Feeling Desperate
Posted , 12 users are following.
I have had swallowing problems, oesophagus pain, burning in chest feeling as though food is getting stuck and an awful sensation of a lump in my throat for the last four years. I was wrongly diagnosed with GERD and treated with PPIs. My symptoms have gradually got worse and after three attempts managed the manometry and twenty four hour pH test following this I have been recently diagnosed with achalasia. I feel so unwell and life is feeling unberable I can only tolerate liquids at present and my symptoms seem to have deteriorated since diagnosis feels like everything sticking in my throat an awful taste the lump has got worse and feels like I cant feel my throat properly and my swallow feels weak. All my symptoms are bringing on the most awful feeling of anxiety and I just don't know where to turn no one understands how bad this feels. Has anyone else had this terrible sensation of a lump and at the same time a sort of lack of sensation in the throat. Would appreciate any advice anyone has.
1 like, 52 replies
barrym hannah30321
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I have been living with achalasia for about 5 years, there is plenty off good advice here...https://patient.info/forums/discuss/browse/oesophageal-achalasia-and-spasm-1655
I have a few rules which I live by and they work for me, Dont eat late generally last meal before 7pm at night, and drink hot water with it. Try and stay away from and processed fats and oils especially transcentric fats. Gluten free diet was one of the biggest gains for me, bread is a killer for me. But the biggest success story was proably 50ml of coke a cola before I sleep, this helps disolve any fat and food that has not been washed down, I have no idea what the damage is being done by the coke but hell I sleep without regurgatating my food. I have gotten use to throwing up when I feel my food not going down, no point in suffering.
Take your time when you eat and be patient! chew well and take smaller bites. ENjoy what you eat and be happy to eat hand sized portions and more often. Dry food that needs to be hydrated when cooked such as bread and biscuits block me up and really makes it difficult to swollow.
I wish you all the best, I have not opted for the operation.
hannah30321 barrym
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AlanJM hannah30321
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hannah30321 AlanJM
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hannah30321
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hannah30321
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AlanJM hannah30321
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hannah30321 AlanJM
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AlanJM hannah30321
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ClaireGG barrym
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hannah30321 AlanJM
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AlanJM hannah30321
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It might be that the pain and sensation are being transferred from other locations through the nerve system, most of the nerves being connected together in the vagus nerve system. It is still a form of motility disorder, and sometimes people use achalasia interchangeably with the disorder. The globus sensation can be caused by a number of things. It really needs an expert to look at the test results and to interpret them properly, but your pain is not normal and something must be driving it. It sounds like there is some sensitive soreness in your throat which gets triggered off unless you are swallowing something very bland.
Does it make a difference when you eat very soothing food, or something like Manuka honey? Do you suffer from reflux? Is your mouth normally moist? Are yor taste buds normal? How is your dental hygiene? Does it make a difference if you have over-the-counter medication like gaviscon? or antacids? I am thinking through various things that might make a difference to how your throat and oesophagus feel, and what might make a slight difference. It is possible that you may have more than one issue, which may or may not be inter-connected.
hannah30321 AlanJM
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AlanJM hannah30321
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hannah30321 AlanJM
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didragon barrym
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