Feeling depressed with no1 to talk to who understands :(

Hello Sophie,  I'm sure someone will be along soon, with the same disease as you.

I don't have PsA but have been on Methotrexate, haven't taken  Sulfasalazine and am currently taking Mycophenolate Mofetil.

They usually tell you that these drugs take about 12 weeks to start to work.  I know that I feel washed out a lot of the time & I admire anyone who manages to look after small children too.

You aren't failing as a mother & a girlfriend.  You need support as a family.  I wonder whether there is a support group on Facebook?  I'm sure someone will tell you.

Good luck Sophie.

I found this website, which might be helpful

http://www.papaa.org

Sophie your not alone and this sight will help and support you when your feeling low and depressed, I don't have your condition but do suffer with other problems so I totally understand.

Is there no leaflets you could ask your partner to read just so he has some understanding of it or take him to your rheumy/doc appointments so he can explain how this condition effects you, I really feel for you Hun especially having little ones.

I hope you get sorted soon with the right meds for you as I have read on here what a difference it makes to your life once you have the right combo.

Always here to talk and listen when you need it, no one judges on here as where all in the same boat so do t feel guilty if you need shoulder to cry on, sending hugs 💞

You are certainly not alone there are many of us that have PSA as im sure your about to find out. The pain it can cause is horrible, I have been on Sulfasalazine which worked for a while then i was put on Methatrexate along side sulfasalazine, I am now on Cimzia (biotic injection) which is great its the first time in four years without any pain, I am lucky that my wife understands, I describe the pain as though I had been hit with a plank of wood. 

Are you on any painkillers? I know how you feel with the pain i was in that much pain I was unable to work so I cant imagine what its like running around after two small children. 

As you may be aware both Sulfaslazine and Methertrexate can take up to 3 months to work, I was on Tramadol, Co Codomol and Ibrupen with Sulf and MTX all at the same time, but since being on Cimzia I am only on MTX and the Cimzia now. 

Get your Bf to read up on the condition he might start to understand, 

All the best 

Rob 

Hi and welcome Sophie

you certainly are not alone! We all share pain here, there is no escaping it! In comparison mine is mild, I'm coping without painkillers most days. 

I take my hat off to anyone suffering here! 

Ive had PSA for some years, but only diagnosed recently. I am trying to search for alternatives to meds. I use acupuncture, yoga, Qigong exercises I found on YouTube and many many supplements. 

My work are very understanding at the moment but I know my days are numbered. 

You certainly are not failing, you are coping magnificently as not every mother has the discomfort like you! 

You are stronger than you realise! 

Stick with it girl! 

Ian

Sophie,

I'm sorry you're feeling this way and I can relate. I'm new to the diagnosis and in some pain daily, some days are worse than others. I'm taking otezla, but have only been on it a few months, so no great results yet. I have a 9 year old boy who's super active. My husband is very understanding, though (it helped that he researched the disease to better help him understand) On bad days, instead of going outside, we all play board games or watch movies together, so I don't feel so absent. I carry a heating pad around the house and ibuprofen is on both floors of the house, so I don't have to climb stairs :-) working out helps me and I've found that drinking alcohol makes me ache badly the next day. This forum has been helpful for advice, understanding and the ability to just complain without judgement, but your rheumatologist might know of a support group to refer you to. Good luck and keep us posted.