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Feeling annoyed

Posted , 7 users are following.

sweethheart5703
sweethheart5703

I'm positive I have herpes!!! I have no other logical explanation for my symptoms and I wish I did!!! So then I could stop worrying myself. I've already accepted I have it but I'm annoyed it's this difficult to figure out.

Last week the doctor took a culture. He never expected herpes at all even when I brought it up. He said no you definitely don't need to worry about it because I wasn't showing the symptoms. But he took the culture and 30 min after I left called and said it looked like I had something caused by herpes. I expected that to be sent to a lab to be tested but he never did. Why, I don't know.

Then this past Monday I did the Igm test and if you've been reading up on herpes like I have you would know that test is unreliable so the CDC and many other professionals say. However I called to see if those test results came back today and it did but it came back NEGATIVE!!! I fully expected it to be positive but it did not. Either way I need to do the IGG but I need to wait a few more weeks at least for accurate results.

I'm frustrated because I still have symptoms. Mainly itchiness and watery discharge which I had to start with. I feel like medications start to help but then don't. I did have very bad cervical inflammation and since taking Valtrex it's gone down significantly. So I assume Valtrex since it helped must mean I have something of the sorts. I do still have a bacterial and yeast infection so that is probably contributing to my itchiness and discharge. But I'm sure I have herpes. I don't want that but what else can explain burning when I peed last week after doctor checked my cervix, little shiny spots (I think we're tiny sores not raised). Itchiness in certain areas. I saw a tiny cut you can barely see on my clit yesterday. Why would I have that if it's not herpes?! So annoying. Now I have to wait several more weeks to find out answers!

My biggest concern is that I had symptoms one week after my last sexual intercourse. I had very watery discharge even when just sitting down which never happens to me at least nothing like that and that's usually a first sign you have herpes although everyone varies with their first symptoms. I feel like I need a shrink at this point. I know my body, I know something is up! I just don't want to keep waiting and waiting for answers. My life is on hold it feels and it shouldn't be. I just want the test results to confirm my thoughts so I can breathe. 👎😔

1 like, 12 replies

12 Replies

  • loulabelle80
    loulabelle80 sweethheart5703

    Posted

    I am so sorry you're having to go through this waiting game. I have had about 4 blood tests in total. I actually got told 2 years after the first positive one (he cheated so i had a set of re-tests) that it was negative from the blood and swabs! I spent a week thinking i didnt have HSV but then re-tested and it came back positive lol!

    So i guess i can understand your frustration as it's useless when you don't have answers to be able to organise and progress. I really hope you get answers soon x

  • veronica_29948
    veronica_29948 sweethheart5703

    Posted

    THANK YOU! YOU NAILED IT!! Finally someone who feels exactly as I do! Same story, went to the OBGYN she looked saw nothing out of the ordinary but a slight abnormality, took a Culture told me it was most likely nothing she didn't think it was Herpes but sent it to the lab just in case, came back negative, so story should end there right?!?!?!......NO! Nurse who called back with the test results tells me false negatives are very common and I shouldn't take this as a for sure negative. What the hell is that suppose to mean!  

    Listen I know my body, I know something is not right, might be bacterial, might be stress, hell might not be anything but my mind convinced I have Herpes (I feel you on the psychiatrist comment too) yesterday my roommate asked me why I have been spending so much time in the bathroom and is everything ok.....it's because I go there and check myself nonstop! I check myself so often I feel like I'm starting to see things! 

    I've come to terms with having Herpes, if they tell me yes you do have it, I'm fine with that. I've thought about it long and hard and I would live with it. What I'm not ok with is being in limbo like this! I am upset that in this day in age we still don't have a test that will tell you for sure if you are infected with this virus. It's starting to affect my job, my friendships, my relationship with my family,etc. I just want to know! I don't have any lesions, no flu symptoms, no burning when I pee, but I know the itching and soreness, along with the pressure I feel on my abdomen (BTW does anyone have that symptom? a lot of pressure in your abdomen?)  are not normal. Hey medical "experts" just tell me so I can move on with my life!!

     

    • sweethheart5703
      sweethheart5703 veronica_29948

      Posted

      I feel like all of us girls should meet and just have a popcorn and movie night and complain about our symptoms! Lol

      But yeah idk. At least your doctor sent your culture to the lab! I need to find out why mine didn't. I have another appt Dec 2nd. It will be 4 days before my 33rd birthday I want to see if they can do the IGG test at that time. 6 weeks would have passed my antibodies could show up then. Not that I want to stress around my birthday but st least I'd have an answer going forward into the new year. Plus I want to know what type I have. I'm hoping hsv1 since that only causes 1-2 breakouts a year. Hsv2 is like 8-10 that's almost a breakout a month. In addition to a period a month I don't really want to deal with it. Lol 🙈

    • lynn00051
      lynn00051 sweethheart5703

      Posted

      Ha! Feel THIS frusteration... I finally got a call today from my Dr (I tested a week ago in full outbreak mode) and the nurse said it was positive for herpes (which I knew). I asked her what kind, and she said "what do you mean? " and I said " well, is it 1 or 2?" And she said well its on your genitals, so it's genital herpes. I couldn't believe her lack of knowledge, she told me I shouldn't be looking on the Internet! I told her that I had the left leg nerve pain last weekend, and she said she had never heard of that! Then she asked if I was feeling better talking the Valtrex. I said it looked to be fading, but still have a couple open sores wit redness and swelling, and she said " ya, it usually lasts about a week" and I said a week?? I've been suffering for 16 days now! Jesus, how do I know more in a week about this than a gynecological nurse? ?? I can't afford to go to several different doctors, this is beyond frustrating! Initially I was more depressed about the thought I will never date or have sex again, now it's the least thing on my mind! !
    • supersad
      supersad sweethheart5703

      Posted

      Sweeheart, did I see you said you were Irish? I am Irish also and had a visual diagnosis for HSV but negative culture and blood test showed only positive for HSV1. Partner negative for both and I have had HSV1 for most of my life. The stress is insane and I don't even know if I actually have this. I too am going back to the doc on the 2nd December for more bloods and it will be a week before my 33rd birthday! Twinsies! 
    • sweethheart5703
      sweethheart5703 supersad

      Posted

      Haha! Aw how random. lol

      I actually think one of the medications is actually working for me finally. It's for the bacterial infection. It's called metrodonizale or something I have to check the bottle again but my discharge is gone, no odor and not itchy anymore. About flipping time something is working but I don't want to jink myself. It's only my 5th medication in 4 weeks. Lol I have an appointment with a dermatologist in two weeks. I figure a skin doctor in addition to a gyno should really clear the air for me. I think the male doctor I saw while my regular doctor was out was just making guesses this whole time. He has a great bedside manner but idk I feel like I can't depend on his answers. When he first saw me he said I had cervicitis but said if it was an std he would guess chylemdia. Put me on an antibiotic that did nothing for me which treats chylemedia btw lol. All the while my yeast was being untreated these last two weeks. Then takes a culture that says I "look" like I have something caused by herpes but doesn't send it to the lab. Makes zero sense to me. Ive finally calmed down today just taking it day by day. I'm still paranoid though, I think about this all day long. Last night I had a dream I got a cold sore and went to the store to buy Abreva. I've totally lost my mind. The mental anguish that I've gone through is too much. I'd like to finish the year in peace. This year has been kind of crappy for me health wise. I had ulcers and stomach issues earlier this year, dairy allergies, losing weight, finally gained it back and now this mess. 👎

    • FelizCastus
      FelizCastus

      Posted

      P.S. Did they not do a high vaginal swab? That can detect yeast, BV and trich. I ordered one after my GH results to ensure I didn't have anything else going on down there.
    • sweethheart5703
      sweethheart5703 FelizCastus

      Posted

      Yes he gave it to me because he said I still had a bacterial infection. I took a new yeast medication he gave me too because my lab results said I still had that and so I took both but the yeast was just one pill but it's the bacterial medication I know is for sure working because I stopped itching and then took the yeast the next day because I want to be done with the symptoms. I won't finish with the bacterial medication until Tuesday I take it twice a day for seven days and then God willing I'll be done with the meds I hope. I tested negative for trich, gon, and chylmedia twice. Just the medication I was given the first time didn't help which is why I even guessed herpes because googling is the worst thing you can do lol but this medication seems to be working. So we shall see. Just taking it one day at a time.
  • FelizCastus
    FelizCastus sweethheart5703

    Posted

    The waiting and inconclusive diagnoses could be avoided if your clinics simply did a PCR/DNA swab, not a viral culture, or if you specifically request the former. Costs a bit more, but very accurate, no need for new lesions and far superior to HSV viral cultures overall. My clinic doesn't even do viral cultures for GH lesions. PCR swabs only.
    • FelizCastus
      FelizCastus

      Posted

      My above reply is meant for everyone on here who can't get a conclusive diagnosis. For those who no longer have symptoms, the next time you have lesions, etc., test by PCR swab. Or just wait to do the IgG test.

      @Sweetheart - I wouldn't be surprised if you don't have GH. Watery discharge is suspect, but GH was not indicated by visual exam or IgM. The problems with the latter are mostly related to the fact that it can't determine type or recency of infection, plus IgM levels eventually fall off, etc.

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