more to go back to work but at this present moment it's so hard just to do daily stuff like get myself dressed without being in pain am so annoyed with this government an benefits ace worked all my life an nw I can't due to the pain an have someone telling me I can when they dnt even now what I go thro on a daily basis rant over 😒😢 xx

4 likes, 24 replies

24 Replies

Prev
  • caroline87056
    caroline87056 kirsty08752

    Posted

    Hello Kirsty,

    sorry I have taken so long to reply to your post but have been getting my daughter off to uni and so have not had a minute to come on here. 

    Firstly please tell me you have appealed at the decision as I think most of us who getESA and are lucky to be in the support group have all had to appeal the first decision we got.

    i was told over the phone that after going for a medical I was fit for work. When I asked what made them come to this decision I was told that in my doctors report, I lay around all morning watching soaps, spend the afternoons catching up with friends and the rest of the time I am doing all my housework all with no problems at all. So I asked the lady as I was fit to go back to work ( I used to run a betting. Shop) should I take my Oramorph before counting the safe or after! At this she said no where on the report did it say I was in pain and she told me to appeal. I did and won. 

    Dont give up through, fibromalgia is very real and is the most pain I have ever been in. I had my two girls twenty years ago with no pain relief and I would rather have a baby any day than this pain. Do you take much to help you with the pain? I was under a pain team but they were useless I am lucky in that I have the best GP in the world and he has helped me no end. Always willing to take a chance on another drug to see if it will help, most don't but every now and then we find one that helps. I take MST which is a slow release morphine, Oramorph, and  Pregabalin for pain and these do help and means I don't spend all day every day in tears. I am still in pain every day but I am able to move around on good days.

    what did you do before you had to give up work. 

    Hope to hear from you soft ((((hugs))))

    caroline

     

    • lindsey65522
      lindsey65522 caroline87056

      Posted

      Hi

      I had my appeal for PPI yesterday and was refused, i honestly regret going i felt like I was being interagated, all they focused on what i could do rather than what i could, I came out of there so upset not because of the money but because i felt they thought i was lying, I dont think they understand the pain this condition  causes and the affect it has on your life. I have worked since I was 14, I have never had a child and worked full time all my life, i am really struggling with this condition, the pain, the tiredness and all that comes with it. I really wish I never went I have been really upset since as I felt like a crimminal on trail.

       

  • lindsey65522
    lindsey65522 kirsty08752

    Posted

    Hi

    I had my appeal for PPI yesterday and was refused, i honestly regret going i felt like I was being interagated, all they focused on what i could do rather than what i could, I came out of there so upset not because of the money but because i felt they thought i was lying, I dont think they understand the pain this condition  causes and the affect it has on your life. I have worked since I was 14, I have never had a child and worked full time all my life, i am really struggling with this condition, the pain, the tiredness and all that comes with it. I really wish I never went I have been really upset since as I felt like a crimminal on trail.

     

    • kirsty08752
      kirsty08752 lindsey65522

      Posted

      Hi Lindsey it so awful the way they treat you and make you feel isn't it. I have been struggling really bad last few weeks with the pains I can barley get out of bed and feel really bad on my family seeing me like this. I have also worked since I was 15 always worked full time an to be treated like this is so humiliating take care x
    • lindsey65522
      lindsey65522 kirsty08752

      Posted

      Thanks for your reply. I am struggling with this also, and I find the winter months worse, i really get severe pains in my chest, neck and arms, cannot lift anything heavy, I said at the appeal yesterday that my sister helps me with shopping as i cant carry heavy items, and the Dr said to me why dont i do online shopping, When i said i struggle get washing out the washing machine when its wet as its heavy they said do it one item at a time, they just looked at what i could do and nothing to do with what i couldnt, i wasnt expecting this and I think thats why its upset me so much as i think they thought i was lying but I honestly struggle with day to day ordinary daily tasks, ive never claimed a benifit in my life, but after going there yesterday think I was very naive to go alone, everybody there seem to have a representative from some sort and all came out winning there appeals, but i wouldnt put myself through this again. Would like to know out of interest if any body has been through an appeal and had the same experience.

  • Misssy2
    Misssy2 kirsty08752

    Posted

    It does seem like your only choice is to get a lawyer...they don't take pay unless they WIN.

    And they can provide you with advice on how to proceed with the case...what info is needed. Etc.

    Do you have any other ailments? like depression that you are being treated for? That should be included too when you talk to a lawyer.

    I am in this process as well...I started with a lawyer...I feel more secure that way...but nothing is guaranteed...I don't want to go thru the intergation etc....the lawyer is like my back bone during this time.

    • kirsty08752
      kirsty08752 Misssy2

      Posted

      Thanks missy for replying your advice is very helpful.

      Am going to see my gp on Monday to see if they can give me a letter of support. I have not been diagnosed of depression but I am very down at the minute am constantly getting upset some days i will just sob all day

      I am going to seek legal advice I think as well next week as the stress of all this is not helping at all I have had a flare up an in so much pain 😢

  • matthew_91073
    matthew_91073 kirsty08752

    Posted

    Hi I know how you feel I'm 28 and I have been on zapain for 6 years now taking between 6 and 8 a day having a real hard time at the moment with coping and as well as you have someone telling me that it's fine you can cope as long as you can pick up a pound coin 😊

Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.