Feeling Crippled and In Constant Pain

Posted , 6 users are following.

This is a rather long story but I hope someone can supply some feedback or has had a similar experience.  I am not young by any means but I look years younger than my age and have a positive attitude.  I have been dealing with some GI problems, but haven't found them nearly as debilitating as what happened to me starting in the beginning of April. One day I woke up feeling a bit strange, like I had a touch of some bug.  Regardless, I did my errands even though feeling very tired.  My entire body ached and for days I noticed I had barely any energy.  I decided to see my doctor, who did a blood profile, concluding that everything looked more or less normal.  Gradually, I got some strength back but my body still ached in a weird way.  A few days prior to May 8, my spine became so painful that it felt like my back was broken.  All the ribs on the right side hurt and so did my right leg, from the toes to the hip joint.  On May 8 I went to Urgent Care, as I could not move or walk without extreme pain.  I knew my back was not actually broken, but was tired of wondering what was going on.

?Several x-rays were taken of the spine and I was given pain medication.  I quote from the report: "1. Mild multilevel degenerative disc changes.   2. Moderate degenerative facet changes, greatest at L4-5 and  L5-S1."

?That is not so bad in writing but my back and leg still hurt like the devil today, May 13.  No change at all.  As far as the leg is concerned, I think I might have a pinched nerve,  The radiologist's report also stated that my spine curved slightly to the right.    Yes, "mild", "slightly", "moderate" but, if it's no big deal, why am I in chronic severe pain all of the time now?  I feel best while lying on my stomach and it's a good thing I sleep that way so at least I can get a few hours of rest during the night.  It also helps me to lie in a hot bath, which, of course, I now have trouble entering and exiting due to general stiffness.  I feel like I've suddenly become an old woman of 90.  Any thoughts would be much appreciated.

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11 Replies

  • Posted

    Maybe you are right and you do have a pinched nerve. How about seeing a chiropractic to do a whole body assessment.

     Pain can be referred from the spine to all parts of the body.

    best wishes

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  • Posted

    True about possibly referred pain although it seems odd it would be so widespread.  I suggest a chiropractor might not be best choice just yet.  Depending on what is really wrong they can do damage.  However, have you been properly assessed?  There are other conditions which can cause chronic widespread pain.  For a long time I thought I had pain from osteoarthritis but it turned out although I do have OA the pain was caused by polymyalgia rheumatica (PMR) which is treatable.  Can you see a physiotherapist to get exercises which will strengthen the muscles in your back?  Physiotherapists also can offer other treatments, like dry needling, which can relieve spasmed muscles.  Ask your doctor what the results were for your blood tests.  One doctor told me my "inflammation markers" were fine.  Later another said they weren't much above normal but worth having redone, and she was the one who suggested I had PMR.  I had likely had this condition for over a year.

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    • Posted

      The doctor I saw in Urgent Care suggest physiotherapy.  I know I must try everything and will set up an appointment next week.  I will also look up PMR.  Thanks for the responses.
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    • Posted

      One of the things which happened to me was growing disability - so that getting into and out of the bathtub became a painful adventure, even getting out of bed had to be planned, step by step.  I remember doing my yoga and physio exercises one evening and it took me half an hour to get up from the floor.  If you are experiencing something like this, please do investigate the possibilityof PMR.
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  • Posted

    I hear you! Im the same a long story too I am on norspan patches 15 /hr into body, duloxitine as a nerve blocker for nerves, I have been put on stronger meds, but I dont like the, no brain,forgetfulness etc side effects this is the only meds that i keep a clear head but sadly now with yet more deterioration Ihave to go into hosp as i have multi problems and they wish to have me in there to be seen by all the diff specialists and surgeons to see what can be done for me. my advice is to see a specialist for control of painstiffness etc so you can keep moving at the highest level you can as the old use it or lose it does come into play. when i finally saw a specialist and had mri, scans, it was too late for surgery for me and i am heading into wheelchair my biggest problem is after 20m or less of walking terrible nerve pain debilitates me even on meds they say this is because all the nerves meet and go down the front of my legs these holes that they go thru on each side are closing up. but i also have spurs in 12 vertibrae, facet joints mod-severe , sacriolic joints med - severe, bilateral hip replacements needed, spinal sclerosis, scoliosis which is curve to riht bottom of spine, from s1-L 3/4 all need replacing so get the help you need asap as the more you sit back and listen to them say its nothing the more you will end up like me too late. I wish you all the best and am here to chat if you need a ear Im sooo up with how your feeling x

     

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    • Posted

      i also did physiotheraphy, hydrotheraphy etc etc jabs etc etc none ha worked a lot has deteriorated my conditions so please please i urge you to get proper specialist/surgeon advice. before spending money on all sorts of things for guess's of whats wrong, the so called professionals i have been sent too that have caused me more harm is just ridiculous. go walking, go swimming, gym, etc etc until at my wits end in angony and so debilitated, i kept going and made them keep going, till these neurological problems that cannot be fixed etc were found it was a joke!! go straight to the top with mri,ct scan, mri with the dye to show nerve problems!! get proper diagnosis then go to advised other professionals.

       

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  • Posted

    Could be siatica from a prolapsed disc. That is really a constant nagging pain I had surgery on one disc a few years ago. See a spine specialist for PT, or surgery to relieve the pressure and hopfully relief from pain. Usually discs change as we age from arthritis, injury other issues that creep up on us.

    Many ways to treat this best to see a doc for pain management advice in your case. I hope your better soon and keep me posted. My back is deteriorating from arthritis and many spine issues so I can really sympathize with you. Pt has helped me exercises and heat so far I am managing with staying mobile. It's tough some days are tricky. Also wear a back brace helps during the day takes the pressure off and finding what works for you is really the best thing. Best wishes .

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  • Posted

    Many years ago & over the years I went to Drs with a lot of the above. They told me I needed spine surgery but there were risks, it got cancelled... blah blah 10 yrs ago I was siagnised with cancer but after 2 consultations they couldn't find it any longer !!!!! I went o pain management and felt insulted by the dr s comments as I looked good and was pretty fit all but the PAIN, my joints, lack of energy etc. I had a hip re-surfaced etc etc the list could go on. Now I have been diagnosed with genetic Hemochromatosis. It effects almost all of the above. My advice is to obviously get MRI etc etc get a diagnosis... When you have injurys etc your muscles don't work as well as they should as other parts of your body compensate until it becomes too much and then it starts getting too painful and Drs just put words (diagnostics) to what they think in a lot of cases. SMA stands for sensory motor amnesia and that is what our muscles get; they forget how to lengthen and stay tightly contracted in our spine joints etc causing pain eg neck/shoulder back, hip, knee, sciatica and because this effects our posture it can start to effect how our vital organs and nervous system. If this is what you are feeling and nothing seems

    To work medically to fix it try Somatic movement, these are neuromuscular movements which educate our brain to retrain our muscles and get

    Back fill

    Movement in your body eventuallly giving you more pain free movement. This is how I am

    Able to have a fit life

    With occasional Done too much pain eg gardening etc

    I have to have 1L

    Of

    Blood taken every week

    Until my ferritin levels drop a I have been storing iron in my liver causing

    Cirrhosis. I WISH DOCTORS HAD BEEN MORE AWARE OF THIS CONDITION AS MY WHOLE LIFE

    COULD HAVE BEEN SORTED with a proper diagnose and I would not have this irreversible

    Cirrhosis now and maybe I wouldn't have had the arthritis that it has caused. Check out my website and see the information. Maybe I can put you in touch with a practitioner nearer to you ??? But you need to check and keep on at Drs & consultants and exhaust every medical option.

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    • Posted

      Thank you all for replying to my post of 17 days ago.  I am happy to report that I am doing much better now.  Due to other pressing concerns, I was never able to get to physiotherapy.  Regardless, I haven't needed any pain medication for more than a week and can walk with much more ease--which is to say quite normally.  The general aching in my body has subsided, too, although some days the sciatica in my right leg acts up by nightfall.  But it hasn't prevented me from sleeping.  This may be just a temporary reprieve but I must say I'm glad I had no more radiological tests beyong the initial x-rays at Urgent Care.  Some times I think I have had so much radiology done on me that I ought to be glowing in the dark.  Wishing you all relief from your own discomfort.

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  • Posted

    so glad you are feeling better take care and dont lift heavy things etc and keep looking after yourself! xx
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